neurofibromatosis cafe

A place to talk about NF, have fun and share.

Dr. Bart Moore, “Just Ask!” and the Children’s Tumor Foundation

Hey Reggie!
I was at the Children’s Tumor Foundation (formerly National NF Foundation) meeting with Dr. Slopis in Florida. I gave a talk on brain imaging in children with NF.

Dr. Riccardi was there also and he ended his talk with these photos of you and him wearing the Just Ask T-shirt. Well, he might have upstaged me, but when I got up to speak I was actually wearing the shirt !! Dr. Slopis took a photo of me wearing it. I even turned around and pointed to the “Just Ask” like you do and everybody clapped. It was really cool and I wish you could have been there. I also ended my talk with the attached slide (Moore CTF fMRI presentation).
There were a lot of important NF researchers and doctors there.

The meeting is still going on but I had to come home and wanted to get you these photos for your website, if you want.
Vic”s slide and my slide both had your website on it so you may be getting some visitors.
Best,
Bart

June 9, 2008 Posted by | neurofibromatosis | , , , , , , | 17 Comments

URGENT!!! NF NEEDS YOUR HELP!!!! Deadline: Wed, April 9!

Just received this from my friend, Dr. Moore, at MD Anderson. I’m writing my letter now! I hope you can too! Here are 2 links that will make it real easy for everyone to send a letter!

Or, scroll down to the bottom of this blog and you’ll find ready-made letters to key subcommittee members . All you have to do is replace Lou’s Name and Address with your own then FAX it to the number on the letter. It’s that easy! Continue reading

April 7, 2008 Posted by | neurofibromatosis, nf | , , , , , | 67 Comments