neurofibromatosis cafe

A place to talk about NF, have fun and share.

It’s time for Doodle Day USA benefitting neurofibromatosis!

Reggie Bibbs


Reggie Bibbs is a highly inspirational man living in Houston, Texas. He was born with neurofibromatosis (NF), a genetic disease which causes him to develop tumors on his body. NF can be a subtle disease, but in Reggie’s case it has left him with a disfigured face. After years of public frustration, he launched a unique one-man campaign to call attention to this disease.

“I have neurofibromatosis. It’s a disorder that causes tumors to grow along my nervous system. In my case, it’s fairly disfiguring. When I would go out in public, people would stare or, worse, walk away. So I came up with an idea for a t-shirt and the rest, as they say, is history.”

With the help of a friend at a local advertising agency, Reggie Bibbs created a t-shirt that would invite people to come up and talk to him about his disorder. “I figured the more they knew about my disease, the more they would understand me.”

“When Reggie called me with the idea for a t-shirt that read, ‘Just Ask’, I literally had tears in my eyes, said long-time friend Lou Congelio, president of STANANDLOU Advertising. The idea was so simple and so powerful that I immediately offered him a position in the company.”

The t-shirt features on the front an abstract outline of Reggie’s face and, on the back, large type that simply says,’JUST ASK!’. Also included on the back is the url for Reggie’s website,

Today, Reggie is also on MySpace and Facebook and has an online store on his website. He’s been interviewed by Wikinews too.

Earlier this year, STANANDLOU and Reggie won 2 Gold ADDY Awards, one silver ADDY, and a Special Judges Award for Public Service Adversiting for their new “Just Ask” ads!

Reggie said, “I am thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about NF as we keep pushing forward. Thank you all for supporting the site with your visits.”

On April 14, 2009, the Just Ask Foundation became exempt from Federal income tax under section 501(c)(3) of the Internal Revenue code.

To learn more about NF and Reggie, visit Reggie’s award-winning website and join him and his friends at the Neurofibromatosis Cafe.

Mari Garcia


Gillian Andersen Website

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April 26, 2009 - Posted by | Fundraising, neurofibromatosis | ,


  1. Nice drawing, Reggie!

    Comment by Lou | April 26, 2009 | Reply

  2. Thank you Lou. Not much of a drawer, but I hope it will help raise money for doodle day.

    Comment by Reggie Bibbs | April 27, 2009 | Reply

  3. Starting Friday May 1 NF AWARENESS MONTH

    Comment by JohnP | April 27, 2009 | Reply

  4. Hi Everybody Im here to spread joy and sunshine and harrass Lou lol

    Comment by Shelley | April 27, 2009 | Reply

  5. Shelley, I’d like to know how you can be spreading joy and sunshine at the same time you’re harassing me? Now, if you were harassing Reggie, which, by the way, I strongly endorse, that would indeed be spreading joy and sunshine!

    Comment by Lou | April 27, 2009 | Reply

    • Mr Lou harrassing you would be sunshine and joy for everybody else

      Comment by Shelley | April 30, 2009 | Reply

  6. when do i get my just ask tank top?

    Comment by shana | April 27, 2009 | Reply

  7. I think we need to forget about harassing and think more on how we can get that tank top Shana has been JUST ASKing for.

    Comment by Reggie Bibbs | April 27, 2009 | Reply

  8. thanks reggie, it’s about time i got some luv on here.

    Comment by shana | April 27, 2009 | Reply

  9. i will wear it everyday in may since it is awareness month. the smell alone will get everyone asking.

    Comment by shana | April 27, 2009 | Reply

  10. Shana, I will make you your very own Just Ask tank top. Of course, it may be a little more open to the public than you’re used to but it will be a custom job just for you and I’ll even autograph it for you!

    Comment by Lou | April 27, 2009 | Reply

  11. Lou do you make all of your own tank tops, you know the ones you wear on the weekends?

    Comment by Reggie Bibbs | April 27, 2009 | Reply

  12. This is as close as I get to wearing a tank top.

    Comment by Lou | April 27, 2009 | Reply

  13. Congratualtion Reggie, you draw very well. I hope the The doodle day will bring you lot of money.
    You receive lot of comments in your site. Do you know all the people who write?
    I say my sympathy for the Americans and Mexicans about this diseaese. Do to care my friends! Kind regards Francis

    Comment by Boyer-Madrieres.Francis | April 28, 2009 | Reply

  14. # 12 Thanks Lou I’m sure we all needed to see that.

