neurofibromatosis cafe

A place to talk about NF, have fun and share.

CHRISTMAS AT JUST ASK!

3129024156_2166a4d216_bMy favorite time of the year is Christmas. Here are some fun photos taken around the office I wanted to post.

I want to wish my friends and fellow bloggers a Merry Christmas and a Joyful 3129321805_eba20415ec_bNew Year.

I will be here on the blog all week ready to blog with anyone who posts. Lets talk about what you have planned with family or friends.

Look forward to seeing you here.

Advertisements

December 23, 2008 Posted by | Celebrity, Friends of NF, neurofibromatosis, T-shirts | 33 Comments

A NOTE FROM KEVIN NEALON.

3090342427_26cb9dd5b3_b3090342561_eb020396fa_bThis weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now. 🙂

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

December 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Appearances, Awareness, Benefit, Celebrity, Favorite Places, Friend, Friends, Friends of NF, Fun, Fundraising, Help, Just Ask!, News, nf, NF1, Photos, T-shirt, Texas NF Foundation | 33 Comments

Bayou City Bosses Fundraiser at Buffalo Fred’s Icehouse

Lou and I had an incredible time at the Bayou City Bosses Fundraiser last Saturday!

Everyone came up to us and said hi and posed for photos. I think Lou has a thing for Audiomind because he sure took enough photos of her!!! : >

Enjoyed talking with some of my favorite skaters including Carmen Geddit, Death by Chocolate, Sinista Sista, Mistilla the Killa, Audiomind and all the rest too numerrous to mention.

The next match is June 8th and Lou and I already have our tickets!!! If you’re interested in going, get your tickets today as they’re only going to sell 300 of them!

June 2, 2008 Posted by | Friends, Friends of NF, Houston Roller Derby, neurofibromatosis | , , , , , | 33 Comments

HOUSTON ART CAR PARADE, 5/10/2008!!!

What a great day for a parade!

My second year going to the Art Car Parade, and just like last year, I had a terrific time.

Nice cars and so many to choose from that might be the best one. One that sticks in my mind, well it’s really two. The Grapes are and the Red wagon.

I also met a lot of people that was me last year and and new people that saw me on the news last week.

All the photos are here for you to enjoy. Just go to my photo page to view. Please leave a comment!

May 11, 2008 Posted by | Awareness, Friends, Friends of NF, Fun, Houston Art Car Parade, neurofibromatosis | 82 Comments

Clay Walker at the Houston Livestock Show and Rodeo, 3/14/08

2334667510_e3fa1648da_b.jpgWow! Tonight I was invited to the Rodeo once again. It was a more then Terrific night. The music was the best I’ve heard so far. Clay Walker sang all of my favorite songs and encouraged everyone to join in. Pretty cool. It was cool to see him ride a horse to the stage. A real Texan.2334669090_750680bb56_b.jpg

A big thank you to Laurie Selzer, from MNI (Media Networks Inc) for allowing me to join them in the Verizon West VIP suite. The food was terrific. I wish I knew everyones name I would love to say thank you for the wonderful treatment.

Here are a bunch of photos I took tonight. I hope to add everyone’s names to these when Lou gets them from Laurie!

March 15, 2008 Posted by | Friends, Friends of NF, Fun, houston livestock show and rodeo, Just Ask!, Laurie Selzer-MNI, neurofibromatosis, Photos, RODEO | , , , | 115 Comments

National Doodle Day Benefiting Neurofibromatosis

main-2.jpgmain.jpg

I spoke with Mari Garcia administrator of Gillian Anderson’s Official Web Site, I was asked sometime ago to help out and to contribute a doodle for NF, Inc’s Second National Doodle Day Auction. I was happy to post a blog and do what I can to be of help. Please check out the links and see your favorite Actors and actress and others who have support the fight against NF.

The auction will start on May 8 on eBay. So far there are two pages and more doodles will be added as they come in. Be sure and blog your favorite doodle.

NF, Inc. is raising money for neurofibromatosis through their annual National Doodle Day! As part of NF Awareness month, celebrity doodles will be available for auction on eBay.

These doodles have a very important aim: the funds they raise will benefit NF, Inc., an organization dedicated to providing support to individuals and families affected by neurofibromatosis (NF).doodle.jpg

Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington’s Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.

