My new Friend, Ed Port, needs your help.
From: Ed Port <gbg@ameritech.net>
Date: December 27, 2008 2:56:15 AM CST
To: reggie@reggiebibbs.com
Subject: Hello Reggie from Ed Port
Reply-To: gbg@ameritech.net
Thank you for the e-mail MIke forward it to me. How did yo hear about my story? I fist saw you on the O about a year ago when I was flipping thou the TV chs Mike has been trying to help me get my story out. I ws chatting with friend today on yahoo that lives in Romania who said he would put my website on his blog to help to get the word out and to help rasie funds.
I would like your imput on anything that would help make the website better. I wike your store very much it would great to speak to you
http://www.edneedsamiracle.com/
Ed Port
Youngstown Ohio Continue reading
ED FROM PENNSYVANIA
I thought I would share with you about Last Saturday. I had lunch with a friend, Ed Olsavicky. Ed is a terrific friend and a relative of Lou’s. I met Ed at Lou’s wedding many years ago.
While Ed was in town this Thanksgiving holiday, he wanted to get some good old Texas Bar-B-Q. Lou took us to Goode Company where we had a great lunch. Ed wanted to know everything about JUST ASK, and how things are going at my office. It was great talking to Ed and catching up on things since I saw him last.
I hope you enjoy the photo. He now has a Just Ask! t-shirt and will be talking aboutf Just Ask and neurofibromatosis when he gets back to Pennsylvania. Thanks ED for the lunch. See you in D.C.!
The Many Faces of The Texas Renaissance Festival, 11/28/08.
To the many new friends that I met at the Texas Renaissance Festival on Friday I’d just like to say, thank you for making it one of the most fun days in my life.
There are so many new people that I’ve met that I don’t remember your names but you can definitely see your photo below. Special thanks to Taarna the Ice Queen Faerie for the beautiful handmade pin that I’ll treasure forever, Queen Bonnie and her Realm for making me a Knight (Don’t worry, I will smash the wicked peeps at every opportunity!).
Thank you Arsene Dupin – Juggler, Magician, Comedian, Mime Extraordinaire, Louis and Matt – The Fabulous Other Brothers, Blair the Beer Mistress, The Kissing Lady that was so sweet, the guy from the Houston Roller Derby with the beard and kilt, my special friends from Goodwill, the English couple in black leather that I had my picture taken with last year and this year, and finally to all the hundreds and hundreds of people at the Texas Renaissance Festival who make me feel like a King.
Thank you all and I’ll see you next year! MORE PHOTOS HERE!
My friend Scott Dickson and me on Manhattan Beach!
Thank you Scott for allowing me to be your guest at your home. Lisa, Maeve, and of Course my friend Clive. There is no way I can explain how happy I feel about the way things went for me.
It’s good to be home, but sad to leave the company of my great new friends. Thank you all for your kindness.
Reggie Bibbs as photographed by, the one and only, Greg Gorman
Reggie is currently on vacation in Los Angeles visiting with his new friend, Scott Dickson and his family. While in LA, Reggie had the opportunity of visiting with old friend, Greg Gorman. Greg is an internationally known photographer known for his stark, vivid images of the famous and not-so-famous.
Greg has been an important part of Reggie’s life since being introduced to Reggie by Houston socialite, Carolyn Farb.
Reggie has been featured in Greg’s books and showings.
Reggie Meets Kevin and Susan Nealon in LA!
Reggie with Susan and Kevin Nealon and Scott Dickson in LA.
See more photos at Reggie’s Flickr account here!
My friend Francis Boyermadrieres from France
Dear Reggie
I received to day your tee shirt. I’m very very prud to wear it! I only do it for great events for neurofibromatosis! As you can see It fit me very well. Very sooner I’ll publish in my blog a text about my purchasse. Dis you see my slide shot about the naughty little toad? In this clip I wear a French neurofibromatose tee shirt size M because the French association own S tee shirt no more. I hope the sending was not too expensive for you. Kind regards my friend
– Francis
If you would like to email Francis, his address is f.boyermadrieres@laposte.net
2008 Texas Renaissance Festival, 11/1/08
Reggie, Lou, William and Geo went to one of my favorite places in the world, the Texas Renaissance Festival.
