neurofibromatosis cafe

A place to talk about NF, have fun and share.

A NOTE FROM KEVIN NEALON.

3090342427_26cb9dd5b3_b3090342561_eb020396fa_bThis weekend I got the shock and surprise of my life! I was going through my emails looking for a phone number when I came across an unopened email dated November 14! It was from my new friend Kevin Nealon, from Saturday Night Live, who I had just met the night before.

I have no idea how I missed this very important email but I guess it was because I was traveling and wasn’t able to check email till I got back home. Anyway, here is the very nice email that Kevin wrote plus the photos he sent.

Hey Reggie,
So great meeting you last night, and your friends! I’m so
flattered that you guys came to my show. Oh, loved your website, too!!
Susan and I loved checking out each category. Great videos and pics,
great coverage on the news stations as well. We’re so impressed with
your courage and your raising awareness of NF. What a difference you
are making! Please keep us updated on the foundation.

Attached are a few pictures of me wearing your shirt. Btw, it
fits me like a glove. I have a new cause now. 🙂

Best wishes,
Kevin and Susan

Most of you have seen the photos from my trip to Manhattan Beach California, when I went to visit my friend, Scott. Well, on the visit, Scott suggested we go see Kevin Nealon at the Comedy club. That is where it all happened. After the show Kevin came over to meet me. It was there when I shared with Kevin and his Wife Susan about NF. What a nice couple they both are. So kind and understanding to NF, and the JUST ASK campaign. I’m proud that Kevin is wearing one of my JUST ASK! T-shirts. You never know where you may see one next. Thank you Kevin and Susan for your support. Hope to see you soon.

December 8, 2008 Posted by | A MESSAGE FROM REGGIE, About Me, Appearances, Awareness, Benefit, Celebrity, Favorite Places, Friend, Friends, Friends of NF, Fun, Fundraising, Help, Just Ask!, News, nf, NF1, Photos, T-shirt, Texas NF Foundation | 33 Comments

ED FROM PENNSYVANIA

3068357163_f3a59de593_b3085507479_7b7a7c41ff_bI thought I would share with you about Last Saturday. I had lunch with a friend, Ed Olsavicky.  Ed is a terrific friend and a relative of Lou’s. I met Ed at Lou’s wedding many years ago.

While Ed was in town this Thanksgiving holiday, he wanted to get some good old Texas Bar-B-Q. Lou took us to Goode Company where we had a great lunch. Ed wanted to know everything about JUST ASK, and how things are going at my office. It was great talking to Ed and catching up on things since I saw him last.

I hope you enjoy the photo. He now has a Just Ask! t-shirt and will be talking aboutf Just Ask and neurofibromatosis when he gets back to Pennsylvania. Thanks ED for the lunch. See you in D.C.!

MORE PHOTOS HERE

December 3, 2008 Posted by | Friends, Fun, neurofibromatosis | , , | 17 Comments

The Many Faces of The Texas Renaissance Festival, 11/28/08.

To the many new friends that I met at the Texas Renaissance Festival on Friday I’d just like to say, thank you for making it one of the most fun days in my life.

There are so many new people that I’ve met that I don’t remember your names but you can definitely see your photo below. Special thanks to Taarna the Ice Queen Faerie for the beautiful handmade pin that I’ll treasure forever, Queen Bonnie and her Realm for making me a Knight (Don’t worry, I will smash the wicked peeps at every opportunity!).

Thank you Arsene Dupin – Juggler, Magician, Comedian, Mime Extraordinaire, Louis and Matt – The Fabulous Other Brothers, Blair the Beer Mistress, The Kissing Lady that was so sweet, the guy from the Houston Roller Derby with the beard and kilt, my special friends from Goodwill, the English couple in black leather that I had my picture taken with last year and this year, and finally to all the hundreds and hundreds of people at the Texas Renaissance Festival who make me feel like a King.

Thank you all and I’ll see you next year! MORE PHOTOS HERE!

3067446934_35a82fd4a2_b2The Ice Queen3066580615_e7180c62e1_b3067420564_33faccd27c_b3066567413_4ffa9eb491_b3066607229_4a90bc4e15_b3067415412_2492a88ba1_b3067452262_553fd984b0_b3067436312_57cefcbbd3_b23066600369_5d2e60aee6_b3066582639_2f5a6abf2c_b3067436954_f9b0e81f26_b3066589499_2760afb1bb_b

3066605237_0e8585f649_b3066602933_b17b85b5cb_b213067410672_087616c909_b3066581627_b9f436bea1_b13066597273_0b2e114928_b13067412922_2e0eb66486_b

November 29, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, TEXAS RENAISSANCE FESTIVAL | , , , , , , , , , , | 26 Comments

Let’s all be thankful!

thanksgiving_1To all my friends:

I have so many things to be thankful for.

