neurofibromatosis cafe

A place to talk about NF, have fun and share.

Kevin Nealon Doodles for NF


May 4, 2009 - Posted by | neurofibromatosis


  1. hiiiiii,Reggie..dis is Rajashree from India,…a few days before i saw you in discovery channel…well i don’t know whether you have got any such comment from India or not,,but really you r genuinely an idol of inspiration.Actually i want to have frndship with you..will you?i saw all of your snaps…i will be very glad Reggie if u accept to become a frnd of mine..i will be eagerly waitin for u r rply…byeee

    Comment by Rajashree Chakraborty | May 21, 2011 | Reply

    • hi! Reggie..n Hi Rajshree,,,,m also frm India …i too saw u on Dicovery Channel….U r really grt …an inspiration too many..I m a fan f u n wanna b frnz wd u,/

      Comment by Vaibhav | August 14, 2011 | Reply

  2. hlow my friend reggie……… are a real hero in true one can challenge your honesty and your Confidence.You are inspiration whole world.
    I am big fan of your after see your story on discovery.After sawing you on discovery me and my family can’t stop my tears but my mom says that live like reggie if u want to be real hero……………so reggie u r my hero……..
    i am from alwar,rajasthan, (INDIA)

    Comment by Raman sharma | July 1, 2011 | Reply

  3. I m requesting from whole world plzzzzzz get up and live like reggie………

    Comment by Raman Sharma | July 1, 2011 | Reply

  4. hey riggie,,,u r a hero in a world vere people loose hope to early.people r gettin inspired frm u. May god bless u .take care …

    Comment by ashish | July 11, 2011 | Reply

  5. Hi Rajashree Chakraborty,

    Thank you for your message. I’m just now seeing your note. Sorry for the late reply. I’m always happy to get messages from all over the world, with support. Thank you for faking time to write me. Feel free to write anytime.

    Comment by Reggie Bibbs | August 14, 2011 | Reply

  6. I have NF as well! I’m going thru a bout of pins and needles in arms and legs,burnt my feet in the bath today as the water was to hot and my feet didn’t feel it! Past this condition onto 2 out of 6 kids! Millie has the classic big head and was bullied at school! Adam has learning difficulties and autisim!

    Comment by Judy Barton | April 23, 2013 | Reply

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