neurofibromatosis cafe

A place to talk about NF, have fun and share.

Reggie’s Meeting at Lou’s Office

reglousmall.jpgToday, Lou and I had a meeting about the blog, website and future plans. Everything went Terrific!

While at STANANDLOU, we took a few pictures after the meeting. I’m looking forward to the exciting things we have planned for the website. Of course, I came up with most of the ideas so don’t give Lou all the credit.

Anyway, I will be heavily involved helping the Texas Neurofibromatosis Foundation with their search for a cure for NF. I want to help with their events for 2008. I know I will go to the NF camp this summer.

If you are a regular on my blog, it might be a good idea to start spreading the word about the blog to your friends that have NF. The blog is a good place to find out about upcoming events and also just to share information and have fun, too!

I think people have fun here even if they don’t have NF. Just ask Shelley, Arthur and Lou. Never mind, don’t ask Lou!!!

January 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Adgiant, Awareness, Benefit, Blogs, Friends, Friends of NF, neurofibromatosis | , , , , , , , | 210 Comments