neurofibromatosis cafe

A place to talk about NF, have fun and share.

May is National Neurofibromatosis Awareness Month

10905hnnmayfinal.pdf

March 1, 2008 Posted by | Awareness, CTF.ORG, Friends with NF, http://www.ctf.org, Laurie Selzer-MNI, neurofibromatosis | 1 Comment

Texas NF Foundation presents $90,000 check to MD Anderson

thecheck6.jpgToday I was invited to join members from the Texas NF Foundation and doctors from MD ANDERSON HOSPITAL for a special presentation.

Minerva Terrill, a board member of the Texas NF Foundation, presented a check for $90,000 to the hospital for NF research. This is something all of us who are affected with NF can be very excited about.

Great researchers and clinicians are out there looking for a cure and there are great people like Minerva and Cindy Hahn who are doing what they can to raise the funds needed to fund that research. We have a lot to look forward to. Stay tuned! I know more good news is ahead.

June 21, 2007 Posted by | Awareness, CTF.ORG, Friend, Friends, Fundraising, http://www.ctf.org, Medical, neurofibromatosis, News, nf, NF Bulletin Board, NF1, Photos, Research, Texas NF Foundation | 5 Comments

May is National NF Awareness Month!!!

Neurofibromatosis: New Research, Clinics Offer Hope

 
 

logo-default.jpgNewswise — After ten years and $217 million worth of “bench to bedside” research, there are signs of hope in the medical community and among the 1 in 3,000 individuals worldwide who have neurofibromatosis (NF), a serious neurological disorder that causes tumors to grow on nerve sheaths throughout the body, according to the Children’s Tumor Foundation (CTF). And, that is something to celebrate during May, 2007 which is National NF Awareness month. Continue reading

May 9, 2007 Posted by | CTF.ORG, http://www.ctf.org, neurofibromatosis, News, NF1, Texas NF Foundation, Uncategorized | 15 Comments

MORE ON THE NF SYMPOSIUM

Elizabeth Bertrand during Dr. Slopis Q&AThe NF Symposium was terrific! I want to talk about how I felt meeting so many new people I can now call my friends. At the symposium, one of my new friends purchased five of my shirts in support of my JUST ASK campaign. I received tons of wonderful messages on the Children’s Tumor Foundation bulletin board. I’m happy to be a part of the board and meeting new friends. You can see from the photo the three of us are happy campers.

May 9, 2007 Posted by | A MESSAGE FROM REGGIE, CTF.ORG, Friends, http://www.ctf.org, neurofibromatosis, News, NF1, T-shirt | 1 Comment