neurofibromatosis cafe

A place to talk about NF, have fun and share.

Reggie’s Meeting at Lou’s Office

reglousmall.jpgToday, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

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January 8, 2008 - Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Awareness, Benefit, Blogs, Friends, Friends of NF, neurofibromatosis | , , , , , , ,

210 Comments »

  1. who is Arthur, I don’t think I have seen him blog. Reggie, are you going to mention this at Daily Strength. Oh S(*&, some one just came in I just might have to do some work today, later

    Comment by Patricia | January 8, 2008 | Reply

  2. Arthur Meyerson is a famous photographer in Houston. A very good friend. I have a link to his site under my list is links. Check his site out.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  3. wow, he has some nice work, does he have any houston buildings during a lighting storm? I think that would make an awsome pic.

    Comment by Patricia | January 8, 2008 | Reply

  4. I think you should message him. Tell him how you found him. Let him know how you like his photos.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  5. Hey Lou what do I get for gracing you with my presents at your office today. You know I could have had the hot jaggers in my eye socket.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  6. I have fun when I come on here

    Comment by Shelley | January 8, 2008 | Reply

  7. Shoot harrassing Lou is fun

    Comment by Shelley | January 8, 2008 | Reply

  8. And how. Yea it qas fun giving Lou a hard time.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  9. Reggie Lou needs his olives so he wont give us a hard time

    Comment by Shelley | January 8, 2008 | Reply

  10. Everybody asleep ?

    Comment by Shelley | January 8, 2008 | Reply

  11. But is only fun harrassing Lou when he harrasses back. Where is Lou???

    Comment by Patricia | January 8, 2008 | Reply

  12. I am awake but fixing to head to bed

    Comment by Brian | January 8, 2008 | Reply

  13. Brian missed you today. Look forward to see you here tomorrow

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  14. Shelley as much caffeine as I had today I’m up for a while. Answering the blog. I love it.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  15. Please don’t get him started. Don’t get Lou started.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  16. For comment 11. Don’t ask. You will get him on a role. He has probably had a few olives.

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  17. Reggie, you were lucky today, you arrived while security was between shifts. Next time you may not be so lucky.

    Comment by adgiant | January 8, 2008 | Reply

  18. What you fail to realize is that your security team are good friends. And to think I could have kept my water toucher appointment. SEE WHAT YOU MADE ME MISS!

    Comment by Reggie Bibbs | January 8, 2008 | Reply

  19. 7:54AM Time for me to use my cup like in the picture above. Not HAMMER TIME, But COFFEE TIME!

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  20. Morning everyone, Time to wake up and start a new one, I am on my second cup of coffee.

    Comment by Patricia | January 9, 2008 | Reply

  21. Good Morning Patricia. I just got home. I took my brother to work and now I home and just starting my second cup of coffee. Where is Lou? I’m Sure Brian and Shelley will be here.

    Hey Patricia did you go to camp last year?

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  22. Hey Yall HAPPY NEW YEAR!!!! Sorry I haven’t written lately but things have been kinda bad around here. Long Story! Hubby is bein a JERK and I lost my Dachshund he was 11.5 yrs old. Just some really bad stuff I have been goin through. You can check out myspace at http://www.myspace.com/jlh37. Leave me a message and I will reply back. Hope yall had a HAPPY HOLIDAY!!!

    Comment by Judy | January 9, 2008 | Reply

  23. Hey Judy,

    It has been a long time. Welcome back. Also a old TV SHOW. I hope coming here will help you forget all the bad stuff. Hang in there it will get better. I will check back in a few. I’m going to get some lunch. Hang around Judy you are in for some fun around here.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  24. Thanks Reggie you made me smile, and I need lots of that these days. How have you been? Forgot to ask that in last post.sorry. OH!!!! and if anyone is looking for Yorkie puppies I have 3 cute little boys for sale. 550.00. Let me know.

    Comment by Judy | January 9, 2008 | Reply

  25. Hi Judy, so sorry to hear about your Dashound, I know how hard that can be, they become part of our families, and as far as husbands go,!!!!!!!! ummmmm I am on leagal husband #2 need I say more, this one is a keeper. Need I say anymore. I have a myspace somewhere that my daughter uses I’ll try to find it and message you. But I have to wait till I get home, they block myspace at work.

