neurofibromatosis cafe

A place to talk about NF, have fun and share.

ED FROM PENNSYVANIA

3068357163_f3a59de593_b3085507479_7b7a7c41ff_bI thought I would share with you about Last Saturday. I had lunch with a friend, Ed Olsavicky.  Ed is a terrific friend and a relative of Lou’s. I met Ed at Lou’s wedding many years ago.

While Ed was in town this Thanksgiving holiday, he wanted to get some good old Texas Bar-B-Q. Lou took us to Goode Company where we had a great lunch. Ed wanted to know everything about JUST ASK, and how things are going at my office. It was great talking to Ed and catching up on things since I saw him last.

I hope you enjoy the photo. He now has a Just Ask! t-shirt and will be talking aboutf Just Ask and neurofibromatosis when he gets back to Pennsylvania. Thanks ED for the lunch. See you in D.C.!

MORE PHOTOS HERE

December 3, 2008 Posted by | Friends, Fun, neurofibromatosis | , , | 17 Comments

Reggie’s Meeting at Lou’s Office

reglousmall.jpgToday, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

January 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Awareness, Benefit, Blogs, Friends, Friends of NF, neurofibromatosis | , , , , , , , | 210 Comments

TIME TO RODEO

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Well, we are talking rodeo again. Kick off is today, I believe. I’m excited and expecting this will be a good year. I don’t know if I will be able to go, but who knows. The schedule has a great list of country entertainers and other great entertainers for all of you who are not country music fans. I would like to hear from all of the fans who plan to see someone from our home town–Clay Walker. And I know my good friend here would love to here about it. After all, he will get me a picture of ASLEEP AT THE WHEEL. He is such a cool guy. Right Lou?

February 21, 2007 Posted by | Music, T-shirt | , , , , | 8 Comments

FOX26 NEWS INTERVIEW WITH DAMALI KEITH

Tonight I hope you can join me and watch my interview, on FOX26 NEWS. It should air around 9:00pm I was happy that FOX26 gave me the air time, so that I can share my story. Damali Keith interviewed me and was very nice. Like I always say, “Make it a Tremendous Day.” I look forward to your comments.

February 19, 2007 Posted by | About Me, News | , , , , , , | 34 Comments