neurofibromatosis cafe

A place to talk about NF, have fun and share.

Last Night at PJ’s!

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My New Friends, Tony and Jenny!
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My friend Carmen Geddit of the Houston Roller Derby.

At left are new friends I met last night, Tony and Jenny.

The other couple I have known for years, Carmen and James.

My new friends just came over and sat next to Lou and me. Never bringing up the subject of what happened to me.  Lots of times it is no longer a subject.  Lou and I brought up the fact that I have Neurofibromatosis. They were so understanding and kind.

I feel great that I no longer stay home in fear of what someone will say to me.  It I felt that way,  I would have missed out on meeting the great people I have met last night and in the last few years.  My life has finally begun. I didn’t give people a chance before. This is why I started Just Ask, to encourage others that have NF to live life to the fullest. I’m doing it and I encourage them as well.  We can support one another in everything we do.

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February 20, 2009 Posted by | neurofibromatosis, PJ's | , , , | 19 Comments

Psych Ward Sirens #1 in our Hearts!

Last night’s Houston Roller Derby championship bout between the Psych Ward Sirens and the Bayou City Bosses was one for the ages! I thought the Sirens just might pull it out in the end but with 45 seconds left in the bout, two Sirens were in the penalty box allowing Death by Chocolate to run out the clock.

Both teams rocked last night! Although the Sirens may not of won, they certainly came out as winners. I’ve never seen more heart and passion in a sport than what I saw last night.  I think Mistilla the Killa gave Holla-Pain-Yo a complex last night! Every time I looked up, Mistilla was introducing Holla-Pain-Yo to the floor. And Carmen Geddit was steady as a rock!!! All night long. Never giving up. Incredible performance! Jekyll & Heidi had an incredible jam in the first half helping to keep the score close. Congratulations to the Bosses! Both teams played their hearts out.

PHOTOS

September 29, 2008 Posted by | neurofibromatosis | , , , , , , , , , , | 6 Comments

HOUSTON ROLLER DERBY HONORS REGGIE BIBBS THIS SUNDAY NIGHT! TICKETS ARE GOING FAST, GET YOURS TODAY!!!

Speaking of the roller derby, mark your calendar for August 10 as the Houston Roller Derby honors a certain person on this blog who will remain nameless.

Houston Roller Derby

Sunday, August 10

Doors open at 4pm

Bout starts at 5pm

Verizon Theater

Downtown – Texas at Bagby (LOTS OF STREET PARKING AND THEATER PARKING)

DON’T FORGET TO WEAR YOUR “JUST ASK!” T-SHIRT!!!

Please make plans to attend and wear your Just Ask! t-shirt. Don’t have one, no problem! We hope to be selling them before the match!Advance tickets are just $10 online, $15 at the door!

Come see all of your favorite skaters including Dementia, Mistilla the Killa, Jeckyll & Heidi, Carmen Geddit, Death by Chocolate and more!!!

SPECIAL THANKS TO ALL THE SKATERS, FANS, REFS AND FRIENDS WHO HAVE MADE GOING TO THE ROLLER DERBY EVERY BOUT A WONDERFUL EXPERIENCE! YOU HAVE NO IDEA HOW MUCH THAT IS APPRECIATED!!!

August 7, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, News | , , , , , , , , | 22 Comments

“Hey big fella, do you have neurofibromatosis or are you just happy to see me?”

CAPTION CONTEST: WIN A JUST ASK! T-SHIRT!

Send us your best caption to this photo via the COMMENT section below, and you could win the first prize of one Just Ask! t-shirt!!!

Second prize is two Just Ask! t-shirts.

PHOTO: (l-r) Reggie Bibbs and the beautiful Carmen Geddit of the Houston Roller Derby.

Speaking of the roller derby, mark your calendar for August 10 as the Houston Roller Derby honors a certain person on this blog who will remain nameless.

Please make plans to attend and wear your Just Ask! t-shirt. Don’t have one, no problem! We hope to be selling them before the match!Advance tickets are just $10 online, $15 at the door!

Come see all of your favorite skaters including Dementia, Mistilla the Killa, Jeckyll & Heidi, Carmen Geddit, Death by Chocolate and more!!!

July 30, 2008 Posted by | Friends, Fun, neurofibromatosis | , , , , , , , | 40 Comments

My favorite photos from tonight!

Me and Desi Cration, Shana, Carmen Geddit, Jeckyll & Heidi, Frorocious and Dementia!!!

July 13, 2008 Posted by | neurofibromatosis | , | 24 Comments

Bayou City Bosses Fundraiser at Buffalo Fred’s Icehouse

Lou and I had an incredible time at the Bayou City Bosses Fundraiser last Saturday!

Everyone came up to us and said hi and posed for photos. I think Lou has a thing for Audiomind because he sure took enough photos of her!!! : >

Enjoyed talking with some of my favorite skaters including Carmen Geddit, Death by Chocolate, Sinista Sista, Mistilla the Killa, Audiomind and all the rest too numerrous to mention.

The next match is June 8th and Lou and I already have our tickets!!! If you’re interested in going, get your tickets today as they’re only going to sell 300 of them!

June 2, 2008 Posted by | Friends, Friends of NF, Houston Roller Derby, neurofibromatosis | , , , , , | 33 Comments

Houston Highlights – WHAT A BLAST!!!

Reggie had to go get his MRI so I thought I’d post some photos from last night until Reggie had an opportunity to write the blog about Houston Highlight. I will say that special, special thanks go to corporate sponsor, Continental Airlines, Tom Koch, anchor at ABC 13, the Houston Roller Derby, Del Frisco’s Double Eagle Steak House, Sullivan’s Steakhouse, Joyce’s Ocean Grill, Chef John Salazar, and the Spritz Bar & Grill House. Great food! Great entertainment! Great cause! Great night!!!

April 23, 2008 Posted by | neurofibromatosis | , , , , , , , , , , , , , , | 41 Comments