    Comment by Patricia | January 9, 2008 | Reply

  26. hey I am here I just been looking at my tractor seeing what needs to be done or what part of it I need to start working on but I am here oh and also I may be gone in a couple of weeks I am planning on going to my cousins for a week in San Antonio but not sure yet but planning on it

    Comment by Brian | January 9, 2008 | Reply

  27. Hey Patricia we better be nice here are we might run into the same problem here.lol So let’s not get Lou started. We have to hip Judy to our friend Lou. Steve Martian is not the only one.
    One Wild and crazy guy! Right Lou? And Judy never drink when you are reading comments here. You never know when you are going to laugh out loud.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  28. Hey Brian. Glad to see you here. Have you had coffee or root bear yet? It will be nice to get away for a while. The only thing is we will miss your comments here. The important thing is that you will be out having fun. It that hard work you are doing on the tractor? I wouldn’t know how to start one.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  29. Nah Reggie I am waiting to do the hard part the stuff I am getting ready to do is clean some parts the hard part is pulling the rear wheels off to get some tires put on and the other hard part is seperating the front frame to put a good front frame on it but I am waiting on the till I have some help

    Comment by Brian | January 9, 2008 | Reply

  30. It sound like if someone like me, that don’t know what they are doing can really get hurt with that kind of work.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  31. Hey there Im here Im working on my projects and my coffee

    Comment by Shelley | January 9, 2008 | Reply

  32. Hi Shelly, What project are you working on now, I am still working on my camo king size blanket, I got about 3 more feet to go. When I find out what the sex of the baby is I will probally stop and do a few baby blankets then get back back on the camo blanket one thing about that it will always be there for me. LOL

    Comment by Patricia | January 9, 2008 | Reply

  33. I’m drinking soda now.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  34. Im working on my pictures anothor afghan and christmas cross stitching

    Comment by Shelley | January 9, 2008 | Reply

  35. Patricia Im making baby bibs for the guys for christmas

    Comment by Shelley | January 9, 2008 | Reply

  36. Shelley, you making baby bibs for Lou and Reggie (guyes)

    Comment by Patricia | January 9, 2008 | Reply

  37. lol That was a good one. We have some comedians here. )

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  38. I was joking Patricia

    Comment by Shelley | January 9, 2008 | Reply

  39. Do you think Lou knows hows cross stitching? NO I DON’T! So I answered.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  40. no you wasn’t Patricia 😉

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  41. yes Reggie that is quite true if you do not have a clue is to what you are doing you can really get hurt bad now being I have never done it before but I know what I need and how to try and do it but I rather have some help to prevent from getting hurt

    Comment by Brian | January 9, 2008 | Reply

  42. Seems like any part of a tractor would be heavy.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  43. I thought Brian was talking about cross stitching!!!

    Comment by adgiant | January 9, 2008 | Reply

  44. Sounds like Im gonna have to take pic of my stuff and send to Reggie

    Comment by Shelley | January 9, 2008 | Reply

  45. that’s a good idea.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  46. comment 43, you so crazy.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  47. Reggie, maybe if allow, do some promtional of this site on the NNFF or CTF bulentin board and the NF,INC bulentin board. Or maybe can add it on their front page, a link to this site. Just do not know the politics getting it done. Just a thought.

    Comment by John P | January 9, 2008 | Reply

  48. no Lou I was not talking about cross stitching that is just not for me

    Comment by Brian | January 9, 2008 | Reply

  49. C’mon, Brian, now you’re just being modest.

    Comment by adgiant | January 9, 2008 | Reply

  50. Lou and I was able to get CTF to add The Texas NF Foundation to it’s site, which in turn will lead them my site. If I don’t have a link to the sites you mention I will check the site out and get with my team and make that happen.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  51. Hey Lou, Well never mind.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  52. I would like to see some pic of Shelley’s Projects.

    Comment by Patricia | January 9, 2008 | Reply

  53. nope sorry Lou im not being modest cross stitching is not for me

    Comment by Brian | January 9, 2008 | Reply

  54. I did check out the CTF site, did had to play around, a number of clicks, to get to it. Be easier if there is something on the front page to point to it, but thats just my thoughts.

    Comment by John P | January 9, 2008 | Reply

  55. Yea it take a few clicks to get to it. I think they decide where to add the link. I’m really not sure. Thanks John for your involvement in the blog.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  56. CTF is a tough site to get a link on. Almost as tough as MD Anderson of which we are still trying. Proud to have a link on Gillian Anderson’s site!

    Comment by adgiant | January 9, 2008 | Reply

  57. Hey there guys dont yall know that Rosey Greir {footballplayer \ preacher} needlepoints and knits

    Comment by Shelley | January 9, 2008 | Reply

  58. Lou how many bowls of olives did you eat today

    Comment by Shelley | January 9, 2008 | Reply

  59. I’ve been good today. Tomorrow will be a different story.

    Comment by adgiant | January 9, 2008 | Reply

  60. Really Lou

    Comment by Shelley | January 9, 2008 | Reply

  61. Lou just don’t want to be the only guy that cross stitch on my website.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  62. Hey yall did you see the comment some asshole made on the NF youtube video? Yea I said it. It needed to be said. When you read it you might feel the same way.

