neurofibromatosis cafe

A place to talk about NF, have fun and share.

Charles and Aaron Neville are my new best friends!

Thanks to my friend, Matt, and the tour manager of the Neville Brothers, I received several autographed photos of myself with Charles Neville the other day. I received Aaron’s yesterday.

I had sent the four brothers autographed photos of me with each of them and had them framed. I also sent some extra for them to sign and send back.

Charles Neville signed two extra copies and took time to express mail them back. It means a lot to me that someone as famous as Charles would take the time to sign photos, write a thank you note and then send it to me from a UPS station in Massachusetts. In fact, he even called to make sure he had the right address! Now, how nice is that?!!

Charles, Aaron and the Neville Brothers are the kind of musicians and role models that I am proud to call my friends.

Thank you Charles and Aaron for being so kind and caring.

Long Live the Neville Brothers!!!

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May 30, 2008 Posted by | Celebrity, Music, neurofibromatosis | , , , , , , | 16 Comments

Rodeo Night With Martina McBride

2319566597_7713960437_o.jpgTonight was another great night at the Houston Livestock Show and Rodeo!

I started out with the live stock show and all of the other fun things. Oh, my God! Did I enjoy the FOOD. Everything was to die for. Deep fried Oreos, steak burgers, foot-long sausage sandwiches, giant cinnamon rolls with lots of icing. But don’t take my word for it, check out the photos for yourself.

Click here to see photos from today!

I went to the Rodeo to see Martina McBride. She was great and the music was terrific! She really sang her heart out. She sang all of her best songs and the crowd loved it. Of course, so did I. Martina loves Houston and she looks forward to her show here every year.

I know why she loves Houston. I feel it every time I go out. So many 2319607191_9a1724b37f_o.jpgpeople here have been so kind to me. I’m thankful to be in a great city like Houston. It made me feel so good when people I never met came up to be today and spoke kind words to me. You will see them in my photos. People like that are heroes to me!

March 9, 2008 Posted by | Appearances, Astros Game, Awareness, Friends, houston livestock show and rodeo, Just Ask!, Martina McBride, Music, neurofibromatosis, nf, NF1, NF2, Photos | , , , , , , | 127 Comments

35th Annual 2008 World Championship Bar-B-Que Cookoff

wcbbqc_wide.jpgWell, tomorrow, Feb. 28, 2008, kicks off the 35th Annual Houston Livestock Show & Rodeo with the World’s Championship Bar-B-Que Contest and I’m going to be there enjoying my fair share!

Yes, I plan to be there eating all the que I can stand. I hope to get lots of photos to share on my blog and flickr page. It’s going to be a fun night.

Anyone else going to the cook off or Rodeo? Continue reading

February 27, 2008 Posted by | A MESSAGE FROM REGGIE, Awareness, Friends with NF, Just Ask!, Music, neurofibromatosis, nf, NF1, NF2, RODEO | , , , , , , | 117 Comments

2008 Houston Livestock Show and Rodeo

06_95_imgp1439.jpgHouston, It’s almost time to Rodeo!

Cowboy Up, America! When a cowboy’s in a pinch, he just tightens up the cinch, spurs his horse and rides right through it, cause that’s the way the Duke would do it. He’d Cowboy Up.

This year it’s going to be another terrific year for the Houston Livestock Show and Rodeo. Just as I did last year, I will be there enjoying all activities for the 2008 show.

This year I plan to see more of the livestock show then I did last year. As for music, there are several performers I want to see this year. There are two I have in mind now, that I want to see Rascal Flatts and Tim McGraw I will see more then one, I hope. All that to look forward too, and I haven’t even started on the great food.

How many of you are planning to go the the Rodeo, and who will you see? It would be a great idea if any of you go, to take pictures and send me a photo and I will make a section for our photos for this year on the blog and Flickr.

January 12, 2008 Posted by | Friends, Friends with NF, Fun, Music, neurofibromatosis, NF1, Photos, RODEO, Texas NF Foundation | , , , , , | 250 Comments

“Uncle John” Turner Dies

FOR IMMEDIATE RELEASE
Contact: Mark Murray
ph: (512) 587-6833
email: mmurray@kvue.com

“Uncle John” Turner
August 20, 1944 – July 26, 2007

Legendary Texas Blues Drummer Dies at 62

B.B King once exclaimed, “Man, I can set my watch to your time!”


