neurofibromatosis cafe

A place to talk about NF, have fun and share.

URGENT!!! NF NEEDS YOUR HELP!!!! Deadline: Wed, April 9!

Just received this from my friend, Dr. Moore, at MD Anderson. I’m writing my letter now! I hope you can too! Here are 2 links that will make it real easy for everyone to send a letter!

Or, scroll down to the bottom of this blog and you’ll find ready-made letters to key subcommittee members . All you have to do is replace Lou’s Name and Address with your own then FAX it to the number on the letter. It’s that easy! Continue reading

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April 7, 2008 Posted by | neurofibromatosis, nf | , , , , , | 67 Comments

FRIENDS AND DOCTORS WITH MY T-SHIRT

p1010002.jpgp1010001.jpgI had a TERRIFIC! day. I went to where my brother Byron is employed, Macks Transmission. I had a chance to talk to Byron for a short time. My visit was with my friend Jerry T, who works in one of the offices. Cool guy. Here I’m posting the photos of my friends that bought shirts today. But that’s not all. I also saw my doctor at MD Anderson.

Dr. Diwakar Balachandran has been very supportive of my work with nf awareness. Thank you Dr. Balachandran and Jerry!!!

April 24, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, Friends, neurofibromatosis, T-shirt | , , , , , | 16 Comments