    Comment by Reggie Bibbs | January 9, 2008 | Reply

  63. Comment by adgiant | January 10, 2008 | Reply

  64. Don’t let it bother you, Reggie. He’s probably never had a full beer before and he just got overly excited.

    Comment by adgiant | January 10, 2008 | Reply

  65. Hey everyone click on the link and respond to the comment this guy left. Remember to respond in kind,Educate and create understanding.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  66. You know usually I’m a pretty happy person. When I hear and see things like that, it really bothers me. I will never let my mom know that was said. I don’t want anyone of them to know. I’ll be al-right. I’m happy about the visits we are getting on the sight. Lets keep those state up. Keep blogging.
    I will be up for a while the caffeine is still in my system.:)

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  67. Hi Guyes, I can’t get to youtube at work, they block for some reason, sometimes people say things cause they are upset for some reason, Right now i am upset with MD Anderson I know that is an awsome hosptial and they do awesome work, but they don’t accept my mother in laws insurance and it upsets me so I am not happy with them right now. I don’t know what that person said, I guess I have to wait and look at it when I get home tonight, Sometimes We have to say things and call people things to get that off our chest, I have called people a lot worse then what you said, Reggie, I am really curius on what that a$$ said now, I don’t know why they have to block certain sites at work????? They act like we are suppose to work or something.

    Comment by Patricia | January 10, 2008 | Reply

  68. Patricia, this is what was said:

    vita506 (20 hours ago)
    Hahah. That bastard thinks he’s cute. And even more he is giving people videos about himself.
    What a waste of video tape.

    Lou Reply(12 hours ago)

    Vita56, you should be ashamed of yourself. You are exactly the kind of person Reggie has to face everyday and I pity you. If ignorance was a disease, you’d be dead.

    Reggie Reply (11 hours ago)

    I’m Reggie, In response to your comment. This video is not about me,but about a disorder that effects Men Woman and children of all race. Not only a painful and disfiguring disorder but a illness to can lead to death. Your words hurt as much as the disorder. I pray that your heart would be soften not only for me, but for
    the others you offended by your comments.

    Comment by adgiant | January 10, 2008 | Reply

  69. Thanks Lou that is very well said I got a email from Reggie I told him there are rude cruel poeple in this world but I told him he is cared for and loved by all the people on the blog and he told me to tell everybody he is ok

    Comment by Brian | January 10, 2008 | Reply

  70. Give Me a baseball bat!!!!!!!!!!!!!!!! What a horrible horrible thing to say, Reggie, I thank God for people like you, You are a very strong person to put yourself out there for people like me, my mother, my daughter and so on….. for this horrible disease that we have, I suffer all the time from some many alimants and there is so little known about this disease. you are so brave to go out there and there is this (*&(^(^))&^^)8 ^(^()^^%))&^((&)^% that would say something like that what a horrible excuse of living orgism (spl) he is. I feel like that is an attack on all of us. I could just spit on him right now!!!!!!!!!!!!

    Comment by Patricia | January 10, 2008 | Reply

  71. Hey there yall Im here and on my 2nd cup of coffee Iknow people can be mean we can do this just pray for them

    Comment by Shelley | January 10, 2008 | Reply

  72. Sorry about that, I might have gotten carried away, I have a little bit of a temper.

    Comment by Patricia | January 10, 2008 | Reply

  73. No problem Patricia we all get mad sometimes

    Comment by Shelley | January 10, 2008 | Reply

  74. Hey yall, I’m back. I had to do a lot of things for everybody today. It would happen on a busy day. Oh well. Thank all of you for your kind words. We just have to excuse that type of behaver. We all know it happens when you have NF. I don’t know what to say about MD.ANDERSON, It’s a hard hospital to get in to. Most of everyone I met have been nice to me, but we did have some problems getting my brother in.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  75. we love you Reggie and all that you do for NF dont worry about the mean people like that all they are is losers we are the winners cuz we fight the disease every day keep up the good work Reggie and one other fact who cares what people think if they can not accept you for who you are then they are nobody

    Comment by Brian | January 10, 2008 | Reply

  76. UTMB is a good hosptital too. and it is in Galveston, She lives in Galveston, she loves that place. I promised her I would keep her there as long as I could humanly possible I would fight all three of her sons my husband included and I would just pray and make arrangements with my job for a leave of absence if I had to. She use to live off of 242, she sold that house and moved to Galveston about 7 years ago and she has been so happy there, I will do what ever I can to keep her there, right now it is about her and keeping her happy and comfortable.

    Comment by Patricia | January 10, 2008 | Reply

  77. Hey Shelley,

    You have to walk in the shoes I walk in and live the life I have lived and those who live in pain and who are hurt by words they hear as a child and then adults to really know how it feels. I’m a praying man and I have to be honest and say Praying for him was not the first thing that came to my mind. But its ok, now people can see for them self and not just hear it from me.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  78. Reggie I dont have NF but You know I have a weight problem people can be cruel and mean about that I can tell you stuff

    Comment by Shelley | January 10, 2008 | Reply

  79. Im sorry I didnt mean anything

    Comment by Shelley | January 10, 2008 | Reply

  80. I enjoy talking to yall

    Comment by Shelley | January 10, 2008 | Reply

  81. No don’t worry. Nothing wrong was said. All of us enjoy you being here. Don’t we gang? You are part of what happens here. Cool?

