neurofibromatosis cafe

A place to talk about NF, have fun and share.

A NOTE FROM KEVIN NEALON.

3090342427_26cb9dd5b3_b3090342561_eb020396fa_bThis weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now. 🙂

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

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December 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Appearances, Awareness, Benefit, Celebrity, Favorite Places, Friend, Friends, Friends of NF, Fun, Fundraising, Help, Just Ask!, News, nf, NF1, Photos, T-shirt, Texas NF Foundation | 33 Comments

My friend Francis Boyermadrieres from France

3010703046_f1e2ee6e51_b3010702912_474b0f041b_bDear Reggie
I received to day your tee shirt. I’m very very prud to wear it! I only do it for great events for neurofibromatosis! As you can see It fit me very well. Very sooner I’ll publish in my blog a text about my purchasse. Dis you see my slide shot about the naughty little toad? In this clip I wear a French neurofibromatose tee shirt size M because  the French association own  S tee shirt no more. I hope the sending was not too expensive for you. Kind regards my friend
– Francis

If you would like to email Francis, his address is f.boyermadrieres@laposte.net

November 7, 2008 Posted by | Friends, neurofibromatosis, T-shirt | , , , | 6 Comments

Emily’s Name-My-Baby Contest!

y1p3lb28exaadeupbygs6ljvchkt687fu08plfbpuxe1g9ggcoz98ivujlltbg8-w38nmhdxtpmsto.jpegI have a baby due in March. This is a contest to help my husband and I select a name, and also to have some fun. We don’t guarantee we will use a winning name selected for the contest, but it’s a real possibility. Submit your entry via this blog per the instructions below. Enter as often as you like, as many complete submissions per blog entry as you wish.
– Emily
Continue reading

January 29, 2008 Posted by | Awareness, Emily's Name-My-Baby Contest!, Friend, Friends with NF, neurofibromatosis, T-shirt | 155 Comments

Reggie Bibbs JUST ASK! ONLINE STORE NOW OPEN

cup8x10.jpgI’m proud to present to you the Reggie Bibbs online Just Ask! Store. We are now open. There are a wide range of new products available.

jitcrunch.jpeg

We can increase awareness of Neurofibromatosis on a wider range, at the same time raise money for neurofibromatosis.

All proceeds will go toward research and awareness. I know you will find a product that will meet your fashion needs. My original shirts can be ordered from my site. The new link will take you to the store.

Happy Holidays and Happy Shopping!

December 22, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Appearances, Awareness, Friend, Friends of NF, Fun, Fundraising, Just Ask!, neurofibromatosis, News, NF1, NF2, Reggie's Search Machine, T-shirt, Texas NF Foundation | , , , , | 141 Comments

JUST ASK T-SHIRTS…JUST IN TIME FOR THE HOLIDAYS!!!

2069138483_2b7247dfc8.jpgJust a reminder to you all that are supporting the blog. Don’t forget to do your Christmas Shopping or any other holiday shopping here on my site. I have a new shipment of Just Ask t-shirts that you can order for friends and family.

Imagine how cool you and your entire family would look sitting in front of a blazing fireplace, drinking a hot, steaming cup of Starbucks coffee or Hot Chocolate, wearing a comfy, cozy Just Ask! T-Shirt

Heck, you’d look just like Sugar Ray Leonard, Greg Gorman, and Arthur Meyerson and other really cool people!!!. Oh, and of course, ME ME ME! Order your holiday Just Ask! T-shirts today and I guarantee delivery before Christmas!!! I’ll make Lou deliver them! : > )

CLICK HERE AND THEN CLICK ON STORE!!! IT’S EASY, EVEN LOU CAN DO IT!!!

November 26, 2007 Posted by | About Me, Appearances, Awareness, Just Ask!, neurofibromatosis, T-shirt | , , , | 94 Comments

Psych Ward Sirens Win Houston Roller Derby Championship!!!

The Sirens win it!!!1683567053_78dcbcc470.jpg1684543340_44a5d5a60c.jpgLast night, Lou and I went to the Verizon Theater to watch our favorite sport, Houston Roller Derby, and I gotta tell you, it was incredible!!! We saw some of the most intense skating we have ever seen. All the skaters were pumped up and ready to leave it all out on the track.

1684560272_dd416127142.jpg1684355870_c56a01edb2.jpg1683506533_065b07468d.jpgMistilla the Killa was a woman possessed!!! In the second half near the end when the score was almost tied, she broke the game wide open with an incredible jam that put the Bosses away for good. Dementia was the last jammer of the evening and sewed up the win for the Sirens with a perfect jam!!!
If you haven’t experienced Houston Roller Derby yet, you don’t know what you’re missing. Last night was the last match for this season so you’ll probably need to wait till next year when the league starts again. I know I can’t wait!!!