To learn more about NF, please visit http://www.nfinc.org.
For more information about National Doodle Day, contact email doodleday@nfinc.org

View celebrity doodles

March 6, 2008 Posted by | Appearances, Awareness, Benefit, Celebrity, CTF.ORG, Facebook, Friends, Friends of NF, Houston Texans, national doodle day, NF1, NF2 | , , , | 62 Comments

Friends of Neurofibromatosis Group on Facebook

Dr. RiccardiTo all my friends who are reading this blog, I’d like to introduce you to my “Friends of Neurofibromatosis” group on Face Book. We have quite a few members now, over 70. I am now in contact with a few good friends that I had lost contact with from the 1980s. My friend Dr. Vincent “Vic” Riccardi is now part of our “Friends of Neurofibromatosis” group. I’m sure anyone who has NF may know him or have heard of him. Dr. Riccardi is a legend when it comes to neurofibromatosis research and treatment. He has not only been a good doctor, but a good friend. He has done a lot for NF. At one time he was on the Board of the Texas Neurofibromatosis Foundation. He was its Medical Director for many years helping decide where to give the money we raised for research. Hopefully, maybe we could get him to come to the blog from time to time.

n71001931_31763618_8129.jpgTwo other friends have showed up too! Megan Phillips and Andy Ganster are now online with us. Megan, Andy and I shot some TV commercials with Lou back in 1989. That’s when we first met Lou through Bob Hopkins, then the TNF Executive Director. Those were some pretty serious commercials but they helped neurofibromatosis get some much needed awareness.Andy Ganster

I hope anyone visiting this blog will also join us on Facebook as well. We will all learn as we go alone on Facebook. The games and quizzes are fun and challenge. It a good way to find friend you may have lost contact with. Believe me, I know!

Here is the link!

February 20, 2008 Posted by | Awareness, Facebook, Friends of NF, Friends with NF, Fun, neurofibromatosis | , , , , , , | 315 Comments

HATS OFF TO THE COMCAST REPS IN HOUSTON / JERRY’S BACK FROM IRAQ!

2265497800_bfa338132a_m.jpg

 

2264707003_77c16ccfde_m.jpgOn Valentine’s Day, I went to Comcast. I had a problem with my cable box and I took it back to Comcast. A customer service worker waited on me. Denise was very nice and helped me with my problem. It was then that she told me how happy she was to see me. And that she had seen me on TV. All of the customer service people were just as nice as Denise. I had to go back today so I asked if I could take their photo to put on the blog as a way to say thank you for being so nice. It’s nice to know that a company as big as Comcast can have employees as nice and personable as Denise and her friends. Please, if are in you the area, show some love to the great job the ladies are doing at the Bellaire location. Thank you Denise. And of course Phelisia, Patricia, and Jennifer. What a Sweet Heart of a Day for me!

477733757_4d51c49b23_o.jpgWELCOME BACK, JERRY TURNER!
Hey Reggie,
I made it!!!!For everyone who has never experienced a 17 hour non-stop flight……Don’t do it!!! I thought it would be worth it not to stop in Europe on my way back, but it’s not. At some point in there you need a break. With about 4 hours to go in the flight I was in absolute misery. I’ll give you a buzz tommorrow.
Jerry T

 

February 16, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Awareness, Benefit, Friends, Friends of NF, Just Ask!, neurofibromatosis, NF1, NF2, Texas NF Foundation | , , , , , , | 250 Comments

New Facebook Group – “Friends of Neurofibromatosis”

picture-1.pngTo All:

I have created a group on Facebook called “Friends of Neurofibromatosis.”

To those of you unfamiliar with Facebook, it is a FREE website that allows you to do a lot of things like post photos, videos, and friend links, much like MySpace, but with one very important difference. It allows members to form groups of like-minded people who share special interests and allow them to easily interact with each other.

I can’t think of a more perfect tool to use in building a community of people who are challenged by neurofibromatosis in one way or another than this. Whether you have NF, have a friend or family member with NF, or are just interested in helping people with NF, this is the website for you.

By becoming a member of this group, you will be able to connect with other people who share the same frustrations, burdens and pain of NF. You can pass along information that you think might be helpful to others. We can send time-sensitive newsletters to ALL group members with a click of a button when an important event or news item occurs.