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  82. Im cool

    Comment by Shelley | January 10, 2008 | Reply

  83. Comment 78. It’s sad that people are judge on beauty. You can get support here weather you have nf or not. We will support you in what ever it is.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  84. You think that once we get to adulthood, ignorance would be smaller, but it seems like it grows like egos, when I was young people would make fun of the way I talked. I had to go to speach therapy for years my tongue is deformed (NF), plus my hearing is not all that great. With age comes more complications and reactions from people ingorance and FEAR. Fear of the unknown, not knowning what this disease is. Is it contagious? Why do we have it? How did it happen? Some people are truely scared. Some peoople are just *&^&^()&. Reggie I am so sorry what he said I wished I could take it back, I wished I could take away every mean thing that was ever said to you. Shelley, you don’t have to NF to have your feeling hurt, by mean people. I was told to pray for the people that was mean to you. I know what you ment, Yal know what my first reaction was. I have calmed down a little bit. But I am still mad at that jerk.

    Comment by Patricia | January 10, 2008 | Reply

  85. You are right. But we can’t control what people say. But the guy did us a favor. He is reminding us just how important our job is. Awareness of NF. Believe me I’m not going to wast my time on what he said. I have too much going for me. Look how long we have been here. All of us have fun here everyday. Don’t we gang? So who do you think are the happy ones. We are. RIGHT! 🙂 So lets start back having fun.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  86. I have vanilla ice cream and rootbear waiting for me me at home. 🙂 and 2 dogs that love me sooooooooooooooo much they wake me up in the middle of the night. just to get in bed I know, I know, but they are spoiled spoiled spoiled. I have to spoil someone, my daughter does not live at home anymore.

    Comment by Patricia | January 10, 2008 | Reply

  87. how about some jelly beans, any comments, I can’t do this by myself hello, anybody out there,

    Comment by Patricia | January 10, 2008 | Reply

  88. Tonight is martini and cigar night! I’m actually salivating. Unfortunately, it’s a hereditary thing and there’s nothing I can do to control it…the salivating part, that is.

    Comment by adgiant | January 10, 2008 | Reply

  89. you are so funny, if I could drink, I would have some crown tonight, but instead I will just have a rootbear float. That just have to do.

    Comment by Patricia | January 10, 2008 | Reply

  90. My husband told me that he is taking me to see Jersey Boys for my birthday, my birtday is next month, when he told me, I started singing, “Can’t take my eyes off of You”, he told me if I started singing he would get up and walk out on me. LOL 🙂

    Comment by Patricia | January 10, 2008 | Reply

  91. You kind of intermixed “Too good to be true” with “I get high with a little help from my friends”. Hmm-m-m, intentional or subliminal?!!

    Comment by adgiant | January 10, 2008 | Reply

  92. I thought the beetles done I get hight with a little help from my friends, or is that subliminal. LOL

    Comment by Patricia | January 10, 2008 | Reply

  93. And you wonder why nobody wants to talk with you!!!! (#87)

    Comment by adgiant | January 10, 2008 | Reply

  94. Hey Lou have one or two for me. You better get started early. or your not going to enjoy your cigar. It’s going to be cold tonight.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  95. I’ll build a fire.

    Comment by adgiant | January 10, 2008 | Reply

  96. Have a martini for me Lou

    Comment by Shelley | January 10, 2008 | Reply

  97. hey Shelley you are a sweet person if they cant accept you for who you are then they aint worth nothing and they are nobody that goes for you to Reggie and Patricia we are all special people in some way and we all care but then there are the people who dont care and they are nobody

    Comment by Brian | January 10, 2008 | Reply

  98. True Brian, you are special too. There will always be a bulley, but like you said they are nobody, we are friends here, we have a family. It is time to move on and put it behind us. We can not control what people say and do, but we can control how we respond.

    Comment by Patricia | January 10, 2008 | Reply

  99. Reggie do you ever have a drink, every now and then I sneak one.

    Comment by Patricia | January 10, 2008 | Reply

  100. Well Yea when I’m around bad influences. Shinner Bock. Never more then 1.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  101. who is the bad influencue? _ _ _

    Comment by Patricia | January 10, 2008 | Reply

  102. #91 and 92 Cool

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  103. Well Reggie, you never did say who is the the bad influence or do we already know?

    Comment by Patricia | January 10, 2008 | Reply

  104. That goes with out saying. But because you ask, it’s someone we all know and love. proses of elimination. its not any of us, all accept One guy. And one guy is not his name. One other clue #95

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  105. LOL

    Comment by Patricia | January 10, 2008 | Reply

  106. I heard that!

    Comment by adgiant | January 10, 2008 | Reply

  107. You mean you can hear after leaving the bar.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  108. fy…i

    Comment by adgiant | January 10, 2008 | Reply

  109. How was the olives????????

    Comment by Patricia | January 10, 2008 | Reply

  110. For those just tuning in, there is an interesting discussion going on at Reggie’s YouTube page. Here’s the lastest…

    vita506 (1 day ago)
    Hahah. That bastard thinks he’s cute. And even more he is giving people videos about himself.
    What a waste of video tape.

    adgiant (22 hours ago)
    Vita56, you should be ashamed of yourself. You are exactly the kind of person Reggie has to face everyday and I pity you. If ignorance was a disease, you’d be dead.