This blog is my favorite because I get to thank all of you for your support. I wrote this down and wanted to say it at our Board Meeting for JUST ASK! I didn’t get to; I’m saying everything now.

After my website went live, everything has changed for me in great ways. Lou doesn’t want to take credit for what has happened here. If it wasn’t for Lou, there would be no Website and Blog, Live Stock Show and Rodeo, Baseball Games at Minute Maid Park, Football at Reliant Stadium, meeting The Neville Brothers, Mayor Bill White, George Clinton, Kevin Nealon, the Houston International Festival, the Texas Renaissance Festival, The Houston Roller Derby Bouts and the NF Fund Raiser. And I wouldn’t have met the hundreds of wonderful people along the way.

I’m thankful for my friend William Hughes for helping with the website and all things having to do with my computer. Matt Jones for all of his help with the Just Ask Foundation. Michelle Reed for helping with her generous donation to set up the Just Ask Foundation. And of course William, Matt and John Person for helping me “refine” my musical talent at our “Jam Nights” at Lou’s.

Thanks to all of my friends who helped with Doodle Day by donating doodles. Matt Loftiss, The Art Guys, Aaron Long, Andy Dearwater, Kim White, Kate Wiggins, Matt Walsh, Jordon Walker, Elena Congelio, Rhea Diaz, Former Senator and now Fort Worth Mayor, Mike Moncrief, and Sugar Ray Leonard.

Also, thank you to my friends and famous photographers Arthur Meyersen and Greg Gorman. Greg was nice enough to photograph we when I was in Los Angeles a few weeks ago visiting my friend Scott Dicksonand his family. The Dickson family treated me really well. Thank you Arthur Meyersen for helping my family after Hurricane Ike.

I will always be forever grateful and appreciative of the warmth and friendship extended to me from all my friends  at the Houston Roller Derby: Dementia, Mistilla the Killa, Jeckill & Heidi, Carmen Geddit, Fro-ro-cious and the one and only David Beebe, The Colonel!You guys rock!

How could I forget Christi Myersfrom ABC KTRK and Damali Keith from FOX 26 for their wonderful news stories. Laurie Seltzerfrom MNI Networks for the full page ads in Time, Newsweek and US News & World Report. Henry De La Garza and Jorge Moya for helping get the word out about “Just Ask!”

One of the best things to ever happen to me happened this year when my friends, Connie and Jaen Lawrence, found the perfect dog and companion for me. “Shiner”is without a doubt the best dog in the world!!! Connie and Jaen also provided me with a new mahogany desk, computers, printers and office supplies so I could move into STANANDLOU and start the “Just Ask! Foundation. I am so blessed to know these two wonderful people!

I think it would be nice if we took a minute here on this blog and said thanks for all the wonderful people and events that we have experienced this past year.

I know we all have something we are thankful for.

I feel that we have lots of promising things ahead for all who suffer with NF. Let’s give thanks to the doctors, nurses and researchers for all they do for NF research and treatment. Especially you, Dr. RiccardiDr. Bart Moore and you, Dr. John Slopis!

Last, but not least, I am thankful for all the wonderful, caring people that I have met on this blog: Emily, Patricia, Brian, Shelley, John P, Meredyth, Everette, David Linn, Susan, Cindy, Francis from France, Fran, Laura, Connie, Sugar Ray Leonard, Scott, Colleen, Allyson, Jerry, David, Tanya, Escarlata, Ne-Ne’s mom, Bob, Rick from England, Vera, Rie, Jaen, Rick, Michael, Bea, John K and over 150,000 visitors who have come to the site.

Thanks also to PJ at PJ’s Sports Bar for  Thursdays evenings for our group on Steak Night. Always a fun time before our Jam sessions. And P J ALWAYS serves my steak first!!!

In my many thanks, I’m including my Church, Second Baptist in Houston. My Bible Study Class, CrossTraining , took on a project when they saw my family had a need and the entire class pitched in and gave our home a make over,  While the work was being done, we were put up in a hotel.  We how have a new home with wonderful landscaping. Thank you Nancy Adkins and Dotty Tompkins for heading up the project. Everyone in the class took part in making our home comfortable.