Legendary Texas blues drummer “Uncle John” Turner died Thursday, July 26th, in Austin, Texas from complications related to hepatitis C. He was 62 years old.

Born in Port Arthur, Texas, Uncle John was a childhood friend and bandmate of legendary southeast Texas blues and rock guitarist, Johnny Winter. While playing drums with Winter in 1968, Turner convinced him to try a full-blown blues band format and sent for his friend Tommy Shannon to play bass. Success quickly followed, and the trio went on to record what many consider to be three of Johnny Winter’s finest albums: “The Progressive Blues Experiment,” “Johnny Winter,” and “Second Winter.” With fourth member Edgar Winter, they played Woodstock in 1969, as well as numerous other festivals and shows around the world. Continue reading

July 26, 2007 Posted by | Friend, Fundraising, Music, neurofibromatosis, News | 1 Comment

MEETING OTTMAR LIEBERT

ottmar.jpgOttmar Liebert is one of the best flamenco guitar performers around. A friend of mine, Greg Gorman, made it possible for me to be to at one of Ottmar’s performances at Rockerfeller’s in Houston. Mom and I had a terrific time. After the performance Ottmar was nice enough to take time to talk with me and take photos. He even signed one of his CD’s for me. If you like the flamenco guitar or New Age type music, you will enjoy Ottmar’s music. I have a link to his site as well as my friend Greg Gorman. I am happy to call both of them my friends.

May 30, 2007 Posted by | About Me, Appearances, Friend, Friends, Fun, Links, Music, neurofibromatosis, nf, NF1, Photos | , , , , , | Leave a comment

RODEO OPENING NIGHT FEATURING GEORGE STRAIT!!!

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For all of our fans of Rodeo Houston, are excited about opening night for the 75 year of The Houston Live Stock Show and Rodeo in Houston. Well for all of the fans of George Strait fans, I think we are out of luck. I hear tickets are sold out. But of course it would be, it’s George Strait.

All of the George Strait fans, say yee haw . Let us know how great the show turned out. Anyone who loves country music will enjoy the show with out a doubt.

Did I mention I was a George Strait fan?!! Let’s rodeo!!! Continue reading

February 27, 2007 Posted by | Music, RODEO | , , , , | 6 Comments

TIME TO RODEO

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Well, we are talking rodeo again. Kick off is today, I believe. I’m excited and expecting this will be a good year. I don’t know if I will be able to go, but who knows. The schedule has a great list of country entertainers and other great entertainers for all of you who are not country music fans. I would like to hear from all of the fans who plan to see someone from our home town–Clay Walker. And I know my good friend here would love to here about it. After all, he will get me a picture of ASLEEP AT THE WHEEL. He is such a cool guy. Right Lou?

February 21, 2007 Posted by | Music, T-shirt | , , , , | 8 Comments

MORE ON THE RODEO

After my first blog on country music a few days ago, I remembered my first Rodeo in Houston. I would like to know… Do you remember your first Rodeo? Write and tell me about the experience. Who did you see ? How many of you remember Casey and the Sunshine Band. That’s the group I saw. They had a popular single at that time. It was in the 70s. My Boogie Shoes. Yes that is right. My Boogie Shoes.

February 19, 2007 Posted by | Music | 6 Comments

Houston Livestock Show and Rodeo

A great time for me. That’s right. The Houston Livestock Show and Rodeo is celebrating its 75 year Anniversary. Alright Houston! The events starts February 27th. If you are going to see George Strait (to name just one of the good performers who will entertain us), start thinking about getting your tickets early. I hope to be one of the lucky souls that will attend. Any of the country performers will work for me. Who’s going to the Rodeo? Who will you see? I know there will be good stories to share.

February 16, 2007 Posted by | Music | , , , | 5 Comments

Country Music

I enjoy country music. As you may have seen from my Website, I have been lucky enough to meet one country music peformer, Kenny Rogers. I treasure the pictures that I have of Kenny Rogers, Gary Morris, and me.

Who would I like to meet? Well, to name a few: Dolly Parton, the Oak Ridge Boys, and Clay Walker.

Today, I would hope to hear from all of you. If you are a country music listener, share with me who you have met and what your experence was when you met him or her.

Make it a tremendous day.

Reggie

February 11, 2007 Posted by | Music | 14 Comments