    McTuffel (4 hours ago)
    Well said.

    adgiant (21 hours ago)
    I’m Reggie, In response to your comment. This video is not about me,but about a disorder that effects Men Woman and children of all race. Not only a painful and disfiguring disorder but a illness to can lead to death. Your words hurt as much as the disorder. I pray that your heart would be soften not only for me, but for
    the others you offended by your comments.

    vita506 (6 hours ago)
    Part 1: I’ve tried to make this comment sound funny, in the way I treat you like a normal person and blame for the ‘narcissistic kind’ of video you’ve made (of course it’s not narcisstic at all). I’ve considered that it could be interpreted wrongly but I sometimes post that controversal type of comments just to see the reaction of other people. I can assure you that in the real life I’d be one of the last persons to laugh about the disability of the others.

    vita506 (6 hours ago)
    Part 2: So, I’m sorry you feel offended by my comment, but this one of the disadvantages of the anonimity of the internet.
    I really hope you’ll recover someday.
    I was going to write something about the distance to others in life, but I can’t put together any logical sentence, so … maybe I’m disabled too in some way 😉

    McTuffel (4 hours ago)
    You really are a low life piece of shit. No matter how drugged up or depressed you were at the time of writing your useless and offensive comments, it is still no excuse for your rant of totally irrelevant bullshit.

    You hide behind a faceless internet to let loose with your lack of compassion. Good because if I did know you I would break every bone in your pathetic body.

    I think you already know how useless you are as a human so I needn’t say anymore.

    This is Lou again…I really like this McTuffel guy. I propose a wee bit of a toast to our friend in Ireland!

    Comment by adgiant | January 10, 2008 | Reply

  111. Hey Lou You suppose to say I know that’s right! Or you can Say I heard that! Either way is ok. But you have to put a little base in your voice. Oh Patricia did I tell you? He always tell them to skip the olives. He complains that it takes up toomuch room in the glass. I never understood why his glass is always bone dry when they come back to the table for it.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  112. Lou hired a team of doctors to figure out how he can get a martini IV drip implanted. He tells me they are close to making it a reality. That way he can have two free hands for the Shinner Bock.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  113. lol, on the olives thing, I like this McTuffel dude, he is ok, Babbins makes a Martin called Sledge hammer I believe, it takes them about 8 minutes to make, suppose to be really good!!! This dude we know drinks them alot.

    Comment by Patricia | January 10, 2008 | Reply

  114. Yes McTuffel is a really cool guy. The kind of guy you would want on your side. Wow this is a fun place to be. Hi Lou.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  115. Toast to McTuffel friend a in Ireland.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  116. Well, it is getting late, but tomorrow is FRIDAY WOAHOA, hope everyone has a better day tomorrow

    Comment by Patricia | January 10, 2008 | Reply

  117. McTuffel is welcome in my home anytime.

    Comment by adgiant | January 10, 2008 | Reply

  118. mine as well. Patricia want Friday to hurry up and get here. I’m sure I would too if I was working hard everyday. Look forward to hearing from you tomorrow.

    Comment by Reggie Bibbs | January 10, 2008 | Reply

  119. EVERYONE GO NOMINATE REGGIE’S BLOG FOR SOME BLOGGIE AWARDS!! Nominating ends Friday at 10pm est.
    http://2008.bloggies.com/

    Comment by Emily | January 11, 2008 | Reply

  120. Hi Emily,

    That is so cool. I was just thinking about you yesterday. I’m so happy to hear from you. I hope you are happy and well.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  121. Hi Emily

    Comment by Patricia | January 11, 2008 | Reply

  122. Hey everyone 🙂 I wish I could check in more often, it has been so busy around here lately. My husband has more health issues going on so he’s had a ton of appointments, and of course my due date is creeping up fast so we have been preparing for that as well. Although I dont comment often I do check in and read new entries though!
    Everyone go have some Starbucks and think of me, lol!

    Comment by Emily | January 11, 2008 | Reply

  123. Hi Emily,

    I have been thinking about you, hope that all is ok. I’m sorry that your husband has been having health issues. I hope everything turns out well for you all. I will be praying for you and your family. Keep checking in. We would be happy to hear from you.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  124. Hi Emily, sorry to hear about your husband’s health issue’s will keep him in my prayer’s hope your pregancy is going well. Reggie, have you had your coffee yet, I had 2 cups, have’nt had starbuc in a while might get some in the morning on my way to Galveston. I will be driving myself.

    Comment by Patricia | January 11, 2008 | Reply

  125. I’m on my 3rd cup. Where is Shelley and Brian ?

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  126. I dont get to go to Starbucks very often so I settle for the next best thing – I buy Starbucks coffee at the store and brew it myself! Granted, its not the same as getting it from Starbucks itself but it works! Man, I havnt had a cup of coffee in about a month.. I think I might have some now to warm me up!