Facebook will never replace this blog but it will provide us the means to meet new people, build awareness, share information, and, most importantly, help us build a community that helps provide comfort, education, distractions and support to all affected by NF.

Please check out the group at this link and if you can see the endless possibilities that this site provides, please join!

I thank you! —Lou http://www.facebook.com/group.php?gid=21960217912

February 7, 2008 Posted by | A MESSAGE FROM REGGIE, Awareness, Community, Facebook, Friends of NF, Help, neurofibromatosis, nf, Texas NF Foundation | , , , , , | 153 Comments

Texas NF Foundation to stage city-wide fundraiser at Houston’s finest restaurants

Texas NF Foundation to stage city-wide fundraiser at Houston’s best restaurants2008 Houston HighlightsLast night, Lou and I attended a special committee meeting to help plan and execute a fund-raiser to help those with NF in the Houston area. The fund-raiser will be held on Tuesday, April 22, 2008, at the Hotel Derek, in the Galleria area of Houston.

I am proud to be Honorary Chairman of this important event and I hope all of my friends can join me in this very worthy cause! Below is a letter from our Houston Highlights Chairman, Ishma Blackwell, detailing the event. It’s going to be a lot of fun!

DOWNLOAD INVITE  2438_001.pdf

Continue reading

February 2, 2008 Posted by | 2008 Houston Highlights, Awareness, Benefit, Friends of NF, M.D. Anderson, neurofibromatosis, News, nf, Organizations, Restaurant, Texas NF Foundation | , , , , , , , , | 154 Comments

Dr. Bart Moore say’s “JUST ASK!” with his new mug and state-of-the-art, homeopathic “JUST ASK!” forehead patch

bartaski.jpgGuess who visited my on line store recently?

Yep, my good friend and also doctor, Dr. Bart Moore of MD ANDERSON CANCER CENTER. He is proudly displaying the items that he purchased at the “Just Ask!” online store a short time ago. Not only is he a supporter of NF and “Race Across America for NF”, he’s also a very cool guy to have on your side.

Could you get your doctor to take a photo like this? I don’t think so! What a great sense of humor. Thanks for sharing your photo Dr. Moore! You’re the best!!!

Check out what people had to say about Bart at my Flickr account.

January 22, 2008 Posted by | Awareness, CTF.ORG, Friend, Friends of NF, Fundraising, Just Ask!, M.D. Anderson, Medical Resources, neurofibromatosis, Texas NF Foundation | , , , , , | 281 Comments

Reggie’s Meeting at Lou’s Office

reglousmall.jpgToday, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

January 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Awareness, Benefit, Blogs, Friends, Friends of NF, neurofibromatosis | , , , , , , , | 210 Comments

HAPPY NEW YEAR 2008

01a-wrap-cover_splash.jpgHappy New Year 2008!!!

Well, a year has passed and we are at a new beginning. I look forward to great things this year. Maybe something new for NF research. Let’s keep hope alive. Now lets talk resolutions. Or promises, or whatever you want to call it. Something I want to do this year is build up my friends list to at least 200 or 300 friends with NF on myspace.com dailystrength.com or youtube.com Any one of the three. Oh yea, one more thing. drink more Starbucks and hopefully meet with some of my friends that I talk with everyday about coffee.

On a serous note. Please remember our real HEROS in 2008 in the U.S. ARMY, and military service members. When you see someone in uniform say thank you.

January 2, 2008 Posted by | About Me, Awareness, Friends, Friends of NF, Fun, Fundraising, Just Ask!, neurofibromatosis, Research | , , , , , , , | 150 Comments

Reggie Bibbs JUST ASK! ONLINE STORE NOW OPEN

cup8x10.jpgI’m proud to present to you the Reggie Bibbs online Just Ask! Store. We are now open. There are a wide range of new products available.

jitcrunch.jpeg

We can increase awareness of Neurofibromatosis on a wider range, at the same time raise money for neurofibromatosis.

All proceeds will go toward research and awareness. I know you will find a product that will meet your fashion needs. My original shirts can be ordered from my site. The new link will take you to the store.

Happy Holidays and Happy Shopping!

