neurofibromatosis cafe

A place to talk about NF, have fun and share.

wee lou makes the decision of her life

Wee Lou “Louise’ Cunningham

On Jul 24, 2008, at 8:39 AM, wee_lou_c wrote:

No unfortunately i had the scan yday and it said the tumor has
grown very large now because of this i would be cut off from the
things i call life also there wud have been a much heavier risk of
me dying straight away today. So i have chosen not to have this but
live slightly longer 2 years at the most and enjoy my family
friends and things i enjoy doing.   I thot my outcome would be so
much brighter but yet again i have to keep fighting to enjoy wat i
have left. Dont be sad.

Wee

Wee, am sad but in a way happy that at least the next two years will
have a quality of life that is better than if  you had the
operation. I wish I was as brave as you, Louise, to calmly say I have
two years left at the most. I wonder if there is a way to get your
records shipped to M.D. Andersen Cancer Center so our NF doctors here
could take a look at them. Are you flying back now or driving?

Lou

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July 28, 2008 Posted by | Friends, neurofibromatosis, nf | , , , , | 13 Comments

Charles and Aaron Neville are my new best friends!

Thanks to my friend, Matt, and the tour manager of the Neville Brothers, I received several autographed photos of myself with Charles Neville the other day. I received Aaron’s yesterday.

I had sent the four brothers autographed photos of me with each of them and had them framed. I also sent some extra for them to sign and send back.

Charles Neville signed two extra copies and took time to express mail them back. It means a lot to me that someone as famous as Charles would take the time to sign photos, write a thank you note and then send it to me from a UPS station in Massachusetts. In fact, he even called to make sure he had the right address! Now, how nice is that?!!

Charles, Aaron and the Neville Brothers are the kind of musicians and role models that I am proud to call my friends.

Thank you Charles and Aaron for being so kind and caring.

Long Live the Neville Brothers!!!

May 30, 2008 Posted by | Celebrity, Music, neurofibromatosis | , , , , , , | 16 Comments