    Comment by Emily | January 11, 2008 | Reply

  127. It was cold this morning!!!!!!!!!!!!!!!! Not so bad right now, I had to make a run to the store for lunch and it was ok, the sun is out in Huntsville so that is a good thing.

    Comment by Patricia | January 11, 2008 | Reply

  128. Shelley, Brian, Where are ya. Come out Come out where ever ya are

    Comment by Patricia | January 11, 2008 | Reply

  129. #126 How cold is it? It was cool this morning, I wouldn’t say it was cold. I might go the Coffee shop tomorrow and just have coffee at starbucks. don’t know for sure.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  130. #128 hum I wonder where they are. I will have to think about this one.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  131. They are at Starbucks without us!!!!!! 😦

    Comment by Patricia | January 11, 2008 | Reply

  132. I am eating Double Stuffed Oreo Cookies and trying my best to get my coworkers to help me.

    Comment by Patricia | January 11, 2008 | Reply

  133. Hey yall Im at my apt not at Starbucks

    Comment by Shelley | January 11, 2008 | Reply

  134. Yep! I bet that’s it. 😉

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  135. umm hum.;) Have you had coffee yet?

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  136. Now you see I was doing good. You had to say it. Oreo cookies. OMG. My name is Reggie Bibbs and I’m a Oreo cookie addict. I have to get a bag of Double Stuff Oreo cookies. One bag won’t hurt will it? Not worried about loosing my wash board abs. 😉

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  137. Hi Shelley, how are you? 🙂

    Comment by Patricia | January 11, 2008 | Reply

  138. It was cold this morning here in Dallas. I went out to start the car, it would not start. Could it be my 7 year battery? I only had it for seven years 1 week and 2 days. I decided to get a replacement since more cold days are coming.

    Comment by John P | January 11, 2008 | Reply

  139. Im good Patricia

    Comment by Shelley | January 11, 2008 | Reply

  140. Reggie has wash board ?

    Comment by Shelley | January 11, 2008 | Reply

  141. abs ?

    Comment by Shelley | January 11, 2008 | Reply

  142. abs. Strong muscles in your stomach.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  143. John P, seven years is good, how many miles, we usally go thru a car in about 4-5 years, but I drive an EASY 400 a week just to go to work, and only to work and that would be to work only work with no fun and I have to have a little fun. So it is really a lot more then 400 miles a weeek.

    Comment by Patricia | January 11, 2008 | Reply

  144. Ya got plans this weekend?

    Comment by Patricia | January 11, 2008 | Reply

  145. Really Reggie

    Comment by Shelley | January 11, 2008 | Reply

  146. Hey Patricia it’s getting late. And what time will it be??

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  147. Lou what kind of olives do you like

    Comment by Shelley | January 11, 2008 | Reply

  148. He like them soaked in a martini glass.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  149. time to go home in an hour, I am so tired, my dogs have not been letting me sleep at night and I am so very sleepy and tired.

    Were is Brian???????

    Brian are you working on your tractor???

    Comment by Patricia | January 11, 2008 | Reply

  150. I have found my calling in life

    Comment by Shelley | January 11, 2008 | Reply

  151. I am here nah I have not messed with my tractor today but I need to get busy on it just kind of layed around today

    Comment by Brian | January 11, 2008 | Reply

  152. Hey Brian how r you feeling

    Comment by Shelley | January 11, 2008 | Reply

  153. Brian sometime it’s good to just lay around and do nothing. Glad you wrote . I’m here so feel free to hit me back.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  154. Where is everybody

    Comment by Shelley | January 11, 2008 | Reply

  155. hey Shelley I am feeling ok but honestly my back has been bothering me lately but other than that I feel ok thanks for asking and Reggie its ok to lay around but not when you have lots of stuff that needs to be done but I guess I will get to it sooner or later

    Comment by Brian | January 11, 2008 | Reply

  156. Yea you have to feel better before you worry about the work that needs to be taken care of. The work will be there when you feel better. Remember not to over due.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  157. I have temporarily changed the name of the blog from nf cafe to neurofibromatosis cafe. I wanted to see if it makes a difference in Google searches for neurofibromatosis. I think it will. If it does, I say the name should stay. If it doesn’t, than nf cafe is pretty darn good. Google “neurofibromatosis blogs” and I think you will be very pleasantly surprised. Reggie’s blog is pretty much “the blog for neurofibromatosis.” And it’s all because of Patricia, Brian, Shelley, Emily, Reggie and everyone who contributes to the blog. Everyone, please take a bow!

    Comment by adgiant | January 11, 2008 | Reply

  158. Lou are a making great progress. All we have to do is tell a friend. try to get more people involved on the blog. Lets keep it up.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  159. I love you guys

    Comment by Shelley | January 11, 2008 | Reply

  160. cool

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  161. I bet you say that to all the guys, Shelley!