I met a lot of great people like Lisa, Christina, Lewis, Barbara “The Fairy Lady” and saw a lot of old friends including the “Pretzel Guy” and the belly dancers from the International Festival.
The weather was perfect, the entertainment very good, and I had the BEST DARN steak on a stick I’ve ever had!
Now if there was some way we could go without Lou having to tag along!!!
Let’s Go To The Texas Renaissance Festival!!!
The Texas Renaissance Festival this weekend sounds like a terrific idea. I plan to be there Saturday to join in the fun. This will make my second year to attend. Last year was a blast and I’m sure this weekend will be just as fun as last year. See the link for more on the Festival. If you enjoy things like games food music then you will enjoy the Renaissance Festival. I will be there hope to see you. See the link for more information.
New “Just Ask!” T-shirt Design
We are thinking of redesigning the shirts so they are simpler, more fun, and are equally appealing to men and women.
We have two styles we’re looking at – distressed and/or solid colors. We’re also investigating different colors for the shirts.
Which design do you like? What colors would you prefer?
Let us know below and who knows, you just might see the shirt of your dreams up here in a few days!
Shiner, My New Dog!
Just got Shiner. Meet my new dog. Shiner is a great dog and I’m thankful to my new friends Connie and Jaen Lawrence. They helped me with making a great home for my dog. We went to the Pampered Pet Inn. When I saw Shiner he came over to me and laid down. He was just the dog I wanted. He’s right next to me as I write. He will be watching TVLAND tonight.
Lets talk pets. What kind do you have. What kind do you want?
TEXAS NEUROFIBROMATOSIS FOUNDATION AND CAMP FOR ALL
I’m looking forward to another great time in Burton Texas. Camp For All. The first day of camp is September 5-7th. Everyone who is going should have all there information submitted by now. I hope so.
Again this year The Texas Neurofibromatomatosis Foundation is having their annunial NF Family camp. Again we are going to have a terrific time meeting our friends from last year, and I know we will make new friends this year as well. Horse back riding swimming games and more. The best part is meeting new friends and sharing stories. It’s going to be a great one and I hope to see you there. Who knows you may see someone playing his music with his newly formed band. I’m not saying you will have to come and see. Some you know might play the autoharp. Just maybe.
HOUSTON ROLLER DERBY HONORS REGGIE BIBBS THIS SUNDAY NIGHT! TICKETS ARE GOING FAST, GET YOURS TODAY!!!
Speaking of the roller derby, mark your calendar for August 10 as the Houston Roller Derby honors a certain person on this blog who will remain nameless.
Houston Roller Derby
Sunday, August 10
Doors open at 4pm
Bout starts at 5pm
Verizon Theater
Downtown – Texas at Bagby (LOTS OF STREET PARKING AND THEATER PARKING)
DON’T FORGET TO WEAR YOUR “JUST ASK!” T-SHIRT!!!
Please make plans to attend and wear your Just Ask! t-shirt. Don’t have one, no problem! We hope to be selling them before the match!Advance tickets are just $10 online, $15 at the door!
Come see all of your favorite skaters including Dementia, Mistilla the Killa, Jeckyll & Heidi, Carmen Geddit, Death by Chocolate and more!!!
SPECIAL THANKS TO ALL THE SKATERS, FANS, REFS AND FRIENDS WHO HAVE MADE GOING TO THE ROLLER DERBY EVERY BOUT A WONDERFUL EXPERIENCE! YOU HAVE NO IDEA HOW MUCH THAT IS APPRECIATED!!!
“Hey big fella, do you have neurofibromatosis or are you just happy to see me?”
CAPTION CONTEST: WIN A JUST ASK! T-SHIRT!
Send us your best caption to this photo via the COMMENT section below, and you could win the first prize of one Just Ask! t-shirt!!!
Second prize is two Just Ask! t-shirts.
PHOTO: (l-r) Reggie Bibbs and the beautiful Carmen Geddit of the Houston Roller Derby.