HOUSTON ROLLER DERBY RULES!!!! PHOTOS

October 22, 2007 Posted by | Awareness, Friends, Fun, Houston Roller Derby, Just Ask!, neurofibromatosis, Photos, T-shirt | , , , , , | 7 Comments

SUGAR RAY LEONARD

rayleonard4.jpgrayleonard2.jpgGuess who is wearing one of my JUST ASK! t-shirts?

You probably already know from the photo you see here. Yes my friend Sugar Ray Leonard. I was so happy when Ray ordered one of my t-shirts. He told me he would be proud to send me a picture of himself wearing my shirt. He kept his word and I have the pictures to prove it. I have known Ray for a long time and he is always supporting my in everything I have done. Imagine someone as famous as him supporting my efforts in NF awareness. He’ll always be the “Champ” in my eyes!

October 19, 2007 Posted by | A MESSAGE FROM REGGIE, Awareness, Celebrity, Friend, neurofibromatosis, Reggie's Search Machine, T-shirt | , , , , , , , | 31 Comments

THE T-SHIRTS ARE HERE!!! THE T-SHIRTS ARE HERE!!!

shirtsale1.jpgHere are two of my nieces, who you have seen before. They are helping me get the word out that our new shipment of JUST ASK t-shirts just arrived! FINALLY!!! I know many of you have been waiting patiently since we ran out last month and I really, really appreciate it.

To order, click here!

ALL sizes are now available to anyone that would like to order. S, M, L, XL, 2XL AND 3XL!!! They make terrific birthday, Christmas and wedding presents! And nothing says “I Love You!” more than a “Just Ask!” t-shirt on Valentine’s Day!!! Continue reading

July 12, 2007 Posted by | A MESSAGE FROM REGGIE, Awareness, Friends, Fun, Just Ask!, neurofibromatosis, T-shirt, Texas NF Foundation | 4 Comments

FORTH WORTH MAYOR MIKE MONCRIEF

376702630_0e7ac2eb0e_o.jpgI received a wonderful letter from my friend from years back. At the time I met Mike Moncrief, he was Senator Mike Moncrief for the State of Texas. And now he is Mayor Mike Moncrief of Fort Worth. He and his wife Rosie have been very supportive in everything I have been involved in. You will see that in the photos in my picture section on Flickr. Mike and Rosie also wear one of my JUST ASK t-shirts. I’m honored to call them my friends!

Here is the email that he sent me today:

Mike & Rosie Moncrief, Mayor and Mrs. Mayor of Fort Worth

“Hey Reggie, I just visited your website and i was most impressed. The ongoing
challenge of raising awareness of NF and search for a cure is made easier by your efforts. By the way, I wear my Tshirt every chance I get and have had numerous folk come up to me and ask about it. Keep up the great work and you are more than welcome to post this email on your blog.

Your Bud,
Mayor Mike

July 1, 2007 Posted by | Appearances, Awareness, Friend, Friends, Fun, Fundraising, Help, Just Ask!, neurofibromatosis, News, nf, NF1, Photos, T-shirt | 4 Comments

4TH OF JULY CELEBRATION

neurofibromatosisHello Friends We are coming up to another day of celebration. Wednesday July 4th Houston is having a day of fun, music and a large display of fireworks. Come join the fun! I plan to be there wearing my JUST ASK t-shirt and would be happy to meet new friends. I always get a little nervous at these large events, but I’m sure with the great people we have in our great city, I will have a TREMENDOUS time. I hope to get some pictures meeting more friends. See you there.

June 30, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, Appearances, Awareness, Friend, Friends, Fun, Just Ask!, neurofibromatosis, nf, NF1, Photos, Some People, T-shirt | 8 Comments

TASTE OF TEXAS FUN

p1010076.jpgPeople are beginning to JUST ASK! This is GREAT! Friday night my family and I went to one of our favorite restaurants. Taste Of Texas.

We had the best time I can remember. It was 15 of us. Sisters, nieces, nephews, brother sister in-law,and Mom. Of course ME ME ME! We all sported out JUST ASK t-shirts. We felt like stars. We got a lot of smiles and people commenting on our t-shirts. Lots of you ASKED. I thank all of you that wanted to know. It was a wonderful family night for us. Thanks to the Staff of The Taste Of Texas. You did a TREMENDOUS job as always!

June 16, 2007 Posted by | About Me, Appearances, Awareness, DESSERTS, Favorite Places, Friend, Friends, Fun, neurofibromatosis, nf, NF1, Photos, Restaurant, T-shirt | 8 Comments

MORE ON THE NF SYMPOSIUM

Elizabeth Bertrand during Dr. Slopis Q&AThe NF Symposium was terrific! I want to talk about how I felt meeting so many new people I can now call my friends. At the symposium, one of my new friends purchased five of my shirts in support of my JUST ASK campaign. I received tons of wonderful messages on the Children’s Tumor Foundation bulletin board. I’m happy to be a part of the board and meeting new friends. You can see from the photo the three of us are happy campers.