    Comment by adgiant | January 11, 2008 | Reply

  162. Lou don’t flatter yourself. She wasn’t talking about you. shesh!

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  163. Hi Yal, how is everyone?

    Comment by Patricia | January 11, 2008 | Reply

  164. I am very excited to be a part of this blog and I want to thank everyone here for having our friendship and Lou you have done a excellent job in helping Reggie with the blog I thank all of yall for being my friend you dont find people like us everyday anymore thanks yall

    Comment by Brian | January 11, 2008 | Reply

  165. I agree this is a nice place to be.

    Comment by Patricia | January 11, 2008 | Reply

  166. You know, Words can’t explain how happy I feel. What yall have to understand everyone one of you that have ever commented on my blog is part of body of what is happing here. I love each and everyone of you. When I don’t hear from someone after a few hours you start to worry. Thank you. You know we always make fun of Lou because we love him. He has help so much. He won’t take credit for anything. I pray that he will really know how many people he have made happy because of his hard work. The best way to say thank you is to show him by making use of everything on the site. Enjoy the links photos and keep chatting with each other. Lou don’t like pats on the back. He is a GOOD MAN.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  167. I thought I was getting paid.

    Comment by adgiant | January 11, 2008 | Reply

  168. Lou just wimped out. Just like the them song on Home Make Over. It’s all right to cry, it will make you feel better.

    Comment by Reggie Bibbs | January 11, 2008 | Reply

  169. :>)

    Comment by adgiant | January 11, 2008 | Reply

  170. Thanks Reggie, It will probally be sometime Sunday night before I will be back on, I am going down to Galveston to be with my mother in law this weekend, she had chemo this thursday, she is doing ok, she is just tired, I will probally take her out to eat and do a little shopping, I am going to be doing things that her sons don’t want to deal with. well anyways, I just wont be online much on the weekend, so I will be hoping everyone have a great weekend and be safe, make every minute count. have a good one. And Lou, you do do a Good Job, thanks.

    Comment by Patricia | January 11, 2008 | Reply

  171. Be safe.

    Comment by adgiant | January 11, 2008 | Reply

  172. I guess everybody is gone to bed. Oh well I guess I better hit the hay.

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  173. Anybody out there?

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  174. I’m here Reggie. I’m having my second cup of coffee and trying to get motivated for the day.

    Comment by adgiant | January 12, 2008 | Reply

  175. Hey there Im getting ready to go to Wal mart

    Comment by Shelley | January 12, 2008 | Reply

  176. I had two cups of coffee and not I going to eat come ice cream. I waiting for it to melt a little before I polish this pint of Dutch Chocolate ice cream off. Blue Bell of Course. The Best Tasting ice cream in the country.

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  177. I can think of a lot of stuff I can get a Wal Mart. Just wish I had the money to get it. They have nice men’s clothing. It’s called GEORAGE. I think that is the correct spelling.

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  178. Either way is fine, however, may get more hits on Neurofibromatosis, NF only ones that usues it is us. A new person to Neurofibromatosis may not know the NF short name. Speaking of… This is not the first occurence this has happen. I have a tumor like on or near my heart. Only pain is that it pinches. Two years ago when this happen, I was sent to a heart doctor, which I went through the test, came out fine and they said it is a tumor. This happened again and my neurologist want me to see the heart doctor again which will be later this week. Any one hear or know anything like this? Anyway…

    Comment by John | January 12, 2008 | Reply

  179. Hi Im back from Wally World got stuff for my pics

    Comment by Shelley | January 12, 2008 | Reply

  180. For comment 161 No I dont tell everybody that ask Reggie

    Comment by Shelley | January 12, 2008 | Reply

  181. #161 and #180. She’s right. Then again I’m not Denzel Washington.

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  182. Denzel Washington Who is that

    Comment by Shelley | January 12, 2008 | Reply

  183. Oh you don’t know him :)Cool. Then all is ok then. He is an actor.

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  184. I havent been to the movies since 99

    Comment by Shelley | January 12, 2008 | Reply

  185. hey John i hope your Dr.appt. goes well

    Comment by Brian | January 12, 2008 | Reply

  186. Yes me too John. I hope it goes well for you.

    Comment by Reggie Bibbs | January 12, 2008 | Reply

  187. Hey yall thanks for makin me laugh OH! and Reggie I already learned to not drink anything while reading posts. I had to clean monitor too many times already….lmao Also If any one wants to email me thats ok too. email is doxnlver@excite.com. Thanks Patricia for the support

    Comment by Judy | January 14, 2008 | Reply

  188. Hey Judy I’m sure Brian and Shelley would love to chat you direct. As well as the others. Throw question at them from time to time. You can talk about anything here. As you can see
    we always talk about coffee tea and other types refreshing beverages. We enjoy your visits. Check in everyday as many times as you want. especially if you want to vent or just pick on Lou. He has been our punching bag. I can’t think of a more deserving person the Lou.