Speaking of the roller derby, mark your calendar for August 10 as the Houston Roller Derby honors a certain person on this blog who will remain nameless.
Please make plans to attend and wear your Just Ask! t-shirt. Don’t have one, no problem! We hope to be selling them before the match!Advance tickets are just $10 online, $15 at the door!
Come see all of your favorite skaters including Dementia, Mistilla the Killa, Jeckyll & Heidi, Carmen Geddit, Death by Chocolate and more!!!
wee lou makes the decision of her life
Wee Lou “Louise’ Cunningham
On Jul 24, 2008, at 8:39 AM, wee_lou_c wrote:
No unfortunately i had the scan yday and it said the tumor has
grown very large now because of this i would be cut off from the
things i call life also there wud have been a much heavier risk of
me dying straight away today. So i have chosen not to have this but
live slightly longer 2 years at the most and enjoy my family
friends and things i enjoy doing. I thot my outcome would be so
much brighter but yet again i have to keep fighting to enjoy wat i
have left. Dont be sad.
Wee
Wee, am sad but in a way happy that at least the next two years will
have a quality of life that is better than if you had the
operation. I wish I was as brave as you, Louise, to calmly say I have
two years left at the most. I wonder if there is a way to get your
records shipped to M.D. Andersen Cancer Center so our NF doctors here
could take a look at them. Are you flying back now or driving?
Meet “JUST ASK” Live Chat-Person, wee_lou_c from Scotland
hey fellow nf’ers its louise here aka wee_lou_c i’m 20 i’m an aquarius as my date of birth is 4th february 1988, i come from the U.K a quaint little town in the bonnie land of scotland it is called glenrothes which i’m guessing is called a state to you guys but its a county here but that is in fife so i’m a fifer. at the age of six i had a biopsy which verified i had nf but i never found this out till i had vision problems at the age of 12 so i was then officially diagnosed with nf2. iv had a little trouble within the years but nothing i couldn’t fight my way through as i believe to get on you have to forget what you have lost and remember who and what you still have. i like to chat as its great speaking about all the different cultures and food and things happening around the world plus i’ve made many new cool friends. i am a complimentary therapist so i like the calm side of life but i’ll never say no to a party. i absolutely love watching lovey dovey films aka chick flicks, i also love scottish stovies they are really braw oh i am sorry i mean good.
take care all and have some fun.
Houston NF Pizza Party, July 12!
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Bayou City Bosses Fundraiser at Buffalo Fred’s Icehouse
Lou and I had an incredible time at the Bayou City Bosses Fundraiser last Saturday!
Everyone came up to us and said hi and posed for photos. I think Lou has a thing for Audiomind because he sure took enough photos of her!!! : >
Enjoyed talking with some of my favorite skaters including Carmen Geddit, Death by Chocolate, Sinista Sista, Mistilla the Killa, Audiomind and all the rest too numerrous to mention.
The next match is June 8th and Lou and I already have our tickets!!! If you’re interested in going, get your tickets today as they’re only going to sell 300 of them!
HOUSTON ART CAR PARADE, 5/10/2008!!!
What a great day for a parade!
My second year going to the Art Car Parade, and just like last year, I had a terrific time.
Nice cars and so many to choose from that might be the best one. One that sticks in my mind, well it’s really two. The Grapes are and the Red wagon.
I also met a lot of people that was me last year and and new people that saw me on the news last week.
All the photos are here for you to enjoy. Just go to my photo page to view. Please leave a comment!
Reggie and the Neville Brothers
How can I begin to tell you how much fun I had yesterday at the International Festival. The day stated out very well with meeting people who have seen me before. There where happy to take photos with me. I was remembered from last year. The food was terrific music was great. All types of music. I enjoyed the country music of course.
The best part of the evening was music from the Neville Brothers. Arron Neville. I actually got to meet the Neville brothers. A very big thank you to the Neville brothers for taking time to meet and take photos with me. Also thanks to my friends who joined us, Matt Jones, “The Tall One” and William Hughes, “The Smart One.” I said man I would love to meet the Neville brothers. Matt said, “I bet I could make that happen.” Well, he did and you see the photos as proof. I have to tell all of you I had the best time ever.