December 22, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Appearances, Awareness, Friend, Friends of NF, Fun, Fundraising, Just Ask!, neurofibromatosis, News, NF1, NF2, Reggie's Search Machine, T-shirt, Texas NF Foundation | , , , , | 141 Comments

NF CAFE

coffee.jpgI don’t know if anyone noticed the new name of the blog but I changed it from “JUST ASK!” to “NF CAFE”. I just thought that NF Cafe felt like a more friendly kind of place to relax, hang-out and talk with friends and have a good time.

I wanted to throw this name out there to see what you thought. I like the name because it has a lot of different meanings to a lot of different people.

Most of us here enjoy our coffee. Shelley and Brian to extreme levels!!! : > ) When I think of coffee, I think of relaxing and good thoughts and good times.

When I think of cafe, I think about relaxing with a nice cup of coffee or going to a nice place for coffee and just enjoying nice conversation with a friend. Like we do here.

It’s an easy name to remember, kind of rolls off the tongue. Also, Cafe and CAFE AU LAIT have a bit of a double meaning to NF people.

So tell me what do you think? Do we keep it as the name of our blog or do we go back to “Just Ask!”? Now let me say that “JUST ASK!” is still the name of my website and will always be. NF CAFE is just a catchy name that we can enjoy and have fun with it.

What say you? Continue reading

December 15, 2007 Posted by | Awareness, Blogs, Friends, Friends of NF, Just Ask!, neurofibromatosis | , , , | 133 Comments

“Just Ask!” t-shirts at Harold’s in the Heights!

harolds.jpg My friends, Michael & Harold Wiesenthal, of Harold’s men’s store in the Heights, are helping me spread awareness of neurofibromatosis and my website by giving a free “Just Ask!” t-shirt to their customers.

Hopefully, people who receive my shirt will go to my website, www.reggiebibbs.com, to find out more about neurofibromatosis and what they can do to help.

family02.jpg

I’ve known Harold and Michael for many years now and I can’t think of two nicer people in the world! They help me by altering my pants for free so that I can fit my leg through the opening. One year, they even staged a fashion show with Carolyn Farb in their store with proceeds benefiting research to help find the cure for NF.

Thank you, Harold and Michael, for helping me get the word out about neurofibromatosis. You both are very, very good friends!

December 10, 2007 Posted by | Awareness, Friend, Friends of NF, neurofibromatosis | , , , , , , | 135 Comments

WHAT IS YOUR FAVORITE MOVIE

the-movies360-crop.jpgI have a question and I’m adding to my new blog. Lets talk movies. What was your favorite movie of all time? And if you where going to the movie this weekend what movie would you pay to see?

Remember let’s keep this blog on movies. Maybe we can get some ideas of the best movies in our own option. a friend of mine told me I should see the movie 300. I’m not sure if this is a new movie. Have any of you seen the movie. I enjoy going to the movies. Just want to know what are the best ones to see. One of the radio stations ask that question and I think its a good one.

The movie you watched when you were younger, would you say you still like it as much?

December 6, 2007 Posted by | Friends, Friends of NF, Fun, Just Ask!, NF1 | , , | 85 Comments

PLEASE HELP ME & THE TEXAS NF FOUNDATION SET-UP HOUSTON NF SUPPORT GROUPS AND EVENTS

logo.jpgDear friends, while I was up in Dallas last week helping with the Denise Terrill Golf Classic benefitting NF, I got to talking with a few members of the Texas NF Foundation and we think it’s time that Houston had their own NF support group again.

Back in the 90’s, the Texas NF Foundation actually had an office here in Houston to help those in the area afficted by NF to get the medical help they needed. And just as important. support in their daily lives. Continue reading

October 28, 2007 Posted by | Benefit, Favorite Places, Friend, Friends, Friends of NF | , , , , | 58 Comments

A MESSAGE FROM A FRIEND WHO IS NOW IN IRAQ

477733757_e92802af071.jpgHey Reggie,You most definitely can share this with Lou. If you put it up as part of your blog I’ll be able to answer directly on that.

We do hear gunfire everyday and bombs explosions 3 – 4 times a week. The gunfire I think is from the practice range, but the major explosions I have yet to figure out if they are incoming or outgoing, probably both.

When I originally applied for this job a lot of people ask me why I would want to work in war zones…….I never really told them why but I will tell you why. Continue reading

September 27, 2007 Posted by | Awareness, Friend, Friends of NF, neurofibromatosis | , , , , | 107 Comments