    Comment by Reggie Bibbs | January 14, 2008 | Reply

  189. {{{{{{{{{{{{{{EVERYBODY}}}}}}}}}}}}}}}}}}}}}

    Comment by Shelley | January 14, 2008 | Reply

  190. Hey Yall its just me again. I am only online when during the morning or until I get a dang job. Reggie I still havent found 1 and its been since oct. and that sucks big time. and am also only on m-f cuz hubby thinks I needs to be up his butt when he is home, so thats why on s-s I aint on.and even if I did get on and came here he would think I was CHEATIN on him go figure. Toldja he was a jerk. Well I have to check myspace messages and my other email that hubby dont know about…hehehe sneaky huh…lol but will check back in a few.

    Comment by Judy | January 16, 2008 | Reply

  191. Judy,

    LOL you are so funny. Well you know your are loved by your hubby. I’m sure he will understand you visiting the blog. It’s
    place for support and not a dating site. We are happy to see you here. Remind everyone about emailing you.

    Comment by Reggie Bibbs | January 16, 2008 | Reply

  192. Right back at you Shelley and {{{{{{{EVERYONE}}}}}}}

    Comment by Reggie Bibbs | January 16, 2008 | Reply

  193. HEY YALL WOULD LOVE TO HEAR FROM YALL IN EMAIL ALSO. SO WHATS THE HOLD UP?…LOL doxnlver@excite.com

    Comment by Judy | January 16, 2008 | Reply

  194. THAT MEANS YOU TO REGGIE!!!!….LOL

    Comment by Judy | January 16, 2008 | Reply

  195. LOL of course

    Comment by Reggie Bibbs | January 16, 2008 | Reply

  196. HI THERE

    Comment by Shelley | January 16, 2008 | Reply

  197. Just wanted to be the first to say GOOD MORNIN to yall today and how is everyone doin? Does anyone watch American Idol? I do and I am glued to the TV and make hubby cook supper….lmao!!!! I mean my butt gets planted and rooted to the chair…lol

    Comment by Judy | January 17, 2008 | Reply

  198. Good Morning I would have wrote earlier, but I didn’t have my coffee. I’m on my second cup now.

    Comment by Reggie Bibbs | January 17, 2008 | Reply

  199. Yes I have been known to watch it. I don’t get too involved in it. Last night they had some really good singers. I kind of like to know whats going to happen before hand. Make sure you post what’s happening.

    Comment by Reggie Bibbs | January 17, 2008 | Reply

  200. Reggie I will keep ya posted. I also like nascar and Dale Jr. MAN is he FINE!!!!!lol Toby Keith is also my dream man and hubby knows that if I ever met him we would have some fun under the sheets….roflmao!!!! 😉 ;P~~~ I drool over that man.I have all his cds and still addin. Goin to see him again this year at rodeo. And if anyone knows how I can get a backstage pass PLEASE TELL. I got a bogo wet kiss for that man…l0l well hope that makes yall laugh…lol

    Comment by Judy | January 17, 2008 | Reply

  201. yall can also find me on pogo.com mt screen names are TXQUEEN1169 and JHAYES110169. hope to see yall there

    Comment by Judy | January 17, 2008 | Reply

  202. Where is everyone???????????

    Comment by Judy | January 22, 2008 | Reply

  203. I will be on after I get some coffee in me.

    Comment by Reggie Bibbs | January 22, 2008 | Reply

  204. OK well I have a dr.s appointment so I will check back in tomorrow.

    Comment by Judy | January 22, 2008 | Reply

  205. Judy hope all goes well with your dr.s appointment. I had two cups of coffee and I’m ready to blog now. I answered a few emails and I here now.

    Comment by Reggie Bibbs | January 22, 2008 | Reply

  206. Hey Lou where are you?

    Comment by Reggie Bibbs | January 22, 2008 | Reply

  207. My dr. raised up some of my meds that I have to take but other than that everything went very good. I have to take my 7yo to the dr. today for a check up but it will go good. Blog to yall tomorrow.

    Comment by Judy | January 23, 2008 | Reply

  208. whered evryone go? Did yall forget about me :(…lol too many other blogs to keep up with so I only come here.

    Comment by Judy | January 28, 2008 | Reply

  209. Hey Judy,

    We are still here. You can post on anyone of the blogs we have here. Happy to see you again. We haven’t forgotten about you. How are you? 🙂

    Comment by Reggie Bibbs | January 28, 2008 | Reply

  210. I am doin good and how are you and everyone else? My 7yo has had a fever for 2 days and didnt go to school for 2 days already this week so yesterday I took him to the dr. and it was just a viral infection and as you know they couldnt do anything for it except give hime something for the coughing and man does it knock him out QUICK!!! also a word of advise to all who have young kids dont give Dimetap cuz it makes them SUPER HYPER!!! That child just purely drove me insane for a couple of days… but that dont take much to do that…lol and my 21yo is also bein a butt tryin to start stuff. If I didnt know better I would think he was 9 or something the way he has been actin lately. Anyway thats what I have been up to, how bout yall? TTYL

    Comment by Judy | January 30, 2008 | Reply


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