neurofibromatosis cafe

A place to talk about NF, have fun and share.

Let’s Go To The Texas Renaissance Festival!!!

The Texas Renaissance Festival this weekend sounds like a terrific idea. I plan to be there Saturday to join in the fun. This will make my second year to attend.  Last year was a blast and I’m sure this weekend will be just as fun as last year. See the link for more on the Festival.  If you enjoy things like games food music then you will enjoy the Renaissance Festival.  I will be there hope to see you.   See the link for more information.

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October 30, 2008 Posted by | Friend, Friends, neurofibromatosis, NF1, TEXAS RENAISSANCE FESTIVAL | , | 13 Comments

Donate the easy way! Go to igive.com, connect to your favorite online sites, buy stuff and they’ll donate 2% to NF!

Dear Friends,

I have been  made aware recently of this great site that contributes money to your favorite cause every time you go their site to buy your favorite brands online. If you currently buy music on iTunes, books from Amazon, videos from Netflix, office supplies from Staples,or one of a million things,  you might want to look into this! It’s a great, easy way to raise money for neurofibromatosis research, and it doesn’t cost anyone a dime! Please take a look if you could.

Thanks, Reggie

More Supporters Mean More Donations for Neurofibromatosis .

Send an invitation and tell your friends about this free, easy way to support your cause! The $50,000 Surfathon Sweepstakes makes now an even better time for friends to join, since every visit to an iGive store means another chance for your cause to win a prize this month! (Click here for rules.)

We’ll also donate an extra $5 to your friend’s favorite charity when they make their first purchase within 45 days of joining. Send them your personalized referral link and Neurofibromatosis will be pre-selected to benefit! Those $5 donations can really add up – so start inviting!

Here’s your personalized iGive referral link. You can use this link in your e-mail signature line, on your Facebook or MySpace page, or on your personal website/blog to recruit new supporters. Be sure to copy/paste the entire link:

http://www.iGive.com/welcome/warmwelcome.cfm?c=46460&m=566419

October 19, 2008 Posted by | Fundraising, neurofibromatosis | , , | 23 Comments

NEW “Just Ask!” T-shirt Option

The votes are in! Our initial order of tshirts will be the small Just Ask! design on the front and Reggie’s face on the back with the url over his head. (SEE GREEN SHIRTS IN UPPER LEFT.) Our initial order will be pink/white and mustard yellow/blue. We will order in a variety of sizes. If we can order a lot of different colors we will although it might turn into a nightmare trying to keep everything in stock!

If you are interested in ordering a shirt or shirts, please let us know now if possible so we havce an idea of how many to order. I’ve already taken the liberty of putting Emily down for a dozen pink and a dozen yellow. In any event, if you could give us an idea of what or how many you’d like, that would be great! Just leave a comment below or email Reggie at reggie@reggiebibbs.com.

Thanks everyone! Oh, the shirts will be $15 and all cotton so they will breathe nicely!

October 10, 2008 Posted by | Fun, neurofibromatosis, T-shirts | , , | 34 Comments

ABC News Links to Reggie’s Site!

http://blogs.abcnews.com/politicalpunch/2008/10/doodles-of-drea.html

Jake Tapper is ABC News’ Senior National Correspondent based in the network’s Washington bureau. He writes about politics and popular culture and covers a range of national stories.

Doodles of Dreams

October 07, 2008 12:33 PM

Do you remember last year when Sen. Barack Obama, D-Ill., donated a doodle for an auction to benefit Neurofibromatosis, Inc. and epilepsy research? The doodle, of some of his Senate colleagues, sold for more than $2,000 on eBay.

Now we have a doodle from another campaign 2008 rock star, Alaska Gov. Sarah Palin.

New Republic senior editor Noam Scheiber went up to Alaska to profile the governor and during a visit with Palin’s former colleague on the city council, Laura Chase, found this document — the  back of a Wasilla city budget which Palin doodled on in 1996 as she plotted her mayoral campaign.

She makes notes on slogans: “You would be my boss! No tax increase! … Wasilla needs a conservative choice in leadership.”

She makes notes on her resume: “Life Long Alaskan; Graduate: Wasilla High School, Univ. of Idaho (Bach. In Journalism, minor Politics); Wife, mother of three, Homeowners, Businesswoman, TAXPAYER!;…NRA supporter,” “taxpayer!”

There’s a close-up scan of the document HERE.

** Continue reading

October 7, 2008 Posted by | abc news, neurofibromatosis, nf inc | , , , , , | 4 Comments

New “Just Ask!” T-shirt Design

We are thinking of redesigning the shirts so they are simpler, more fun, and are equally appealing to men and women.

We have two styles we’re looking at – distressed and/or solid colors. We’re also investigating different colors for the shirts.

Which design do you like? What colors would you prefer?

Let us know below and who knows, you just might see the shirt of your dreams up here in a few days!

October 7, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, T-shirts | , , | 20 Comments

Shiner – “Sit” Video

Reggie and his trusty sidekick, Shiner!

Vodpod videos no longer available.

more about “Shiner – “Sit”“, posted with vodpod

October 6, 2008 Posted by | neurofibromatosis | , , , | 8 Comments

Shiner – “Fetch” Video

Reggie and his trusty sidekick, Shiner!

Vodpod videos no longer available.

more about "Shiner – "Fetch" Video", posted with vodpod

October 6, 2008 Posted by | neurofibromatosis | 3 Comments

Mr. DeMille, I’m ready for my close-up!

October 4, 2008 Posted by | Friends, Fun, neurofibromatosis, shiner | , , , | 4 Comments