neurofibromatosis cafe

A place to talk about NF, have fun and share.

Tax Deductible Donations Now Being Accepted by the Just Ask Foundation

donate_onlineThank you for your interest in helping raise awareness for NF. With your help,  I hope to spread the word about neurofibromatosis through web, viral,  web-related resources, and personal appearances at events throughout the country

Unfortunately due to my not being rich, i.e. poor, I don’t have the financial resources to underwrite all the funding we need to meet my objectives. Thanks to Lou, I have been able to attend all of the functions you see in these photos courtesy of Lou.

I want to raise awareness of neurofibromatosis so that people affected as severely as myself can be accepted into society and lead a “normal” life. That’s why Lou and I and Matt and Geo and William and Shana go out together. When people see other people acting normal around something they don’t understand, they feel ok about it and figure there’s nothing wierd happening and they’re fine. Continue reading

April 17, 2009 Posted by | Awareness, Fundraising, neurofibromatosis, T-shirts | , , , | 5 Comments

My NF T-SHIRT from France!

3177673282_0f49b214a6_bMy friend Francis was nice enough to send me a t-shirt all the way from France. I’m  proudly wearing the NF FRANCE t-shirt. Francis also is a bloger here and he has is own blog page as well. He wrote about me in two of his blogs. We recently spoke on the phone and he, like all of us here, is spreading the word about nf and hope there will be a cure some day. There is always hope. The link to the site on the shirt is anrfrance.org If you would you can visit Francis blog. droitaladifference.blogspot.com/

You can use google translate if you don’t know French. It works really well. Some day I will visit France wearing my nf France t-shirt.

See all the photos HERE!

January 7, 2009 Posted by | Awareness, Friend, Just Ask!, neurofibromatosis, T-shirts | 15 Comments

CHRISTMAS AT JUST ASK!

3129024156_2166a4d216_bMy favorite time of the year is Christmas. Here are some fun photos taken around the office I wanted to post.

I want to wish my friends and fellow bloggers a Merry Christmas and a Joyful 3129321805_eba20415ec_bNew Year.

I will be here on the blog all week ready to blog with anyone who posts. Lets talk about what you have planned with family or friends.

Look forward to seeing you here.

December 23, 2008 Posted by | Celebrity, Friends of NF, neurofibromatosis, T-shirts | 33 Comments

NEW 2009 “Just Ask!” AD CAMPAIGN!

3113186003_d13b1727a7_oWe are in the last month of 2008. I’m excited for what we are planning for 2009 and the JUST ASK! campaign. We have just designed a new ad campaign with new photos and messages. The photo shoot was donated by professional photographer and friend, Greg Gorman of Los Angles California.

The new ads will be sent as a public service announcement to a variety of publications throughout the country. Also, we have entered them in the American Advertising Federation award show. The ads will compete with ads from all over the country. This is a great thing to happen, whether we win or not, because our message will be seen from people all over the world. Which means, more people will know about NF. The ads are strong and to the point.

In 2009 I look forward to a bright New Year. We will have a new look. We started with the new t-shirt design. The website will be bright as well. I hope that you will join me in making 2009 brighter. We have the same cause. Awareness of Neurofibromatosis.

CLICK TO VIEW ENTIRE CAMPAIGN

December 17, 2008 Posted by | ADDY Awards, Awareness, Blogs, Greg Gorman, Just Ask!, neurofibromatosis, PR, T-shirts | , , | 51 Comments

The New Shirts are In!!!

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November 13, 2008 Posted by | Awareness, Fun, neurofibromatosis, T-shirts | , , | Leave a comment

NEW “Just Ask!” T-shirt Option

The votes are in! Our initial order of tshirts will be the small Just Ask! design on the front and Reggie’s face on the back with the url over his head. (SEE GREEN SHIRTS IN UPPER LEFT.) Our initial order will be pink/white and mustard yellow/blue. We will order in a variety of sizes. If we can order a lot of different colors we will although it might turn into a nightmare trying to keep everything in stock!

If you are interested in ordering a shirt or shirts, please let us know now if possible so we havce an idea of how many to order. I’ve already taken the liberty of putting Emily down for a dozen pink and a dozen yellow. In any event, if you could give us an idea of what or how many you’d like, that would be great! Just leave a comment below or email Reggie at reggie@reggiebibbs.com.

Thanks everyone! Oh, the shirts will be $15 and all cotton so they will breathe nicely!

October 10, 2008 Posted by | Fun, neurofibromatosis, T-shirts | , , | 34 Comments

New “Just Ask!” T-shirt Design

We are thinking of redesigning the shirts so they are simpler, more fun, and are equally appealing to men and women.

We have two styles we’re looking at – distressed and/or solid colors. We’re also investigating different colors for the shirts.

Which design do you like? What colors would you prefer?

Let us know below and who knows, you just might see the shirt of your dreams up here in a few days!

October 7, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, T-shirts | , , | 20 Comments