TEXAS NF FOUNDATION’S CAMP FOR ALL WEEKEND.
I wanted to let you know we are home from a TERRIFIC weekend at a
wonderful place called CAMP FOR ALL, In Burton Texas. It is an amazing place for persons with disabilities. I would give this place a five star rating. A big thank you to the kind staff. It was my first time and will NOT be my last time. Looking forward to next year. I also want to thank the Texas Neurofibromatosis Foundation for Helping my family to be a part in the Fun. 🙂 Let spread the word and try to have more campers next year. I hope you will join us next year. You will love it. PHOTOS
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neurofibromatosis cafe 
Glad you had a good time Reggie
It was great seeing you at camp after many years. This is lot better than the old camp, right ? Time is now for those who were unable to come to start planning for 2008.
I know more will come next year. What I love most is, you could always find a place to cool off. CAMP FOR ALL, RULES!
how long does this camp last, maybe I will be able to come next year
Patrica we had a blast. I’m sure someone will post about the great time we had. I would love to see you join in the fun next year.
I took a lot of photos of sll the fun. More will be added later. Check them out on my photo page.
Lookin’ tall in the saddle there, Reg!
Camp is just for the weekend, starting on Friday and ending on Sunday. I know, its too short of time. Again, we luck out of no rain. On the way home, the rain hit us as we got into the DFW area. I took close to 400 photos, I will try to send selected shots to Reggie. I believe the dates for 2008 will be Sept. 5 – 7.
Cool Thanks John.
hey Reggie email me and give me all the details as you said you would let me know when you came back from camp glad you had a good time I am seriously thinking about next year but don’t know for sure
John, can you upload your camp photos to Reggie’s Flickr account?
Reggie looks like cowboy on the horse
I put the cow in the word cowboy.
No, I think it’s more like you put the cow in the word “cow pattie.”
How about a cow pattie on your front porch in a brown patter bag.
Still think Reggie and Lou need a chaparone to keep them out of trouble
Shelley go take a look at the new photos from camp. My friend John provided me the latest photos. Thanks John.
Hey Reggie I was hoping that a pic of Lou with a cream pie in his face
Maybe get Lou to come to camp next year, and do the pie in the face, I will get that on film, or pixels…
I want to see THE dolls
hey Shelley I may be adopt me a boxer from the animal shelter here where I live by my house if I do I will be so happy
That would be cool Brian
I thik Boxers are cool, they really are cute, I hope you get one
I would love to have a Lab, Chocolate of White. Golder retriever. Are they all the same? Stanley would be a terrific dog to have as well. Lou knows who I’m talking about
Stanley is my daughter’s dog. He likes everyone, even Reggie! I guess there’s no accounting for taste even in the dog world. Stanley likes Reggie, dogs eat cat poop…you get the picture.
Hey Lou did you see the package? If you didn’t see it, then its not there.
Golden Retrievers and Labs are differnt but they are very good dogs, they both make excellent pets, I have had a couple of labs, my neighbor had a golden retriever, all good dogs
Why pick on Reggie ? lol
Because he’s there, Shelley.
Don’t get me started adgiant!
(_____)? (___)? (___)? (____)? fresh coffee
Shelley are you drinking any starbucks for me I sure hope so I hope you havent forgotten about me LOL
Yes I am Brian I would never forget about you
Brian you get your dog yet ?
not yet she dont come up for adoption till Wednesday but I am hoping and thinking I will get her soon thanks for asking Shelley
have you pick out a name yet?
yeah I thought about nameing her after my other boxer that died which was JoJo but not sure yet
Wondering if Reggie and Lou are behaving maybe not lol
I know I am. We all know Lou is not and never will. Thay is why he needs the pie.
Dont waste a pie throwing him in the pool would be better
No we lill like that with the hot weather we are having. I think the oie would be better.
I was talking about throwing him in the pool either Dec or Jan when its cold
Oh ok, that sounds like a winner. I’m still drinking coffee.
hey reggie its john from circuit city just topping by to ask hows the camera doing. like the pics
Hey John, Thank you very much I love my camera. My niece had her birthday party and I took pictures. Check them out on my photo page. Make sure you tell your boss I bought the camera because of you. You stop and offered to help me. You took your time and help me pick the right camera. I’m trying to figure out if I can make double exposers or mutable exposers. Again Thanks John and I’m sure you will see me again in the store. Check out everything my site has to offer.
hey, reggie what kind of camera do you have, i got a nikon d-50 a little while back, they no longer make that kind, i also got a book i just need to make time to read the book and practice,
hmmmmmm. double exposure….there was a way on the film cameras, but not sure on digital. I remember seeing something about over laying, but never tried it. These use different terms on digital vs film. Noise on digital and on film it is called grain.
