While Ed was in town this Thanksgiving holiday, he wanted to get some good old Texas Bar-B-Q. Lou took us to Goode Company where we had a great lunch. Ed wanted to know everything about JUST ASK, and how things are going at my office. It was great talking to Ed and catching up on things since I saw him last.
I hope you enjoy the photo. He now has a Just Ask! t-shirt and will be talking aboutf Just Ask and neurofibromatosis when he gets back to Pennsylvania. Thanks ED for the lunch. See you in D.C.!
To the many new friends that I met at the Texas Renaissance Festival on Friday I’d just like to say, thank you for making it one of the most fun days in my life.
There are so many new people that I’ve met that I don’t remember your names but you can definitely see your photo below. Special thanks to Taarna the Ice Queen Faerie for the beautiful handmade pin that I’ll treasure forever, Queen Bonnie and her Realm for making me a Knight (Don’t worry, I will smash the wicked peeps at every opportunity!).
Thank you Arsene Dupin – Juggler, Magician, Comedian, Mime Extraordinaire, Louis and Matt – The Fabulous Other Brothers, Blair the Beer Mistress, The Kissing Lady that was so sweet, the guy from the Houston Roller Derby with the beard and kilt, my special friends from Goodwill, the English couple in black leather that I had my picture taken with last year and this year, and finally to all the hundreds and hundreds of people at the Texas Renaissance Festival who make me feel like a King.
Thank you all and I’ll see you next year! MORE PHOTOS HERE!
The Tumornators and Jeff Francoeur of the Atlanta Braves present the 2nd Annual Rock4Research benefit concert on Nov. 28 at Wild Bill’s. The concert features Matt Moore opening for headliner Rhett Akins.
Akins is known for country hits including “What They’re Talking About,” “That Ain’t My Truck” and the No. 1 hit “Don’t Get Me Started.”
Francoeur, Matt Stinchcomb of the NFL, Morten Anderson and other sports stars will spend time with guests at a VIP party beforehand. VIPs will also be able to enjoy catered food sponsored by Kroger, Chick-Fil-A and Chili’s. VIPs will also have the opportunity to bid in a silent auction featuring signed sports memorabilia and other exclusive items; VIPs are guaranteed to receive signed picture of Francoeur.
All funds raised by The Tumornators are directly donated to The Children’s Tumor Foundation. The foundation is dedicated to raising money and awareness for the painful illnesses Neurofibromatosis and Schwannomatosis.
Francoeur has supported The Tumornators since their beginnings in 2007, and has donated $500 to the Children’s Tumor Foundation™ on behalf of The Tumornators for every home run he hit in his 2007 season with the Atlanta Braves.
Rock4Research tickets will be available at the door and online, costing $20 for the VIP party and $10 general admission. The VIP party begins at 8:00 p.m., and doors open for general admission at 7:00 p.m.
The first 50 guests will receive a Rock4Research T-shirt signed by Francoeur.
Contact: Chad Leathers firstname.lastname@example.org 706.366.7321
Contact: Brittany Raines email@example.com 678-522-6534
It’s good to be home, but sad to leave the company of my great new friends. Thank you all for your kindness.
Reggie is currently on vacation in Los Angeles visiting with his new friend, Scott Dickson and his family. While in LA, Reggie had the opportunity of visiting with old friend, Greg Gorman. Greg is an internationally known photographer known for his stark, vivid images of the famous and not-so-famous.
Greg has been an important part of Reggie’s life since being introduced to Reggie by Houston socialite, Carolyn Farb.
Reggie has been featured in Greg’s books and showings.
Reggie with Susan and Kevin Nealon and Scott Dickson in LA.
See more photos at Reggie’s Flickr account here!
I received to day your tee shirt. I’m very very prud to wear it! I only do it for great events for neurofibromatosis! As you can see It fit me very well. Very sooner I’ll publish in my blog a text about my purchasse. Dis you see my slide shot about the naughty little toad? In this clip I wear a French neurofibromatose tee shirt size M because the French association own S tee shirt no more. I hope the sending was not too expensive for you. Kind regards my friend
If you would like to email Francis, his address is firstname.lastname@example.org
We have just ordered a new batch of “JUST ASK!” t-shirts! They will be shipped next week and will be available for immediate sale.
