neurofibromatosis cafe

A place to talk about NF, have fun and share.

Reggie’s Meeting at Lou’s Office

reglousmall.jpgToday, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

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January 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Awareness, Benefit, Blogs, Friends, Friends of NF, neurofibromatosis | , , , , , , , | 210 Comments

TEXAS NF FOUNDATION’S CAMP FOR ALL WEEKEND.

horse_2.jpgI wanted to let you know we are home from a TERRIFIC weekend at aShelley
wonderful place called CAMP FOR ALL, In Burton Texas. It is an amazing place for persons with disabilities. I would give this place a five star rating. A big thank you to the kind staff. It was my first time and will NOT be my last time. Looking forward to next year. I also want to thank the Texas Neurofibromatosis Foundation for Helping my family to be a part in the Fun. 🙂 Let spread the word and try to have more campers next year. I hope you will join us next year. You will love it. PHOTOS

September 9, 2007 Posted by | Awareness, Friends, neurofibromatosis, NF1, NF2 | , , , , , , , , , , | 201 Comments

NF CAMP THIS WEEKEND

729368094_5026a66232.jpgHey guys and gals Just want to let you know where I will be this weekend. Burton Texas for the annual NF Camp. It’s been years since my last NF camp, and I’m happy to have this chance to go this year. I will get to see a lot of my friends from the other times I have gone. If you are not able to attend, don’t worry I plan to take lots of photos that you can see here and on my photo page. And all of you that can’t make it this year I hope you will plan to come next year. So lets talk camp today.

September 6, 2007 Posted by | A MESSAGE FROM REGGIE, Friends, Fun, NF1, NF2, Texas NF Foundation | , , , , , , | 51 Comments

Texas NF Foundation, NF Family Camp, September 7-9, 2007

camp_all.jpgNF FAMILY CAMP, CAMP FOR ALL
SEPT 7 – 9, 2007, Burton, TX

Texas NF Foundation is thrilled to bring you the 16th Annual NF Family Camp. The purpose of this camp is for families affected by NF to connect with one another in a place where our commonality is NF. It will be a time to learn and laugh as we make meaningful relationships with new friends and grow closer to our own families. Continue reading

May 20, 2007 Posted by | Favorite Places, Friends, Fun, neurofibromatosis, Texas NF Foundation | , , , , , , | 5 Comments