Thanks John. I will just have to keep reading till I find out.
I should have ask you when I first thought about it. An expert around me and I didn’t think to ask.
Patricia I have a Canon Power Shot A560. I got it from Circuit City in Houston Texas.
Hey John L, thanks for taking good care of our friend, Reggie. After he came home from Circuit City, he gave me a call telling me about the wonderful treatment he received and the good advice. The camera you helped him pick out is great. Now if we can only get Reggie to starting taking photos of hot looking babes!
Oh yeah Lou
well, shelley i think if he takes pics of girls, he should also take some of hot man for us, i hear the houston fireman calender should be coming out soon, maybe he can ask them to pose. lol
True Patricia we need pics of the guys lol
hey Shelley I did not get the dog from the shelter I am going to save some money and buy a boxer puppy that way I can pottie train her and train her to be house broken I have been looking but some are to expensive I saw one ad for boxer puppies for 850.00 to much
That would be good Brian
Shelley when I get my boxer puppy I will take a picture and send it to Reggie and see if he will put it in his photos and you can see her when I get her
I would love that Brian
Reggie, I got think about double-exposures or in my NIKON D80 refers to multi-exposures. It can do that, then I look for my point and shoot digital camera (P4), there were no instructions since it probably means it can not do multi-exposures on it.
HI
Reggie, where the hell are you?!!!!
Lou hes getting a voodoo doll of you lol
Shelley, I wouldn’t be so quick to get on Reggie’s side if I was you…if you catch my drift. BRA-HA-HA-HA-HA!!!!!!!
Shelley I’m back After spending all day at md anderson. Feeling a lot better. When is Lou going to get it through that head if his. Everyone like me.
What was wrong Reggie
hey Reggie I am glad you are feeling better what was wrong why were you at MD Anderson all day
Reggie,
Glad you back hope everything is a lot better and hope you feel a lot better and a speedy recoverery,
Brian,
If you are still intersted in a box the Montgomery animal shelter has one, I was at petco and they were having one of their things, I talked to a lady and she said they get them all the time, it is $100 for females, and $95 for the males, that includes, all of the shots, fixing and a chip, the number is (936)442-7738 they have a site right off of 242 a little past The Woodlands
I hope you feel better Reggie
thank you a bunch Shelley I will look into that thanks again
i am sorry Patricia I thought it was Shelley I was not paying attention thanks a bunch Patricia again I am so sorry for the mistake please forgive me
no biggie Brian, thats ok no need to apolize it’s no big deal, and good luck
is the phone number for the lady at like home or is it the animal shelters phone number
Patricia I’m feeling better. I still have a few more days of meds. I’m trying my best to get cough up on what’s happing here. Have you heard from HIM! The adgaint.
No Reggie havent heard from Lou bet hes playing with the voodoo doll
no I have not, I guess he must be laying low lol
Brian, it was the number to the shelter, they said that they are open 7 days a week
how many dolls do ya think Lou has, he has’nt said hardly anythink in quite sometime
About 100 dolls Patricia
if we keep giving him a hard time he might name one of the dolls after us, lol
Keep after him. tell him reggie said come out to play.
LOL
Tell Lou Shelley said come play too
Lou where are you we want you to come out and play, we’ll be nice he he ha ha lol
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Lou Now everyone knows you. Not that is a good thing. They know who to pick on now. lol
BRING IT ON, COWBOY!
Glad you’re back, Lou
Oh it’s been brought! Lou!
Hey Yall
Hey there
Hey Yall
???????? I have only receantly really started researching NF, I grew up under the impression Nf was just a skin disease, my mother still cause it her skin disease, but since I have been having complications I have been surfing, I came across this website, nexgenispharm.com, NexGenix, could this be true or is it a hoax, I am looking for advice, what do yall think???????????????????????