The new shirts are 100% cotton, Hanes Beefy Ts, available in 3x,2x, XL, L, M & S. Mustard yellow with distressed dark blue lettering.
$15 All proceeds benefit the Just Ask! Foundation.
Reggie, Lou, William and Geo went to one of my favorite places in the world, the Texas Renaissance Festival.
I met a lot of great people like Lisa, Christina, Lewis, Barbara “The Fairy Lady” and saw a lot of old friends including the “Pretzel Guy” and the belly dancers from the International Festival.
The weather was perfect, the entertainment very good, and I had the BEST DARN steak on a stick I’ve ever had!
Now if there was some way we could go without Lou having to tag along!!!
The Texas Renaissance Festival this weekend sounds like a terrific idea. I plan to be there Saturday to join in the fun. This will make my second year to attend. Last year was a blast and I’m sure this weekend will be just as fun as last year. See the link for more on the Festival. If you enjoy things like games food music then you will enjoy the Renaissance Festival. I will be there hope to see you. See the link for more information.
Donate the easy way! Go to igive.com, connect to your favorite online sites, buy stuff and they’ll donate 2% to NF!
I have been made aware recently of this great site that contributes money to your favorite cause every time you go their site to buy your favorite brands online. If you currently buy music on iTunes, books from Amazon, videos from Netflix, office supplies from Staples,or one of a million things, you might want to look into this! It’s a great, easy way to raise money for neurofibromatosis research, and it doesn’t cost anyone a dime! Please take a look if you could.
More Supporters Mean More Donations for Neurofibromatosis .
Send an invitation and tell your friends about this free, easy way to support your cause! The $50,000 Surfathon Sweepstakes makes now an even better time for friends to join, since every visit to an iGive store means another chance for your cause to win a prize this month! (Click here for rules.)
We’ll also donate an extra $5 to your friend’s favorite charity when they make their first purchase within 45 days of joining. Send them your personalized referral link and Neurofibromatosis will be pre-selected to benefit! Those $5 donations can really add up – so start inviting!
Here’s your personalized iGive referral link. You can use this link in your e-mail signature line, on your Facebook or MySpace page, or on your personal website/blog to recruit new supporters. Be sure to copy/paste the entire link:
The votes are in! Our initial order of tshirts will be the small Just Ask! design on the front and Reggie’s face on the back with the url over his head. (SEE GREEN SHIRTS IN UPPER LEFT.) Our initial order will be pink/white and mustard yellow/blue. We will order in a variety of sizes. If we can order a lot of different colors we will although it might turn into a nightmare trying to keep everything in stock!
If you are interested in ordering a shirt or shirts, please let us know now if possible so we havce an idea of how many to order. I’ve already taken the liberty of putting Emily down for a dozen pink and a dozen yellow. In any event, if you could give us an idea of what or how many you’d like, that would be great! Just leave a comment below or email Reggie at email@example.com.
Thanks everyone! Oh, the shirts will be $15 and all cotton so they will breathe nicely!
Jake Tapper is ABC News’ Senior National Correspondent based in the network’s Washington bureau. He writes about politics and popular culture and covers a range of national stories.
October 07, 2008 12:33 PM
Do you remember last year when Sen. Barack Obama, D-Ill., donated a doodle for an auction to benefit Neurofibromatosis, Inc. and epilepsy research? The doodle, of some of his Senate colleagues, sold for more than $2,000 on eBay.
New Republic senior editor Noam Scheiber went up to Alaska to profile the governor and during a visit with Palin’s former colleague on the city council, Laura Chase, found this document — the back of a Wasilla city budget which Palin doodled on in 1996 as she plotted her mayoral campaign.
She makes notes on slogans: “You would be my boss! No tax increase! … Wasilla needs a conservative choice in leadership.”
She makes notes on her resume: “Life Long Alaskan; Graduate: Wasilla High School, Univ. of Idaho (Bach. In Journalism, minor Politics); Wife, mother of three, Homeowners, Businesswoman, TAXPAYER!;…NRA supporter,” “taxpayer!”
There’s a close-up scan of the document HERE.