May 9, 2007 Posted by | A MESSAGE FROM REGGIE, CTF.ORG, Friends, http://www.ctf.org, neurofibromatosis, News, NF1, T-shirt | 1 Comment

MY FRIENDS WITH “JUST ASK!” TSHIRTS HAVING FUN


I want to share the fun I had today with friends at STANANDLOU Advertising.

Today was picture day!

Reggie Bibbs at STANANDLOUReggie Bibbs at STANANDLOU #2We are showing how much fun you can have with the right people and the right clothing!!! Yeah, the shirt had a lot to do with it.

Maybe if we get a lot of bloggers and you demand that everyone at the office must wear the JUST ASK shirt as a policy we can promote more fun in the office while raising awareness for NF. Lets start blogging. Say, “Hey Lou, Reggie is right. I like the idea!”

Lou, by the way, nice hat!

May 2, 2007 Posted by | About Me, Friends, Fun, neurofibromatosis, T-shirt | 21 Comments

FRIENDS AND DOCTORS WITH MY T-SHIRT

p1010002.jpgp1010001.jpgI had a TERRIFIC! day. I went to where my brother Byron is employed, Macks Transmission. I had a chance to talk to Byron for a short time. My visit was with my friend Jerry T, who works in one of the offices. Cool guy. Here I’m posting the photos of my friends that bought shirts today. But that’s not all. I also saw my doctor at MD Anderson.

Dr. Diwakar Balachandran has been very supportive of my work with nf awareness. Thank you Dr. Balachandran and Jerry!!!

April 24, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, Friends, neurofibromatosis, T-shirt | , , , , , | 16 Comments

BREAKING NEWS – ONLINE STORE NOW OPEN!!!

reggieweb.jpgThis just in, I’m happy to say the Reggie Bibbs JUST ASK t-shirts are ready for on-line purchase. Help us raise awareness of neurofibromatosis by buying your very own “Just Ask!” t-shirt and wearing it proudly!!!

The store is now ready to fill your order. I will personally fill all orders so order soon and often!!! Order as many as you like. They make wonderful stocking stuffers, birthday presents, bar mitzvah gifts, you name it!!!

And, as always, thank you for your support!

To order, go to www.reggiebibbs.com and click on STORE!

April 23, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, neurofibromatosis, News, T-shirt | , , | 10 Comments

JUST ASK! T-SHIRTS

Reggie and Arthur I wanted to thank all of you who are wearing my JUST ASK! t-shirt. A lot of my friends have ordered my shirts to support me in NF awareness. Dr. Vincent Riccardi, Caren and Larry Kender, Greg Gorman, Sugar Ray Leonard, Mike and Rosie Moncrief, Dr. Bartlett Moore, Dr. John Slopis , Arthur Meyerson, Meko White , Elene White, Lou Congelio ,Elena Congelio, Peggy and George Newton, and Carmen Thomas. To name a few. It’s important to me to make sure everyone know the shirts can be ordered from my website. Thank you for your support

To those of you wearing the t-shirts, are you getting any questions or comments from people about the shirt? If so what are they saying?”

April 11, 2007 Posted by | neurofibromatosis, T-shirt | 10 Comments

TIME TO RODEO

376704163_d6695e86a7_s.jpg376702496_f3db7a9def_s.jpg376702462_884115d624_s.jpg376701803_3142b86ab3_s1.jpg

Well, we are talking rodeo again. Kick off is today, I believe. I’m excited and expecting this will be a good year. I don’t know if I will be able to go, but who knows. The schedule has a great list of country entertainers and other great entertainers for all of you who are not country music fans. I would like to hear from all of the fans who plan to see someone from our home town–Clay Walker. And I know my good friend here would love to here about it. After all, he will get me a picture of ASLEEP AT THE WHEEL. He is such a cool guy. Right Lou?

February 21, 2007 Posted by | Music, T-shirt | , , , , | 8 Comments

Just Ask!

Wherever I go, I wear a shirt that says, “Just Ask.” Even though I am wearing the shirt, people still hesitate to talk to me—they do not want to be insensitive.

From the time we are kids, we are told not to ask questions. Children stare at me and say “What happened?” and their mothers hush them. They will grow into adults like many I know who are afraid to talk about my condition—afraid they might hurt my feelings. I don’t mind questions. I am an outgoing guy and I really want you to know about me.

Do you want me to know about you? Write to me. I’d love to hear from you.

February 7, 2007 Posted by | neurofibromatosis, T-shirt | 5 Comments