neurofibromatosis cafe

A place to talk about NF, have fun and share.

Charles and Aaron Neville are my new best friends!

Thanks to my friend, Matt, and the tour manager of the Neville Brothers, I received several autographed photos of myself with Charles Neville the other day. I received Aaron’s yesterday.

I had sent the four brothers autographed photos of me with each of them and had them framed. I also sent some extra for them to sign and send back.

Charles Neville signed two extra copies and took time to express mail them back. It means a lot to me that someone as famous as Charles would take the time to sign photos, write a thank you note and then send it to me from a UPS station in Massachusetts. In fact, he even called to make sure he had the right address! Now, how nice is that?!!

Charles, Aaron and the Neville Brothers are the kind of musicians and role models that I am proud to call my friends.

Thank you Charles and Aaron for being so kind and caring.

Long Live the Neville Brothers!!!

May 30, 2008 Posted by | Celebrity, Music, neurofibromatosis | , , , , , , | 16 Comments

Reggie Wins Big at AMA Crystal Awards!!!

Reggie won the American Marketing Association’s highest award, the Crystal Award, for his blog dedicated to awareness of neurofibromatosis and support for those affected.

Reggie won the award in the Online Social Network or Blog

We met a great couple, Melissa and some guy whose name I can’t remember, sorry about that. They are from L to R: Melissa’s husband, Melissa, Reggie and Bill Courtney at the AMA Crystal Awards.

Thanks Melissa, the most beautiful woman at the AMA Awards tonight for taking your photo with us. And, ok, thank your husband too! : > ) Clink on this link to see all of the photos!

May 22, 2008 Posted by | neurofibromatosis | 64 Comments


I’m excited about the new changes coming to my website. There will be a new look and more features. Everything will be done within the site including the blog!!!. There will be a live video chat. I hope to have an area on the site for Interviews with our doctors from MD Anderson with your Questions. With the hope of posting them on my site. Also I will start what I call JUST ASK ambassadors. In your area, whereever you live you can do what I am doing. A “Just Ask!” ambassador will get Just Ask business card’s, a “just Ask!” t-shirt, and their very own blog. I will post your photos when you send them. This will be global and and anyone can be a part! More to come…SOON!!!!

May 20, 2008 Posted by | neurofibromatosis | 31 Comments

Steak Night at PJ’s, 5/15/08!

We had a blast last night at PJ’s!!!! Here’s what’s going on the rest of the week.

Karaoke Every other Friday 9:00PM Football Sundays Bring your favorite dish, line up a cab or designated driver, and join the fun Poker Every Tuesday 7:00PM to 10:00PM Thursday is Steak Night Good Food, Good Friends and Good Sports. 614 W Gray St. (2 blocks east of Montrose) 713. 520.1748

May 16, 2008 Posted by | neurofibromatosis | 106 Comments


Hi Reggie and Lou,

NF, Inc. has updated the front page of their website to promote the auction with the autographed photo of Dr. Riccardi wearing your Just Ask t-shirt! 🙂 They have also included a link to your website. By the way, the auction is proceeding VERY nicely. Thanks SOOO much again for ALL your fantastic help and support!


May 14, 2008 Posted by | neurofibromatosis | , , , , , | 76 Comments


What a great day for a parade!

My second year going to the Art Car Parade, and just like last year, I had a terrific time.

Nice cars and so many to choose from that might be the best one. One that sticks in my mind, well it’s really two. The Grapes are and the Red wagon.

I also met a lot of people that was me last year and and new people that saw me on the news last week.

All the photos are here for you to enjoy. Just go to my photo page to view. Please leave a comment!

May 11, 2008 Posted by | Awareness, Friends, Friends of NF, Fun, Houston Art Car Parade, neurofibromatosis | 82 Comments

Reggie on FOX News! Watch the video here!!!

Watch the interview that has all of Reggie’s blog talking as FOX News 26 interviews Reggie Bibbs. Damali Keith revisits Reggie to see how he has adjusted to life now that he has taken his disorder, neurofibromatosis, yo the public through his “Just Ask!” campaign.

There’s even an appearrance by Lou and some of his staff!


I hope this link works. if not, go to and search for Reggie Bibbs.

May 5, 2008 Posted by | Awareness, neurofibromatosis, News | , , , , | 286 Comments

Houston Astros and The ART GUYS!!! Great Weekend!!!neurofibromatosis

Yesterday was a terrific day! Starting with the Astros game. Meeting two of the players (Doug Brocail and Geoff Geary) and having my photo taken with them was great! Anyone can do it. And I think it’s a great way to show our support for all of our Houston teams. If they know how much we support them, I think we will have a successful season for all of our teams. I support you guys, in our winning games and games that don’t work out like we want.

Oh, and it is always good to see all of the nice employees at Minute Maid Park. Pretty soon I will have photos with everyone working for the park. They are always nice enough to take photos with me.

From there was a nice trip to a GREAT show with The Art Guys. My first show. Man the best way to explain their work is WOW! Boy, I haven’t laughed that like that in such a long time. I had a great time. Meeting some of the cast and the Art Guys in person was great. I talk to them on line quite often, and meeting them finally just top it off. If you haven’t seen any of the shows you should treat yourself and so see them. Check out this video, it’s hilarious!!!! It’s a homage to plywood. They also did a “Wrap Song” that was really, really, uh…interesting! Check it out here!

A special thank you to Ross Wells, of ZEN FILM, who I always get to talk to online and I have the pleasure of meeting him yesterday. Michael Galbreth and Jack Massing.

Thank you, guys for making yesterday so great. Also thank you for everything your helping me with my JUST ASK! Project! The Houston Astros and The Art Guys rule!

May 4, 2008 Posted by | neurofibromatosis | 33 Comments