    Comment by Reggie Bibbs | April 28, 2009 | Reply

  15. # 13 Thanks Fraancis, I will read your text.

    Comment by Reggie Bibbs | April 28, 2009 | Reply

  16. Hey Francis,
    My name is Shana Turner and I am a friend of Reggie’s. I just looked at your site and of course I had no idea what it says but I think it is great that you are out there spreading the word also! I am pretty sure I at least figured that out from your pictures! Have a great day! -Shana

    Comment by Shana | April 28, 2009 | Reply

    • Thank you very much Shana
      I’m glad you think my blog is great. Don’t forget to visit it from time to time! Great day for you. Kind regards francis

      Comment by Boyer-Madrieres.Francis | April 30, 2009 | Reply

  17. Shana, Kevin Nealon is going to doodle for NF. He also told me to let him know the next time I’m in Los Angeles so we can meet again. Pretty cool wouldn’t you say? Can’t wait to see what he is going to draw.

    Comment by Reggie Bibbs | April 28, 2009 | Reply

  18. NO WAY!!!!!! That is FABULOUS Reggie!!!! I am very excited for you. You must feel great knowing that you have done such a great job sharing the message! Once again, I will have no problem escorting you there. :) (not that kind of escorting reggie!)
    I have checked out the other doodles yesterday. Let me know when his is up!

    Comment by Shana | April 28, 2009 | Reply

  19. Shana, think of all the fun that could be had, if you was to go to California with me. If would be so stories to tell here. Only the ones we can talk about.

    I will let you know when Kevin’s doodle is posted.

    Comment by Reggie Bibbs | April 28, 2009 | Reply

  20. Lou you need the harrassment everybody else get joy and sunshine

    Comment by Shelley | April 28, 2009 | Reply

  21. alright guys,
    i am bored at home with the kids. any suggestions on what i can do before i go CRAZY? there is only so many rounds of ring around the rosy i go through before it does not make me giggle anymore.

    Comment by Shana | April 28, 2009 | Reply

  22. no need to fear Reggie is here!

    Comment by Reggie Bibbs | April 28, 2009 | Reply

  23. Hey Reggie glad your here

    Comment by Shelley | April 28, 2009 | Reply

  24. Hi Shelley, I was in the chat area last night. I have to be there more often now. Someone may want to chat.

    Comment by Reggie Bibbs | April 29, 2009 | Reply

  25. Reggie Shana and I are gonna harrass Lou big time

    Comment by Shelley | April 29, 2009 | Reply

  26. jerry will definitely be here on may 4th.

    Comment by shana | April 29, 2009 | Reply

  27. Shana, That is good. I leave for Grand Rapids MI on May 7th. Maybe all of us can get together before then.

    Comment by Reggie Bibbs | April 29, 2009 | Reply

  28. looks like you are going to have to change your trip around reggie.
    we can do it the following weekend. . .
    what are you doing in grand rapids?

    Comment by shana | April 29, 2009 | Reply

  29. There is a group in Grand Rapids that has a race for nf. There will be a group meeting and the want me to talk about JUST ASK, and everything we are doing to bring awareness to nf. The first few days you have something planed? I leave on the 7th in the late evening.

    Comment by Reggie Bibbs | April 29, 2009 | Reply

  30. he will be here for a while i think so we will just stay in touch. . .

    Comment by shanster | April 30, 2009 | Reply

  31. That’s cool. I really would like for all of us to visit. I think Jerry would be proud how all of us connected and now are friends.

    Comment by Reggie Bibbs | April 30, 2009 | Reply

  32. (_)? (_)? (_)? (_)? (_)? fresh Starbucks

    Comment by Shelley | April 30, 2009 | Reply

  33. Good Morning to all. Has anyone else been to the doodle website for nf? The are adding new ones everyday. I’m watching For Kevin Nealon’s doodle.

    Comment by Reggie Bibbs | May 1, 2009 | Reply

  34. Havent seen Kevin’s yet. I guess it will take awhile.

    Comment by Lou | May 1, 2009 | Reply

  35. Maybe in the next few days we will see it.

    Comment by Reggie Bibbs | May 1, 2009 | Reply

  36. Hey yall Im here to harrass Reggie

    Comment by Shelley | May 1, 2009 | Reply

  37. Again! gee give me a break for crying out loud. LOL

    Comment by Reggie Bibbs | May 2, 2009 | Reply

  38. I just wanted to be the 38th commentor.

    Comment by Lou | May 3, 2009 | Reply

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