I hope you all have gotten as much from the site as I have and will continue to share your stories, your challenges and your victories here on this site. Thank you all for being such good, no, great friends!

Happy Thanksgiving to everyone! Your friend, Reggie

November 25, 2008 Posted by | A MESSAGE FROM REGGIE, Awareness, Friends, Fun, neurofibromatosis | 20 Comments

Tumornators Search for Cure with Rock 4 Research Concertatosis

jeffThe Tumornators and Jeff Francoeur of the Atlanta Braves present the 2nd Annual Rock4Research benefit concert on Nov. 28 at Wild Bill’s. The concert features Matt Moore opening for headliner Rhett Akins.81ba489f-2ae5-4d2f-ba93-c855cbc2b7d4

Akins is known for country hits including “What They’re Talking About,” “That Ain’t My Truck” and the No. 1 hit “Don’t Get Me Started.”

Francoeur, Matt Stinchcomb of the NFL, Morten Anderson and other sports stars will spend time with guests at a VIP party beforehand. VIPs will also be able to enjoy catered food sponsored by Kroger, Chick-Fil-A and Chili’s. VIPs will also have the opportunity to bid in a silent auction featuring signed sports memorabilia and other exclusive items; VIPs are guaranteed to receive signed picture of Francoeur.r4rpics

All funds raised by The Tumornators are directly donated to The Children’s Tumor Foundation.  The foundation is dedicated to raising money and awareness for the painful illnesses Neurofibromatosis and Schwannomatosis.

mattFrancoeur has supported The Tumornators since their beginnings in 2007, and has donated $500 to the Children’s Tumor Foundation™ on behalf of The Tumornators for every home run he hit in his 2007 season with the Atlanta Braves.
Rock4Research tickets will be available at the door and online, costing $20 for the VIP party and $10 general admission. The VIP party begins at 8:00 p.m., and doors open for general admission at 7:00 p.m.

The first 50 guests will receive a Rock4Research T-shirt signed by Francoeur.

For more information, please visit www.rock4research.com or www.tumornators.com .

Contact: Chad Leathers chad@tumornators.com     706.366.7321

Contact: Brittany Raines rainesbr@uga.edu     678-522-6534

November 19, 2008 Posted by | Awareness, ctf, Fundraising, neurofibromatosis | , , , , , , , , | 29 Comments

My friend Scott Dickson and me on Manhattan Beach!

3039660218_02ac401e8f_bThank you Scott for allowing me to be your guest at your home. Lisa, Maeve, and of Course my friend Clive. There is no way I can explain how happy I feel about the way things went for me. 3038818031_8d892c3a34_b

It’s good to be home, but sad to leave the company of my great new friends. Thank you all for your kindness.

November 17, 2008 Posted by | Awareness, Friends, Fun, Just Ask!, neurofibromatosis | , , , | 10 Comments

Reggie Bibbs as photographed by, the one and only, Greg Gorman

reggie_o4d8694-copyPhotographer: Greg Gorman

Reggie is currently on vacation in Los Angeles visiting with his new friend, Scott Dickson and his family. While in LA, Reggie had the opportunity of visiting with old friend, Greg Gorman. Greg is an internationally known photographer known for his stark, vivid images of the famous and not-so-famous.

Greg has been an important part of Reggie’s life since being introduced to Reggie by Houston socialite, Carolyn Farb.

Reggie has been featured in Greg’s books and showings.

November 14, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis | , , , | 4 Comments

Reggie Meets Kevin and Susan Nealon in LA!

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Reggie with Susan and Kevin Nealon and Scott Dickson in LA.

See more photos at Reggie’s Flickr account here!

November 14, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis | , , , , , | 3 Comments

The New Shirts are In!!!

