neurofibromatosis cafe

A place to talk about NF, have fun and share.

Charles and Aaron Neville are my new best friends!

Thanks to my friend, Matt, and the tour manager of the Neville Brothers, I received several autographed photos of myself with Charles Neville the other day. I received Aaron’s yesterday.

I had sent the four brothers autographed photos of me with each of them and had them framed. I also sent some extra for them to sign and send back.

Charles Neville signed two extra copies and took time to express mail them back. It means a lot to me that someone as famous as Charles would take the time to sign photos, write a thank you note and then send it to me from a UPS station in Massachusetts. In fact, he even called to make sure he had the right address! Now, how nice is that?!!

Charles, Aaron and the Neville Brothers are the kind of musicians and role models that I am proud to call my friends.

Thank you Charles and Aaron for being so kind and caring.

Long Live the Neville Brothers!!!

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May 30, 2008 Posted by | Celebrity, Music, neurofibromatosis | , , , , , , | 16 Comments

Reggie and the Neville Brothers

How can I begin to tell you how much fun I had yesterday at the International Festival. The day stated out very well with meeting people who have seen me before. There where happy to take photos with me. I was remembered from last year. The food was terrific music was great. All types of music. I enjoyed the country music of course.

The best part of the evening was music from the Neville Brothers. Arron Neville. I actually got to meet the Neville brothers. A very big thank you to the Neville brothers for taking time to meet and take photos with me. Also thanks to my friends who joined us, Matt Jones, “The Tall One” and William Hughes, “The Smart One.” I said man I would love to meet the Neville brothers. Matt said, “I bet I could make that happen.” Well, he did and you see the photos as proof. I have to tell all of you I had the best time ever.

SEE PHOTOS OF CONCERT AND BACKSTAGE

It would be a really good thing if we could get a group together and do what I have been doing for a year. I can promise you it will change how people feel about NF, and you will feel better that you did it. Whether you have nf1 or nf2, it is a great thing to let people get to know who we are. I would really like my friend, Brian, to go with me some time. I really think people are more understanding now. It seems to me that people expect me to be there. How cool is that?!! Next stop, the “Art Car Parade!”

April 27, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, NF1 | , , , , , , , , | 106 Comments