I never heard of that site. I’m sure everyone would like to know how true it is. I will go take a look at it just to see what they are saying.
welcome back Lou and I have never heard of that website either
Thanks, Brian. Been busy.
Reggie do you call Lou on the phone every 5 mins ?
Busy making more voodo dolls???????? lol
Lou is making voodoo dolls Patricia
Shelley and Patricia: Could you post some photos of yourselves so I can be sure I get the likeness correct?
Ha Ha He He lol, Just make mine with salt and pepper curly shoulder length hair, go a head give me a beard and musache and put a black hat on top. that would be a good likeness for you to stick pins in lol
I would have to send my pic to Reggie
I want to see that doll if you make one Lou
for comment 98 Patricia is that a boss or something? lol
Meet Shelley, Thank you for the photo Shelley. I’m happy you are supporting the blog. Hope you are enjoying yourself.
No, I thought that kinda describe Lou lol
That is pretty good. How perceptive.
Thank yall for having me
All are welcome here.
It is good to feel welcome Reg, thank you so much, you are really doing a great job, It is nice to belong somewhere where you don’t feel so different from everybody else. Thanks Reggie
This is really good to hear. When I hear this from someone other then a family member or from friends I feel its really true. Some time I felt they are just saying that to stroke my ego. I guess that is not the case. I feel TERRIFIC! Thank you for the kind commend.
Amen Patricia
Reggie that pic of me was taken at Moody Gardens
Great picture Shelley.
Thanx Reggie
That’s a good pic, I have never been to Moody Gardens
You would like it there Patirica
It looks preety, one day I’ll go
One day I will go to Moody Gardens. What is it like?
Very nice your kids would like it there
my baby will be 21 on the 21st, I will probally have to wait for the grandchildren who are’nt here yet and I hope it will be quite sometime
Her birthday on Oct 21 ? My birthday is Oct 22
how cool, i hope you have a good b-day, we are planning on taking her to bennihanas, we already got her a digital camera, what was neet office depot had a sell going on we (she) got a $21 gift card for buying the camera, and it is also pink, I think it is going to be neeat she will 21 on the the 21st and got a $21 gift card to office depot lol
Shelley do you have plans for your B-Day
My sister has a birthday on the 21st. She is a little older then 21 though. I’m planing a trip for next year. Its going to be a big one. I will have to let every one guess.
The bennihanas sounds like a great place to visit. I had a friend that went and she loved it.
Maybe go eat seafood dont know what family bought yet
I love seafood, My family had a shrimp boat and fish house in my teenage years, i miss fresh seafood, my favorite seafood place is Babbins. I hope you have fun
I love shrimp fish and crab if its cooked right. Shrimp must be stuffed sea food must be fried. yummy.
AW Reggie
Really I do.
You can boil it, broil it, fried it, stir fried, bbq it, …. wait a minute, that line came from Forest Gump, where Bubba was telling Forest the many ways to fix shrimp..In Honlulu, there is a Bubba Gump Shrimp place, have not been there.
It may be better for you if you cook it with out frying it. bbq it sounds good.
Yall making hungry
I’m making myself hungry
omment to #130, fried is just about the best way, deep fried or covered with cream sauce, every way I like it best is not good for you I guess the old rule, if it taste good then is not good for you, lol
AMEN! If its friend and have a cream sauce it is sooooooooo good. Which make me think about the little wings hot wings diped in the white thick dressing. On my god. talk about good eating.
Hows everybody blood sugar and clestolal
Probably off the chart.
Yea mine too. Thank you John for adding comments to the blog as ofter as you do. Just like my other friends here.
my has the tendency to drop on the low side (45 the lowest i know about) my husband is diebetic (spl) but we should be on the same diet, which to me is just so wrong, i should be able to have all sugar i want lol
Reggie probably can also add to his experience. When I go to a new doctor, or emergency for what ever reason, they ask do you have any medical conditions. Oh yeah, I have Neurofibromatosis. They say Neuro – what ? How do you spell it? Thats N E U R O F I…….. Then what is it?
Just say I have it, I do not think this is related to what I am in here for. I find, that more dentist and some of there assistants know more and heard more about NF than the regular medical staff do at the hospitals. Maybe they come across to more NF patients since most (I say most because I dont) go to the dentist regularily (sp).