3027670506_41e6aa8baa_b3026837609_2da074d105_b

November 13, 2008 Posted by | Awareness, Fun, neurofibromatosis, T-shirts | , , | Leave a comment

My friend Francis Boyermadrieres from France

3010703046_f1e2ee6e51_b3010702912_474b0f041b_bDear Reggie
I received to day your tee shirt. I’m very very prud to wear it! I only do it for great events for neurofibromatosis! As you can see It fit me very well. Very sooner I’ll publish in my blog a text about my purchasse. Dis you see my slide shot about the naughty little toad? In this clip I wear a French neurofibromatose tee shirt size M because  the French association own  S tee shirt no more. I hope the sending was not too expensive for you. Kind regards my friend
– Francis

If you would like to email Francis, his address is f.boyermadrieres@laposte.net

November 7, 2008 Posted by | Friends, neurofibromatosis, T-shirt | , , , | 6 Comments

New Just Ask! T-shirt Design – Final!!!

reggieshirt_final_outlines

We have just ordered a new batch of “JUST ASK!” t-shirts! They will be shipped next week and will be available for immediate sale.

The new shirts are 100% cotton, Hanes Beefy Ts, available in 3x,2x, XL, L, M & S. Mustard yellow with distressed dark blue lettering.

$15 All proceeds benefit the Just Ask! Foundation.

To order, click here!

November 6, 2008 Posted by | Fun, neurofibromatosis, tshirt | , , , | 6 Comments

Thank You, Connie And Jaen Lawrence!

3002441017_c08b6e7a41_b1Some of you may have noticed my new photos that I posted today.  Thanks to my friends Connie and Jaen Lawrence, I have a huge new desk, office supplies, printers, faxes and computers. This is just prefect for all of my office needs.  My computer is really fast, and It is a Mac.  I can print, fax, and mail in high volume now of JUST ASK! products you all will 3002238891_593762a525_b1order in the up coming Holiday season. : > )  Plenty of time to order now. Come on keep me busy. I will post photos of how busy you keep me at my office.

See how much desk space I have.  Also I want to thank Lou & Michelle for the office space at StanandLou.

November 4, 2008 Posted by | A MESSAGE FROM REGGIE, Friends, neurofibromatosis | , , , , , , , | 13 Comments

2008 Texas Renaissance Festival, 11/1/08

Reggie, Lou, William and Geo went to one of my favorite places in the world, the Texas Renaissance Festival.

I met a lot of great people like Lisa, Christina, Lewis, Barbara “The Fairy Lady” and saw a lot of old friends including the “Pretzel Guy” and the belly dancers from the International Festival.

The weather was perfect, the entertainment very good, and I had the  BEST DARN steak on a stick I’ve ever had!

Now if there was some way we could go without Lou having to tag along!!!

November 2, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, TEXAS RENAISSANCE FESTIVAL | , , , | 3 Comments

Let’s Go To The Texas Renaissance Festival!!!

The Texas Renaissance Festival this weekend sounds like a terrific idea. I plan to be there Saturday to join in the fun. This will make my second year to attend.  Last year was a blast and I’m sure this weekend will be just as fun as last year. See the link for more on the Festival.  If you enjoy things like games food music then you will enjoy the Renaissance Festival.  I will be there hope to see you.   See the link for more information.

October 30, 2008 Posted by | Friend, Friends, neurofibromatosis, NF1, TEXAS RENAISSANCE FESTIVAL | , | 13 Comments

Donate the easy way! Go to igive.com, connect to your favorite online sites, buy stuff and they’ll donate 2% to NF!

Dear Friends,

I have been  made aware recently of this great site that contributes money to your favorite cause every time you go their site to buy your favorite brands online. If you currently buy music on iTunes, books from Amazon, videos from Netflix, office supplies from Staples,or one of a million things,  you might want to look into this! It’s a great, easy way to raise money for neurofibromatosis research, and it doesn’t cost anyone a dime! Please take a look if you could.

Thanks, Reggie

More Supporters Mean More Donations for Neurofibromatosis .

Send an invitation and tell your friends about this free, easy way to support your cause! The $50,000 Surfathon Sweepstakes makes now an even better time for friends to join, since every visit to an iGive store means another chance for your cause to win a prize this month! (Click here for rules.)

We’ll also donate an extra $5 to your friend’s favorite charity when they make their first purchase within 45 days of joining. Send them your personalized referral link and Neurofibromatosis will be pre-selected to benefit! Those $5 donations can really add up – so start inviting!

