neurofibromatosis cafe

A place to talk about NF, have fun and share.

Ok, Reggie, whose butt did you have to kiss for this?!!

www_sticker_tk_kiss_my_ass-1.jpg

Reggie,

Per our conversation on the phone, I would like to welcome you to the Honorary
Board of the Texas Neurofibromatosis Foundation. It is a privilege to have you on the board.
The foundation appreciates all you have done for Texas NF and NF awareness.

We look forward to working more with you in the Houston area.
Talk to you soon.

Cindy Hahn, M.Ed., Managing Director, Texas Neurofibromatosis Foundation Continue reading

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January 17, 2008 Posted by | About Me, Awareness, Fundraising, neurofibromatosis, nf, NF in the News, Organizations, Research, Texas NF Foundation | , , , , , | 218 Comments

Watch ABC/Channel 13 tonight for my interview with Christi Myers!!!!

1832058392_4cc394534e.jpgThat’s right! Tonight on channel 13 my interview with Christi Myers will air. It should be around 6:30pm and 6:45. The interview want very well. We filmed in my bed room, as I was working on my website. I’m looking forward to your comments on the story.


CLICK HERE TO SEE MORE PHOTOS!

CLICK HERE FOR TV INTERVIEW

November 2, 2007 Posted by | A MESSAGE FROM REGGIE, About Me, Awareness, Just Ask!, neurofibromatosis, News, nf, NF in the News, PR | , , , , , , | 149 Comments