We are thinking of redesigning the shirts so they are simpler, more fun, and are equally appealing to men and women.
We have two styles we’re looking at – distressed and/or solid colors. We’re also investigating different colors for the shirts.
Which design do you like? What colors would you prefer?
Let us know below and who knows, you just might see the shirt of your dreams up here in a few days!
Reggie and his trusty sidekick, Shiner!
Vodpod videos no longer available.
Reggie and his trusty sidekick, Shiner!
Vodpod videos no longer available.
Just got Shiner. Meet my new dog. Shiner is a great dog and I’m thankful to my new friends Connie and Jaen Lawrence. They helped me with making a great home for my dog. We went to the Pampered Pet Inn. When I saw Shiner he came over to me and laid down. He was just the dog I wanted. He’s right next to me as I write. He will be watching TVLAND tonight.
Lets talk pets. What kind do you have. What kind do you want?
Last night’s Houston Roller Derby championship bout between the Psych Ward Sirens and the Bayou City Bosses was one for the ages! I thought the Sirens just might pull it out in the end but with 45 seconds left in the bout, two Sirens were in the penalty box allowing Death by Chocolate to run out the clock.
Both teams rocked last night! Although the Sirens may not of won, they certainly came out as winners. I’ve never seen more heart and passion in a sport than what I saw last night. I think Mistilla the Killa gave Holla-Pain-Yo a complex last night! Every time I looked up, Mistilla was introducing Holla-Pain-Yo to the floor. And Carmen Geddit was steady as a rock!!! All night long. Never giving up. Incredible performance! Jekyll & Heidi had an incredible jam in the first half helping to keep the score close. Congratulations to the Bosses! Both teams played their hearts out.
I was looking at your blog – I didn’t realise that you were affected by Hurricane Ike! I’m glad that you are OK! You definitely have more interesting weather in Texas than we have in England! 🙂
The roller-derby looked very cool! That’s when everybody wears roller-skates, right?
I will ask a friend to take a photograph of me wearing my Just Ask shirt tomorrow! 🙂
The NF Camp For All looks totally cool! What types of activities did you do at the camp?
I am still trying to think of the best thing that I could draw for a t-shirt design for your auction or foundation. As you suggested, I could do one-off art for the auction, but I do my art on a computer, so it would have to be a high-quality print-out. Maybe we could print a few and say they are “limited edition prints”?
I have been reading about NF research on the web to get some ideas about a design.
You are a big hero, my friend – you help so many people in such a big way. 🙂
Remember that I mentioned that I have OCD (Obsessive-Compulsive Disorder)? Well, I am going to give a talk to some medical students tomorrow about it, to try to help more people understand about it.
Have a great day!
Your English friend, Rick.
See all the photos from PJ’s Pork Night and the aftermath party at Lou’s.
Last night was GREAT! I met new friends that made a point to talk to me. It was the top of the night for me. I’m not good with names but thank you for talking to me. I hope to see you again. Email me and when I’m back on line I will reply. Both photos from last night look terrific!
We need your help! We just learned that members of the House and Senate Defense Appropriations Subcommittee will be meeting this weekend to work on the 2009 Defense Appropriations bill. We need you to contact your members of Congress to inform them of the importance of NF research so we can save the Department of Defense NF Research Program.
Please take the time to call, fax or email your members of Congress. Ask them to contact Congressmen John Murtha and Bill Young, in the House, and Senators Daniel Inouye and Thad Cochran, in the Senate. Have your representatives ask Murtha, Young, Inouye, and Cochran to provide $20 million for Neurofibromatosis research through the Army’s NF Research Program in the Fiscal 2009 Department of Defense Appropriations bill.
This is urgent! To find your representatives go to http://www.congress.org.
Texas NF Foundation
Texas NF Foundation is committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.
Reggie asked me to blog in and let everyone he is ok except that he has no electricity and no internet. But, and I must add, more importantly, I’m ok!!!! I know a lot of people are breathing a sigh of relief and I’m happy to let you know that not only am I alive but I am making a handsome profit selling glasses of water to staring hurricane victims for just $5 a glass. Hey, it’s a national disaster, we all need to do our part
- 2008 Houston Highlights
- A MESSAGE FROM REGGIE
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