Here’s your personalized iGive referral link. You can use this link in your e-mail signature line, on your Facebook or MySpace page, or on your personal website/blog to recruit new supporters. Be sure to copy/paste the entire link:

http://www.iGive.com/welcome/warmwelcome.cfm?c=46460&m=566419

October 19, 2008 Posted by | Fundraising, neurofibromatosis | , , | 23 Comments

NEW “Just Ask!” T-shirt Option

The votes are in! Our initial order of tshirts will be the small Just Ask! design on the front and Reggie’s face on the back with the url over his head. (SEE GREEN SHIRTS IN UPPER LEFT.) Our initial order will be pink/white and mustard yellow/blue. We will order in a variety of sizes. If we can order a lot of different colors we will although it might turn into a nightmare trying to keep everything in stock!

If you are interested in ordering a shirt or shirts, please let us know now if possible so we havce an idea of how many to order. I’ve already taken the liberty of putting Emily down for a dozen pink and a dozen yellow. In any event, if you could give us an idea of what or how many you’d like, that would be great! Just leave a comment below or email Reggie at reggie@reggiebibbs.com.

Thanks everyone! Oh, the shirts will be $15 and all cotton so they will breathe nicely!

October 10, 2008 Posted by | Fun, neurofibromatosis, T-shirts | , , | 34 Comments

ABC News Links to Reggie’s Site!

http://blogs.abcnews.com/politicalpunch/2008/10/doodles-of-drea.html

Jake Tapper is ABC News’ Senior National Correspondent based in the network’s Washington bureau. He writes about politics and popular culture and covers a range of national stories.

Doodles of Dreams

October 07, 2008 12:33 PM

Do you remember last year when Sen. Barack Obama, D-Ill., donated a doodle for an auction to benefit Neurofibromatosis, Inc. and epilepsy research? The doodle, of some of his Senate colleagues, sold for more than $2,000 on eBay.

Now we have a doodle from another campaign 2008 rock star, Alaska Gov. Sarah Palin.

New Republic senior editor Noam Scheiber went up to Alaska to profile the governor and during a visit with Palin’s former colleague on the city council, Laura Chase, found this document — the  back of a Wasilla city budget which Palin doodled on in 1996 as she plotted her mayoral campaign.

She makes notes on slogans: “You would be my boss! No tax increase! … Wasilla needs a conservative choice in leadership.”

She makes notes on her resume: “Life Long Alaskan; Graduate: Wasilla High School, Univ. of Idaho (Bach. In Journalism, minor Politics); Wife, mother of three, Homeowners, Businesswoman, TAXPAYER!;…NRA supporter,” “taxpayer!”

There’s a close-up scan of the document HERE.

** Continue reading

October 7, 2008 Posted by | abc news, neurofibromatosis, nf inc | , , , , , | 4 Comments

New “Just Ask!” T-shirt Design

We are thinking of redesigning the shirts so they are simpler, more fun, and are equally appealing to men and women.

We have two styles we’re looking at – distressed and/or solid colors. We’re also investigating different colors for the shirts.

Which design do you like? What colors would you prefer?

Let us know below and who knows, you just might see the shirt of your dreams up here in a few days!

October 7, 2008 Posted by | Awareness, Friends, Fun, neurofibromatosis, T-shirts | , , | 20 Comments

Shiner – “Sit” Video

Reggie and his trusty sidekick, Shiner!

Vodpod videos no longer available.

more about “Shiner – “Sit”“, posted with vodpod

October 6, 2008 Posted by | neurofibromatosis | , , , | 8 Comments

Shiner – “Fetch” Video

Reggie and his trusty sidekick, Shiner!

Vodpod videos no longer available.

more about "Shiner – "Fetch" Video", posted with vodpod

October 6, 2008 Posted by | neurofibromatosis | 3 Comments

Mr. DeMille, I’m ready for my close-up!

October 4, 2008 Posted by | Friends, Fun, neurofibromatosis, shiner | , , , | 4 Comments

Shiner, My New Dog!

Just got Shiner.   Meet my new dog. Shiner is a great dog and I’m thankful to my new friends Connie and Jaen Lawrence. They helped me with making a great home for my dog. We went to the Pampered Pet Inn. When I saw Shiner he came over to me and laid down.  He was just the dog I wanted.  He’s right next to me as I write. He will be watching TVLAND tonight.

Lets talk pets. What kind do you have. What kind do you want?

September 30, 2008 Posted by | Friends, Fun, neurofibromatosis | , , , | 67 Comments

Psych Ward Sirens #1 in our Hearts!

Last night’s Houston Roller Derby championship bout between the Psych Ward Sirens and the Bayou City Bosses was one for the ages! I thought the Sirens just might pull it out in the end but with 45 seconds left in the bout, two Sirens were in the penalty box allowing Death by Chocolate to run out the clock.

