neurofibromatosis cafe

A place to talk about NF, have fun and share.

NF Wins Big at Houston ADDY Awards, 2/21/09

3113186027_14aa8999fd_oSaturday night was the 47th Annual Houston ADDY awards. It was the night of the stars. The American Advertising Federation honored Lou’s former boss, Don Brown, of Taylor Brown & Barnhill, while Only In Houston honored Steve Farrell, of Radio Music Theater, who is also one of the funniest guys I have ever seen. I met him after the ADDYs when Lou and I went to the theatre to present him with his award.  Steve is a great man and I was proud to meet him and his family.

But wait,  there were more winners Saturday night!3304599442_cee3e331b9_b

STANANDLOU and I won two gold ADDYs, one silver ADDY, and a Special Judges Award for Public Service Advertising for our new “Just Ask! ads! . That was a total surprise to me. I’m thankful that the work here on the Just Ask campaign is getting noticed. More people will learn about nf as we keep pushing forward. Thank you all for supporting the site with your visits.

February 23, 2009 Posted by | ADDY Awards, neurofibromatosis | , , , , | 81 Comments

NEW 2009 “Just Ask!” AD CAMPAIGN!

3113186003_d13b1727a7_oWe are in the last month of 2008. I’m excited for what we are planning for 2009 and the JUST ASK! campaign. We have just designed a new ad campaign with new photos and messages. The photo shoot was donated by professional photographer and friend, Greg Gorman of Los Angles California.

The new ads will be sent as a public service announcement to a variety of publications throughout the country. Also, we have entered them in the American Advertising Federation award show. The ads will compete with ads from all over the country. This is a great thing to happen, whether we win or not, because our message will be seen from people all over the world. Which means, more people will know about NF. The ads are strong and to the point.

In 2009 I look forward to a bright New Year. We will have a new look. We started with the new t-shirt design. The website will be bright as well. I hope that you will join me in making 2009 brighter. We have the same cause. Awareness of Neurofibromatosis.

CLICK TO VIEW ENTIRE CAMPAIGN

December 17, 2008 Posted by | ADDY Awards, Awareness, Blogs, Greg Gorman, Just Ask!, neurofibromatosis, PR, T-shirts | , , | 51 Comments

ADDY AWARDS

awards2.jpgI thought it would be nice to show some of the addy awards we won in neurofibromatosis. The awards are for the PSA and the work that is going on with the website. It is because off all the support you are giving. keep visiting my site and the blog. I thank you for your support

This show that we are starting to get notice. This is what we want. Its only the beginning. It a start of something big. I’m sure there will be more to come. You can rest a sure I will post the others when we receive more.

June 6, 2007 Posted by | About Me, ADDY Awards, Awareness, Fun, Fundraising, neurofibromatosis, nf, NF1 | 3 Comments

GUESS WHO’S IN THE CHRONICLE THIS MORNING ?

Reggie article 3/1/07Well, not to gloat, But all of you that have been supporting me, by viewing my website and my blog. I want to let you know The Houston Chronicle is running an ad on me. I’ am so thankful that we are getting information to the public about nf. This week you can see the article, if you are the areas of, HOBBY AREA SUNNYSIDE / PARK PLACER/UH/TSU/ALMEDA/GULFGATE. Would like to hear from anyone who reads the article and tell me your thoughts.

Click to view Chronicle article 3/1/07

March 1, 2007 Posted by | ADDY Awards, neurofibromatosis, News | 5 Comments

Reggie Bibbs receives Gold Addy Award

Feb. 22, 2007, 10:15PM
Reggie Bibbs receives Gold Addy Award
Second Baptist Church member honored for advertising campaign

By KIM HUGHES
Chronicle Correspondent

reggieaward2.jpg

Reggie Bibbs, a member of Second Baptist Church on Woodway, was looking fine in a suit and tie recently when he went on stage to receive a Gold Addy Award for his advertising campaign to raise awareness of a disfiguring disorder called neurofibromatosis.

It was a dressy affair at the Hyatt Regency Hotel downtown, which is why Bibbs, 42, wasn’t wearing the T-shirt that won him the award.

On the front is an abstract outline of Bibbs’ face, and on the back are the words “Just Ask.”

“I can see how people look at me, and they will just stare,” said Bibbs, who was diagnosed with neurofibromatosis as an infant, and has several tumors on his left leg and face.

“Some of them look at me like I’m an apparition. You can see they want to ask — but they don’t — and it puts both of us in an awkward position.

“I want them to know it’s okay to ask me what’s wrong (with me).”

Originally from Houston, and still living in the same house he in which he grew up, Bibbs said his mother first noticed something was amiss when she would try to put his shoes on his little feet.

His left shoe just couldn’t go over his foot very easily, and he would cry whenever she tried.

Bibbs was diagnosed with neurofibromatosis when he was about 1-year-old.

According to the National Institute of Neurological Disorders and Stroke at www.ninds.nih.gov, neurofibromatosis affects an estimated 100,000 Americans and occurs in both sexes and all ethnic groups.

