neurofibromatosis cafe

A place to talk about NF, have fun and share.

NF Wins Big at Houston ADDY Awards, 2/21/09

3113186027_14aa8999fd_oSaturday night was the 47th Annual Houston ADDY awards. It was the night of the stars. The American Advertising Federation honored Lou’s former boss, Don Brown, of Taylor Brown & Barnhill, while Only In Houston honored Steve Farrell, of Radio Music Theater, who is also one of the funniest guys I have ever seen. I met him after the ADDYs when Lou and I went to the theatre to present him with his award.  Steve is a great man and I was proud to meet him and his family.

But wait,  there were more winners Saturday night!3304599442_cee3e331b9_b

STANANDLOU and I won two gold ADDYs, one silver ADDY, and a Special Judges Award for Public Service Advertising for our new “Just Ask! ads! . That was a total surprise to me. I’m thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about nf as we keep pushing forward. Thank you all for supporting the site with your visits.

February 23, 2009 Posted by | ADDY Awards, neurofibromatosis | , , , , | 81 Comments

Last Night at PJ’s!

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My New Friends, Tony and Jenny!
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My friend Carmen Geddit of the Houston Roller Derby.

At left are new friends I met last night, Tony and Jenny.

The other couple I have known for years, Carmen and James.

My new friends just came over and sat next to Lou and me. Never bringing up the subject of what happened to me.  Lots of times it is no longer a subject.  Lou and I brought up the fact that I have Neurofibromatosis. They were so understanding and kind.

I feel great that I no longer stay home in fear of what someone will say to me.  It I felt that way,  I would have missed out on meeting the great people I have met last night and in the last few years.  My life has finally begun. I didn’t give people a chance before. This is why I started Just Ask, to encourage others that have NF to live life to the fullest. I’m doing it and I encourage them as well.  We can support one another in everything we do.

February 20, 2009 Posted by | neurofibromatosis, PJ's | , , , | 19 Comments

TRIP TO WASHINGTON DC FOR NF

3269667417_eb0347c6dc_oThe Texas Neurofibromatosis Foundation is sending a few of us to Washington DC, to speak to our Senators about Neurofibromatosis, in hopes of getting more support and funding for NF research. We leave Houston This Sunday, Feb 8th, return Wednesday, the 11th. When Susan Johnson, president of the Texas NF Foundation asked me to go with them, I was more then happy to be a part of this great opportunity to meet the Senators and show them how important it is that we have their support in the fight against this disorder. I know this trip will make a difference. Wish us luck!

SEE PHOTOS HERE!!!!

February 3, 2009 Posted by | neurofibromatosis | 82 Comments