What makes is different for me is, When I went to the ER it was at MD Anderson. A hospital I go to on a regular bases. They know my medical history. I also go the dental clinic there. I guess you can say Lucky for me. I would hate to have to go to a hospital where they don’t know me. When I go to MD Anderson some of the workers there tease me. They say are you sure you are not an employee. I go alone with them and say. I feel like one.
Since 2001, been using the same primary doctor and the same neurologist so I usually do not have to go through the rountine, and last time for emergency been 6 years. I thought maybe like when we have those NF sysmposium (it was in Houston this year, next year 2008 will be in Dallas), to combine the symposium and camp together. Just a thought. But then, I rather do the horseback riding, other activites then listen to bunch of doctors talk which I would fall asleep anyway….lol
Reggie and John I dont have NF but I hate going to the DR as much as you do
Yea I know what you mean. No one likes to go to the doctor, Only if the are getting Terrific news.
Amen Reggie
Good doctors are hard to find I am in the market AGAIN, anyone know of a good one in Conroe, Texas,
Shelley I know you don’t have nf, but I know you would take it in place of your son, if I could I would take a worse case if it ment my daughter would not have it, watching our children with nf is so much painful then having it us ourselves, you are one of us, I feel like we are a family, and you are a part of the family. You, yourself may not have nf, but it does affect you. I bet you are a terrific mother
I myself dont have kids I have a neice who i love as my own
I enjoy being with yall
I am so sorry, sometimes I get confused, please forgive
I second that emotion! Shelley use to email me all the time. And I still get emails from her. I count Shelley as one of my friends. I ask her to comment on my blog and she has been very faithful to all of us, by being a part of this blog. Shelly may not have NF, but we love the support we get. Thank you Patricia thank you for your nice comment about Shelley.
I know my mom told me the same thing. She would take everything I had to go through. I say no way! I would say I would keep it the way it is. The only thing is that I would hope that I was the only one with NF. And my nieces and Nephews would not have to worry about the disorder.
Shelley I still think of you and this who blog as we are a family
dido! Me too Patricia. Shelley has to accept that she is in the fold. Family. I’m Sure she has already accepted that.
AW now yall are making me blush
I glad you’re back I thought i might have put my foot in my mouth, I am always saying something stupid. Sometimes it is best to ignore me, I really do get confusssed
I aint going anywhere I accept yall
Dont worry about it Patricia
Thank you everybody for having me
thanx
Your Welcome
Hey Shelley and all other Starbucks lovers, I just found a new cream,in the milk section, Toffee Nut, by Coffee Mate, good stuff, and a whole like cheeper then 4bucs. lol almost as godd as starbucks
Patrica tell your husband I really like that. 4bucks. It’s been a while I haven’t been to 4bucks fir a long time. I will have to try that creamer Sounds like good stuff. We are coming to that time of year where they will have Egg Nog on sale pretty soon. I love that as well.
I have already seen it, I think I was at Kroger, when I saw it, havent tried that flavor yet, but I think I will soon
Go Texans go, they just recovered the football
Come on Texans you can do it!
Cool on the creamer
I had to turn the Texans off, I just could’nt take it no more!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
OMG! What happen? I wanted to think good thoughts. Did it help?
Jacksonville got another toucdown, I just could’nt stand to watch it anymore, If my team is not winning, i don’t like to watch I just can’t stand the agony lol
I know what you mean. I don’t want to watch if my team is not the winning team.
for comment 165. Shelley I’m trying this creamer I just found. Its coffee mate in the dairy section and its Blueberry cobbler. Its very good. You don’t have to use very much sugar.
Cool Reggie
I have seen, but havn’t tried it, let us know how good it is
Its very good. When I drink it I’m thinking blueberry muffin. yummy.
Shelley y’all got to try it.
I love blueberry muffins
Then you will Love it.
I like bannana nut muffins and cocolate muffins
banana nut bread is very good.
banana nut bread is one of my favorites
Yea Its always good. Never dry.
