My new Friend, Ed Port, needs your help.
From: Ed Port <gbg@ameritech.net>
Date: December 27, 2008 2:56:15 AM CST
To: reggie@reggiebibbs.com
Subject: Hello Reggie from Ed Port
Reply-To: gbg@ameritech.net
Thank you for the e-mail MIke forward it to me. How did yo hear about my story? I fist saw you on the O about a year ago when I was flipping thou the TV chs Mike has been trying to help me get my story out. I ws chatting with friend today on yahoo that lives in Romania who said he would put my website on his blog to help to get the word out and to help rasie funds.
I would like your imput on anything that would help make the website better. I wike your store very much it would great to speak to you
http://www.edneedsamiracle.com/
Ed Port
Youngstown Ohio Continue reading
National Doodle Day Benefiting Neurofibromatosis
I spoke with Mari Garcia administrator of Gillian Anderson’s Official Web Site, I was asked sometime ago to help out and to contribute a doodle for NF, Inc’s Second National Doodle Day Auction. I was happy to post a blog and do what I can to be of help. Please check out the links and see your favorite Actors and actress and others who have support the fight against NF.
The auction will start on May 8 on eBay. So far there are two pages and more doodles will be added as they come in. Be sure and blog your favorite doodle.
NF, Inc. is raising money for neurofibromatosis through their annual National Doodle Day! As part of NF Awareness month, celebrity doodles will be available for auction on eBay.

Neurofibromatosis is a genetic disorder that affects one in every 2,500 births. NF is more common than Cystic Fibrosis, Muscular Dystrophy and Huntington’s Disease combined. Funds raised from the Doodle Day auction will go to support education, advocacy, coalitions, and research for treatments and a cure.
To learn more about NF, please visit http://www.nfinc.org.
For more information about National Doodle Day, contact email doodleday@nfinc.org
Texas NF Foundation to stage city-wide fundraiser at Houston’s finest restaurants
Last night, Lou and I attended a special committee meeting to help plan and execute a fund-raiser to help those with NF in the Houston area. The fund-raiser will be held on Tuesday, April 22, 2008, at the Hotel Derek, in the Galleria area of Houston.
I am proud to be Honorary Chairman of this important event and I hope all of my friends can join me in this very worthy cause! Below is a letter from our Houston Highlights Chairman, Ishma Blackwell, detailing the event. It’s going to be a lot of fun!
DOWNLOAD INVITE 2438_001.pdf
PLEASE HELP ME & THE TEXAS NF FOUNDATION SET-UP HOUSTON NF SUPPORT GROUPS AND EVENTS
Dear friends, while I was up in Dallas last week helping with the Denise Terrill Golf Classic benefitting NF, I got to talking with a few members of the Texas NF Foundation and we think it’s time that Houston had their own NF support group again.
Back in the 90’s, the Texas NF Foundation actually had an office here in Houston to help those in the area afficted by NF to get the medical help they needed. And just as important. support in their daily lives. Continue reading
Uncle John Turner Benefit at Dan Electro’s Guitar Bar
Lou and I went to the Uncle John Turner Benefit at Dan Electro’s Guitar Bar today and had a blast! Uncle John Turner is a pretty famous drummer who is in dire need of a liver transplant. Uncle John has played and jammed with some really cool dudes like Johhny Winter, B. B. King, Jimi Hendrix, Freddie King, Muddy Waters, Junior Wells, Lightnin’ Hopkins, Johnny Copeland, Albert Collins, James Montgomery, Paul Nelson. and many more.
Yesterday afternoon was my first Blues concert! I got to hear some terrific music with Lou. I thought, this would be the perfect chance to reach more people, and tell them about NEUROFIBROMATOSIS. I said sure. Oh wow! I’m happy I went. I met so many nice people who treated me just as I want to be treated. No one stared, No one laughed, Only one seemed uncomfortable setting next to me. I met a lot of people, who I would never have met if I had not gone to the concert. The music was great. What a great benefit! I was proud to be there to help support the cause.
Some of the performers who donated their time and talent include Sonny Boy Terry with Little Ray Ybarra, Paul Orta, Texas Johnny Brown, Hightailers w/Little Screaming Kenny, Jerry LaCroix, Ezra Charles, Michael Milligan & the Altar Boyz, Rehabiliteens w/TC Cannon, Allison Fisher Orch w/Teri Greene, Erin Jaimes, Eric Tessmer and Gary Clark Jr. EMCEE was KPFT 90.1 FM’s Blueshound
Click here to see photos from the benefit and help me identify some of the performers! More info: www.uncathon.com
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