SEE PHOTOS OF CONCERT AND BACKSTAGE
It would be a really good thing if we could get a group together and do what I have been doing for a year. I can promise you it will change how people feel about NF, and you will feel better that you did it. Whether you have nf1 or nf2, it is a great thing to let people get to know who we are. I would really like my friend, Brian, to go with me some time. I really think people are more understanding now. It seems to me that people expect me to be there. How cool is that?!! Next stop, the “Art Car Parade!”
Cathy Clark, Brandon, the Astros, McKee St Bridge and the Porch Swing Pub!!!
Another amazing day out at Minute Maid Park! Lou and I went to the Astros game today. We had a great time. The game was great and the Astros won! It was really nice to see so many nice people. Like Brandon, who saw me on TV and came up to introduce himself. Thank you for doing that!
I saw Cathy Clark, who was my bus driver when I was in school. Lets just say it was over 25 years ago when I used to ride the bus to school.
Cathy remembered me by name. I was so happy when she told me she use to drive me to school. Cathy works at the concession stand in Section 409 of Minute Maid and, I got to tell you, I’ve never been treated with more love and respect than from that entire food area!
I think Cathy is a supervisor or some other type of important person because she was definitely in charge! What a great representative for the Houston Astros staff. Cathy, you made me feel so special and it means the world to me! Hope both you and Brandon will be a regular on my blog. Thank you both for making my day!
After the game, Lou and I went to the fabulous McKee Street Bridge and took some photos. WOW!!! What a beautiful bridge and park! Lou’s friend, Kirk Farris, had single-handedly transformed this bridge and bayou area into a place that is totally cool, beautiful and peaceful! It’s just a few blocks north of Minute Maid Park on McKee Street just south of I-10.
Of course, taking all those photos at Minute Maid and McKee Street made us pretty hungry and thirsty so we went to the new Porch Swing Pub at Washington and Waugh in The Heights for crawfish!!! Man, oh, man, were they good! Lou had beer. I had Coke.
It was a beautiful day!
Celebrities, artists, designers and friends in middle of doodling frenzy for neurofibromatosis!!!
Lou and I are in the middle of what I thought would be a very difficult task: asking celebrities, artists and friends to draw a doodle for National Doodle Day benefiting NF!
Well, I’m happy to say it was very easy thanks to some very special friends! With the help of some special people who want a cure for NF as much as I do, friends from all over the country whipped out their writing instruments and doodled for NF. Some of them you may know like Sugar Ray Leonard. (SEE DOODLE ABOVE LEFT)
Some are friends of my friend, Lou. A big thank you to Lou and all of you who played a big part in this effort to Knock Out NF Once and for all. Take time to see all the doodles on my photo page and go the National NF Doodle Day website!
All doodles will be posted shortly onto ebay where you will be able to bid on your favorite NF doodle!!!
Bid high, soon and often and do your part to help raise money for NF.
Doodlers include Sugar Ray Leonard; designer Andy Dearwater; artist/gallery owner Dan Allison, stamp art artist Kim White; printmaking professor Peter Massing, illustrator Matt Loftiss; America’s Greatest Artists, The Art Guys; writers Lou Congelio and Matt Walsh; Lou’s daughter, Elena Congelio; yours truly, Reggie Bibbs; STANANDLOU’s Kate Wiggins and Rhea Diaz; and my nephew, Jordan Walker.
Clay Walker at the Houston Livestock Show and Rodeo, 3/14/08
Wow! Tonight I was invited to the Rodeo once again. It was a more then Terrific night. The music was the best I’ve heard so far. Clay Walker sang all of my favorite songs and encouraged everyone to join in. Pretty cool. It was cool to see him ride a horse to the stage. A real Texan.
A big thank you to Laurie Selzer, from MNI (Media Networks Inc) for allowing me to join them in the Verizon West VIP suite. The food was terrific. I wish I knew everyones name I would love to say thank you for the wonderful treatment.
Here are a bunch of photos I took tonight. I hope to add everyone’s names to these when Lou gets them from Laurie!
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