neurofibromatosis cafe

A place to talk about NF, have fun and share.

NEW 2009 “Just Ask!” AD CAMPAIGN!

3113186003_d13b1727a7_oWe are in the last month of 2008. I’m excited for what we are planning for 2009 and the JUST ASK! campaign. We have just designed a new ad campaign with new photos and messages. The photo shoot was donated by professional photographer and friend, Greg Gorman of Los Angles California.

The new ads will be sent as a public service announcement to a variety of publications throughout the country. Also, we have entered them in the American Advertising Federation award show. The ads will compete with ads from all over the country. This is a great thing to happen, whether we win or not, because our message will be seen from people all over the world. Which means, more people will know about NF. The ads are strong and to the point.

In 2009 I look forward to a bright New Year. We will have a new look. We started with the new t-shirt design. The website will be bright as well. I hope that you will join me in making 2009 brighter. We have the same cause. Awareness of Neurofibromatosis.

CLICK TO VIEW ENTIRE CAMPAIGN

December 17, 2008 Posted by | ADDY Awards, Awareness, Blogs, Greg Gorman, Just Ask!, neurofibromatosis, PR, T-shirts | , , | 51 Comments

Reggie’s Meeting at Lou’s Office

reglousmall.jpgToday, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

January 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Awareness, Benefit, Blogs, Friends, Friends of NF, neurofibromatosis | , , , , , , , | 210 Comments

NF CAFE

coffee.jpgI don’t know if anyone noticed the new name of the blog but I changed it from “JUST ASK!” to “NF CAFE”. I just thought that NF Cafe felt like a more friendly kind of place to relax, hang-out and talk with friends and have a good time.

I wanted to throw this name out there to see what you thought. I like the name because it has a lot of different meanings to a lot of different people.

Most of us here enjoy our coffee. Shelley and Brian to extreme levels!!! : > ) When I think of coffee, I think of relaxing and good thoughts and good times.

When I think of cafe, I think about relaxing with a nice cup of coffee or going to a nice place for coffee and just enjoying nice conversation with a friend. Like we do here.

It’s an easy name to remember, kind of rolls off the tongue. Also, Cafe and CAFE AU LAIT have a bit of a double meaning to NF people.

So tell me what do you think? Do we keep it as the name of our blog or do we go back to “Just Ask!”? Now let me say that “JUST ASK!” is still the name of my website and will always be. NF CAFE is just a catchy name that we can enjoy and have fun with it.

What say you? Continue reading

December 15, 2007 Posted by | Awareness, Blogs, Friends, Friends of NF, Just Ask!, neurofibromatosis | , , , | 133 Comments

Reggie Bibbs Wikinews Interview

17115693_160x120.jpgReggie Bibbs was interviewed on Nov 23, 2007 for Wikinews describing what it is like living with neurofibromatosis and what he has done via his website, blog and other resources to increase awareness of NF.”

Click to watch Reggie Bibbs interview on Neurofibromatosis

November 29, 2007 Posted by | About Me, Awareness, Blogs, Celebrity, Friends with NF, M.D. Anderson, neurofibromatosis, Research, Texas NF Foundation, Video | , , , , | 24 Comments

Reggie’s Blog Passes 28,000 visits! Correction: 30,000 Visits! 32,000!!!

1177763205_27435df9801.jpgbrianreggie.jpg873903763_592f7efd93_s.jpg376702630_0e7ac2eb0e_o.jpgreggiebibbswhoami2.jpgmy-posse_2.jpgfiesta.jpgwelcome-to-minute-maid.jpg376701803_3142b86ab3_s1.jpgReggie and Mom in “Just Ask!” t-shirt.reggiestill.jpgbigredheart1.jpgloureg2.jpgamanda1.jpg376702462_884115d624_s.jpg481662125_fb805462622.jpg

Over 170,000 people have visited his website that went live in December, 2006.

Over 28,000 people have visited his blog since he started it in February, 2007, with over 150 posts and over 1,700 comments.

Reggie has posted close to 2,000 photos of him and his new friends on his Flickr page with over 29,000 views!

YouTube has recorded over 10,000 views of his videos and PSAs.

Not a bad way to increase awareness of neurofibromatosis, Reggie!

October 2, 2007 Posted by | Awareness, Blogs, neurofibromatosis | , , , , , , , , , , , , , , | 69 Comments