Both teams rocked last night! Although the Sirens may not of won, they certainly came out as winners. I’ve never seen more heart and passion in a sport than what I saw last night.  I think Mistilla the Killa gave Holla-Pain-Yo a complex last night! Every time I looked up, Mistilla was introducing Holla-Pain-Yo to the floor. And Carmen Geddit was steady as a rock!!! All night long. Never giving up. Incredible performance! Jekyll & Heidi had an incredible jam in the first half helping to keep the score close. Congratulations to the Bosses! Both teams played their hearts out.

PHOTOS

September 29, 2008 Posted by | neurofibromatosis | , , , , , , , , , , | 6 Comments

THURSDAY NIGHT AT LOU’S, 9/25/08

Video #1 The Photos Video #2

September 26, 2008 Posted by | neurofibromatosis | , , | 4 Comments

The One and Only Amy at PJ’s! 9/25/08

MORE PHOTOS

September 25, 2008 Posted by | neurofibromatosis | 3 Comments

A blog by my friend Rick in England!

Hi Reggie!

I was looking at your blog – I didn’t realise that you were affected by Hurricane Ike! I’m glad that you are OK! You definitely have more interesting weather in Texas than we have in England!   🙂

The roller-derby looked very cool! That’s when everybody wears roller-skates, right?

I will ask a friend to take a photograph of me wearing my Just Ask shirt tomorrow!   🙂

The NF Camp For All looks totally cool! What types of activities did you do at the camp?

I am still trying to think of the best thing that I could draw for a t-shirt design for your auction or foundation. As you suggested, I could do one-off art for the auction, but I do my art on a computer, so it would have to be a high-quality print-out. Maybe we could print a few and say they are “limited edition prints”?

I have been reading about NF research on the web to get some ideas about a design.

You are a big hero, my friend – you help so many people in such a big way.   🙂

Remember that I mentioned that I have OCD (Obsessive-Compulsive Disorder)? Well, I am going to give a talk to some medical students tomorrow about it, to try to help more people understand about it.

Have a great day!

Your English friend, Rick.

September 24, 2008 Posted by | neurofibromatosis | , , | 9 Comments

Tonight at Beavers in The Heights.

September 19, 2008 Posted by | Friends, Fun, neurofibromatosis | , , , , | 9 Comments

Met new friends at PJ’s “Pork” Night!!!

Yes, you heard me right, it was “Pork Night” at PJ’s last night. PJ said he didn’t have time to pick up steaks but he had some pork laying around so he did that instead. It was excellent!!!

See all the photos from PJ’s Pork Night and the aftermath party at Lou’s.

Last night was GREAT! I met new friends that made a point to talk to me. It was the top of the night for me. I’m not good with names but thank you for talking to me. I hope to see you again. Email me and when I’m back on line I will reply. Both photos from last night look terrific!

September 19, 2008 Posted by | Friends, neurofibromatosis | , , , | 1 Comment

Request from the Texas Neurofibromatosis Foundation

We need your help! We just learned that members of the House and Senate Defense Appropriations Subcommittee will be meeting this weekend to work on the 2009 Defense Appropriations bill.  We need you to contact your members of Congress to inform them of the importance of NF research so we can save the Department of Defense NF Research Program.

Please take the time to call, fax or email your members of Congress.  Ask them to contact Congressmen John Murtha and Bill Young, in the House, and Senators Daniel Inouye and Thad Cochran, in the Senate.  Have your representatives ask Murtha, Young, Inouye, and Cochran to provide $20 million for Neurofibromatosis research through the Army’s NF Research Program in the Fiscal 2009 Department of Defense Appropriations bill.

This is urgent! To find your representatives go to http://www.congress.org.

Thank You,

Texas NF Foundation

Texas NF Foundation is committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.

September 18, 2008 Posted by | neurofibromatosis | | 1 Comment

HURRICAN IKE

Reggie asked me to blog in and let everyone he is ok except that he has no electricity and no internet. But, and I must add, more importantly, I’m ok!!!! I know a lot of people are breathing a sigh of relief and I’m happy to let you know that not only am I alive but I am making a handsome profit selling glasses of water to staring hurricane victims for just $5 a glass. Hey, it’s a national disaster, we all need to do our part

More Photos

September 15, 2008 Posted by | neurofibromatosis | 8 Comments