It’s a genetic disorder of the nervous system that causes tumors to grow, and can produce other skin abnormalities and bone deformities.

“They told her there was no cure for it, and the only thing they could do was follow me,” Bibbs said.

He was fitted with special shoes, and Bibbs has since undergone about 10 surgeries to remove tumors from the roof of his mouth, his leg, nose and eye.

Bibbs said surgery is not usually a recommended course of action, because doctors believe removal of existing tumors propagates growth of new tumors.

Growing up, Bibbs said his five brothers and sisters were protective of him, and he knew at a very early age there was something different about him.

“I knew my eyes did not look like my brothers’ eyes, I knew I couldn’t see very well out of the one eye,” Bibbs said.

“Different parts on me were bigger. And as I grew, the tumors grew.”

Bibbs recalls the day, when he was about 10, when his brothers were tromping through mud puddles, leaving bare footprints on the sidewalk.

“My footprints, one would be the regular size and the other one would be really big,” Bibbs said.

“I would wish I could make the same kinds of footprints everyone else was making.”

Bibbs learned to accept and love himself, with the help of his mother, siblings and neighbors.

“We did a lot of praying and trying to encourage Reggie to just not worry about it,” said Dorothy Bibbs, 70.

Reggie and Mom in “Just Ask!” t-shirt.

“He always had someone with him wherever he went, and the neighbors were very helpful. They didn’t see him as having a deformity.”

Bibbs also credits his faith for getting him through.

“I know that God has really blessed me in so many ways, that I cannot begin to really express it,” Bibbs said.

“He has given me strength just to go on, and I have met so many wonderful people.”

That includes Gary Moore, senior associate pastor.

“Reggie is so faithful and he’s always here,” Moore said. “You look out there, and Reggie’s just out there smiling.

“Faith points you to a different life, and he is an opportunity for people to show what they’re really made of.”

But Bibbs said not all people can see past the physical.

“Just recently I was driving along, dropping my nephew off at the bus stop, and I was at a light,” Bibbs said. “I happened to glance over to my left, and I see a car full of guys laughing.

“I was just shocked. I don’t understand why someone would laugh. I can understand if someone is afraid or curious or something like that. But laugh? I just don’t understand that.”

If you see him, he said, don’t laugh, he said. “Just ask.”

Reggie Bibbs

• Age: 42

• Community connection: Member of Second Baptist Church on Woodway

• Fast fact: Bibbs recently received a Gold Addy Award for his advertising campaign encouraging people to “Just Ask”

• Quick Quote: “I thought his T-shirt idea was brilliant. He’s trying to answer a question before the question is even asked” — Lou Congelio, owner of STANANDLOU Advertising, 1001 West Loop South.

Info: For more information: www.reggiebibbs.com , or e-mail reggiereggiebibbs.com

Link to article in chron.com

February 26, 2007 Posted by | ADDY Awards, neurofibromatosis, News | , , , , , | 7 Comments

THE WINNER IS……

Addy Awardmeandarthur.JPGstanandlouandreg-group.JPG

Last night was the 45th Houston Advertising Federation ADDY Awards. It was a terrific! night. I’s a big deal for me. I thank all of my friends that helped make this happen. You know who you are. I wasn’t the only one there. If you were at the event, please let me hear from you.

February 18, 2007 Posted by | ADDY Awards, neurofibromatosis | , , , , , | 8 Comments

ADDYS THIS WEEKEND

The ADDY Awards program will be this weekend. I will be there, with crossed fingers. I hope to be one of the recipients of these great awards. Although I have been lucky enough to attend a few years ago, I still feel a little nervous about the big day. If I don’t win this year, it’s OK. I know I will enjoy myself. I look forward to meeting new people, who I know will become new friends to me. Wish me luck, but don’t say “break a leg.” I only have one good leg. k. Any one have ideas on how to get over the nervousness?

February 15, 2007 Posted by | ADDY Awards, neurofibromatosis | , , , , , | 4 Comments

Addy Award Nomination

Guess what!

Lou Congelio just called me. He is president of STANANDLOU Advertising, the agency thatreggiebibbswhoami2.jpg helped me develop this Web site. This site has been nominated for an Addy award and the awards ceremony is on February 17. Lou and I are invited to a dinner and an awards presentation.

I am really excited about the nomination. Winning would be a great honor, not just for me, but for everyone else who has NF. People with NF and other disfiguring conditions find it difficult to do everyday tasks, and this site increases public understanding of the hurdles that we have to overcome.

Thumbs up If we win, I will accept the award on behalf of Ronnie, my brother who had NF and cancer. He died in September of 2006, and I miss him a lot. One of the benefits of this site is to tell everyone that people with NF may be susceptible to developing cancer. NF itself is not life-threatening, but if you have it, you need to be in the care of a physician and alert him or her if anything changes about your condition.

Do you have NF? Do you know of someone who does? If yes, tell me your story. I will be thinking about you at the awards ceremony.

February 7, 2007 Posted by | ADDY Awards, neurofibromatosis | 7 Comments