neurofibromatosis cafe

A place to talk about NF, have fun and share.

Houston Roller Derby this Saturday!!!!

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April 16, 2009 Posted by | neurofibromatosis | , , , , | 6 Comments

My new Friend, Ed Port, needs your help.

11212008-wdl-port-dFrom: Ed Port <gbg@ameritech.net>
Date: December 27, 2008 2:56:15 AM CST
To: reggie@reggiebibbs.com
Subject: Hello Reggie from Ed Port
Reply-To: gbg@ameritech.net

Thank you for the e-mail MIke forward it to me. How did yo hear about my story?  I fist saw you on the O about a year ago when I was flipping thou the TV chs   Mike has been trying to help me get my story out.  I ws chatting with friend today on yahoo that lives in  Romania who said he would put my website on his blog to help to get the word out and to help rasie funds.

I would like your imput on anything that would help make the website better.  I wike your store very much it would great to speak to you

http://www.edneedsamiracle.com/

Ed Port

Youngstown Ohio Continue reading

December 27, 2008 Posted by | Awareness, Benefit, Friends, Medical Resources, neurofibromatosis, NF1 | , , , , , | 67 Comments

Cathy Clark, Brandon, the Astros, McKee St Bridge and the Porch Swing Pub!!!

2371941305_07b85111b7.jpgAnother amazing day out at Minute Maid Park! Lou and I went to the Astros game today. We had a great time. The game was great and the Astros won! It was really nice to see so many nice people. Like Brandon, who saw me on TV2371932691_f9d3cf8d99.jpg and came up to introduce himself. Thank you for doing that!

I saw Cathy Clark, who was my bus driver when I was in school. Lets just say it was over 25 years ago when I used to ride the bus to school.

Cathy remembered me by name. I was so happy when she told me she use to drive me to school. Cathy works at the concession stand in Section 409 of Minute Maid and, I got to tell you, I’ve never been treated with more love and respect than from that entire food area!

2372768826_593ba917eb.jpgI think Cathy is a supervisor or some other type of important person because she was definitely in charge! What a great representative for the Houston Astros staff. Cathy, you made me feel so special and it means the world to me! Hope both you and Brandon will be a regular on my blog. Thank you both for making my day!

After the game, Lou and I went to the fabulous McKee Street Bridge and took some photos. WOW!!! 2372801080_fa310a4cba.jpgWhat a beautiful bridge and park! Lou’s friend, Kirk Farris, had single-handedly transformed this bridge and bayou area into a place that is totally cool, beautiful and peaceful! It’s just a few blocks north of Minute Maid Park on McKee Street just south of I-10.

2372900182_24194a87771.jpgOf course, taking all those photos at Minute Maid and McKee Street made us pretty hungry and thirsty so we went to the new Porch Swing Pub at Washington and Waugh in The Heights for crawfish!!! Man, oh, man, were they good! Lou had beer. I had Coke.

It was a beautiful day!

March 29, 2008 Posted by | Awareness, Friends, Fun, houston astros, Just Ask!, McKee Street Bridge, Porch Swing Pub | , , , | 220 Comments

Clay Walker at the Houston Livestock Show and Rodeo, 3/14/08

2334667510_e3fa1648da_b.jpgWow! Tonight I was invited to the Rodeo once again. It was a more then Terrific night. The music was the best I’ve heard so far. Clay Walker sang all of my favorite songs and encouraged everyone to join in. Pretty cool. It was cool to see him ride a horse to the stage. A real Texan.2334669090_750680bb56_b.jpg

A big thank you to Laurie Selzer, from MNI (Media Networks Inc) for allowing me to join them in the Verizon West VIP suite. The food was terrific. I wish I knew everyones name I would love to say thank you for the wonderful treatment.

Here are a bunch of photos I took tonight. I hope to add everyone’s names to these when Lou gets them from Laurie!

March 15, 2008 Posted by | Friends, Friends of NF, Fun, houston livestock show and rodeo, Just Ask!, Laurie Selzer-MNI, neurofibromatosis, Photos, RODEO | , , , | 115 Comments

National Doodle Day Benefiting Neurofibromatosis

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I spoke with Mari Garcia administrator of Gillian Anderson’s Official Web Site, I was asked sometime ago to help out and to contribute a doodle for NF, Inc’s Second National Doodle Day Auction. I was happy to post a blog and do what I can to be of help. Please check out the links and see your favorite Actors and actress and others who have support the fight against NF.

The auction will start on May 8 on eBay. So far there are two pages and more doodles will be added as they come in. Be sure and blog your favorite doodle.

NF, Inc. is raising money for neurofibromatosis through their annual National Doodle Day! As part of NF Awareness month, celebrity doodles will be available for auction on eBay.

These doodles have a very important aim: the funds they raise will benefit NF, Inc., an organization dedicated to providing support to individuals and families affected by neurofibromatosis (NF).doodle.jpg

Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington’s Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.

To learn more about NF, please visit http://www.nfinc.org.
For more information about National Doodle Day, contact email doodleday@nfinc.org

View celebrity doodles

March 6, 2008 Posted by | Appearances, Awareness, Benefit, Celebrity, CTF.ORG, Facebook, Friends, Friends of NF, Houston Texans, national doodle day, NF1, NF2 | , , , | 62 Comments

HATS OFF TO THE COMCAST REPS IN HOUSTON / JERRY’S BACK FROM IRAQ!

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2264707003_77c16ccfde_m.jpgOn Valentine’s Day, I went to Comcast. I had a problem with my cable box and I took it back to Comcast. A customer service worker waited on me. Denise was very nice and helped me with my problem. It was then that she told me how happy she was to see me. And that she had seen me on TV. All of the customer service people were just as nice as Denise. I had to go back today so I asked if I could take their photo to put on the blog as a way to say thank you for being so nice. It’s nice to know that a company as big as Comcast can have employees as nice and personable as Denise and her friends. Please, if are in you the area, show some love to the great job the ladies are doing at the Bellaire location. Thank you Denise. And of course Phelisia, Patricia, and Jennifer. What a Sweet Heart of a Day for me!

477733757_4d51c49b23_o.jpgWELCOME BACK, JERRY TURNER!
Hey Reggie,
I made it!!!!For everyone who has never experienced a 17 hour non-stop flight……Don’t do it!!! I thought it would be worth it not to stop in Europe on my way back, but it’s not. At some point in there you need a break. With about 4 hours to go in the flight I was in absolute misery. I’ll give you a buzz tommorrow.
Jerry T

 

February 16, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Awareness, Benefit, Friends, Friends of NF, Just Ask!, neurofibromatosis, NF1, NF2, Texas NF Foundation | , , , , , , | 250 Comments