Wednesday, Oct. 17 after getting off from work, sleep couple hours thinking of heading out to Oklahoma City, visit the Murrah Memorial site then on Thursday morning head out west on Route 66 ( all I need now is a convertible corvette) drive to Amarillo. Amarillo is home to the Big Texan Staeak house, where if you can eat a 4.5 lbs steak in a hour, maye its 2, it is free. I do not think I will go for that, I have hard time just to eat a 1 lb steak. Hope to take plenty pictures and want to see what a 4.5 pound steak look like. They tell me who ever tries it, have to paye the $72.00 before you eat it, I guess they want the money bofore you croke, get sick or die of a heart attack. Then if you do eat it all, you get a refund. I think I seen the paramedics park on the side of the building just in case.
Hew John, Make sure you tell us all about it. I don’t know if they will let you take a photo of it. I ate a large steak at the Taste Of Texas. It was suppose to be for two. Well It was for one. ME. Paying 75 bucks is a bummer, but I guess they can’t fill every one’s bellies that say they can eat a large stake. There is still a Route 66? I would like to see that. Have fun John.
Going from OKC to west as far as Arizona/California, it is mostly I40. In Oklahoma, you can find roads to the towns along the highway as Hist. 66, and one section in Oklahoma, I guess what we would call a frontage road along the Interstate, still call Route 66. All I have time for maybe to go as for as the Texas/New Mexico border. I need to get back to Dallas on Monday, Oct. 22 for the Denise Terrill Golf tournament. Some time later I may do the Route 66 trip from OKC to Tulsa. Did some research on the internet (Route 66), still some interesting sites to see, now a tourist attrations.
Thanks for the info John. Look forward to see you on Monday.
Wednesday, Oct. 17: I am up in Oklahoma City. A three hour drive from Dallas, took several hour nap after getting off from work, then headed out. Got here after 4pm, checked in the hotel, then drove out to the Oklahoma City Memorial (site of the Murrah Federal Building) where that person or persons blew up the building killing some 183 people and children. It was a very solem moment being there, hard to believe that someone could do such a thing, a Amerian doing this to other Americans. I stop here on my views. I wanted to get here to take advantage of the afternoon light (pictures) and will come back in the morning before I start to get my kicks on Route 66.
To #139, I have been thinking that when I go to my new Doc. on the 25, I just might print so NF Litature off the internet so I just give it them, when they ask, “You have what?”
Thursday, Oct. 18: Left OKC this morning after going back to the Murrah Federal Building. Them started the journey on Route 66. Most of it is I40, but the frontage road part is the old Route 66. Can still see some of the old buildings, gas stations. Made it in to Amarillo early evening, check in then went to the Big Texan Steak Place. It was a pretty good steak. Tomorrow to finish the journey then head back to Irving.
To 186 Patricia yea I would have some information ready. That way you won’t have to wish you did it.
Friday, Oct 19: Got up early this morning. Orginal plains were to drive to the Texas/New Mexico state line, decided I cam this far, instead went to Palo-Verda Canyon. I dreaded the 6 hours drive home, thats what I estimated, and it was just little over 6 hrs, including stoping for gas, and getting a bite to eat. Home now to rest up for Monday, the Denise Terrill Charity Classic – Golf.
cool
I will be in Dallas Monday.
Will see you then. Hope it does not rain as predicted.
Lets hope for good weather. Keep your finger toes eyes crossed.
AMEN
Hey John T. What is Denise Terrill Charity, I work for TDCJ, and every Year during the months of Sep and Oct we have fund raisers for different organizations only thing the charity has to be on “the list of approved charity”, NF is not on that list, most years I am on that committe, and we have all kinds of functions to raise monies for different organizations, provided they are on “the list” so this year my department, (classification and records) have risen over $6,000 and we have one more big event. Our goal this year was $5000. Good Luck to you and have fun
The Denise Terrill Charity Event is a golf tournament (event) to raise funds for NF and MD Anderson hospital. Denise Terrill is a very good friend of mine and to everyone who has NF. She also has a daughter that has NF. I will post a link to her site.
Denise Terrill Charity Classic: In August, is the Tennis Classic, doing this since 1996 (1st year) and the Golf got started in 2002 I believe.
Reggie, today is beautiful, sunny and in the 60s. What a difference a day makes, as you know chilly and wet.
Yea I know. I told Susan the weather would be great.
Glad yall had fun
In August when they had the Tennis, it was hot. Unless the lucky ones, they got to play inside in a ac court. Now, this year for golf was wet and cilly. This was my 2nd time able to attend the golf, first time was the first one in 2002. The golf will be about the same time next year, and the tennis will be in August.