neurofibromatosis cafe

A place to talk about NF, have fun and share.

CIRQUE DU SOLEIL

cirque-_logo.jpgCirque Du Soleil will be peformaning at the Sam Houston Race Tract. Amazing talaent group. I have tickets to opening night, which is tonight. I haven’t seen Corteo the show that’s in town now. I’am sure its going to be a nice one. If you know about Cirque Du Soleil, and plan to see the show, post it. I would love to hear fron you. Below is a intrduction on the show. I hope to have pictures posted from the show.

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Corteo, which means “cortege” in Italian, is a joyous procession, a festive parade imagined by a clown.

intro_corteo.gifThe show brings together the passion of the actor with the grace and power of the acrobat to plunge the audience into a theatrical world of fun, comedy and spontaneity situated in a mysterious space between heaven and earth.

The clown pictures his own funeral taking place in a carnival atmosphere, watched over by quietly caring angels. Juxtaposing the large with the small, the ridiculous with the tragic and the magic of perfection with the charm of imperfection, the show highlights the strength and fragility of the clown, as well as his wisdom and kindness, to illustrate the portion of humanity that is within each of us. The music, by turns lyrical and playful, carries Corteo through a timeless celebration in which illusion teases reality.

March 21, 2007 Posted by | Friends | , , , , | 2 Comments

SOMETHING TO THINK ABOUT :)

This post is some what different from all of my earlier posts. I am asking all that have posted on my blog to share in this one. When things are going really well, do we believe it should be this way? Or do we expect it’s too good to be true.

You may have read in one of my previous posts, where I said I have never felt as happy as I do now, now that the Reggie Bibbs web-site has begun. So many of you have written and made a lot of kind comments. The plan is to help make NF more known and talked about like so many other disorders. It seems as though lots of my friends, and I call them my friends because I have heard their story and I have learned they too have NF. They write and support me. Not thinking of themselves and their family members who have NF. I get so much joy out of this and I hope to reach a lot more. I hope we can reach others who do not have NF but would like to know more about it. We will, and we will make a difference. Let me know your thoughts.

March 11, 2007 Posted by | A MESSAGE FROM REGGIE | 2 Comments

Lunch at Arturos in Uptown Park

reggie-white.JPGToday I had the pleasure of having lunch with two great friends. Talk about great food, that was the best. After lunch and during we had a nice conversation about what each of us are working on. The World Famous Arthur Meyerson of Houston, Lou Congelio oftres-amigos-1.jpg STANANDLOU and of course me, Reggie Bibbs. All from Houston. It just felt great to get away and relax with friends. I want to share it with you. I hope you enjoy the photo. What I would change about lunch today. Just ask Toby Keith. JUST TALK ABOUT ME. ME ME ME!

March 9, 2007 Posted by | Friends | 6 Comments

“Just Ask!” is in the news!

Click here to watch the newscast!

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March 1, 2007 Posted by | neurofibromatosis, News | 13 Comments

GUESS WHO’S IN THE CHRONICLE THIS MORNING ?

Reggie article 3/1/07Well, not to gloat, But all of you that have been supporting me, by viewing my website and my blog. I want to let you know The Houston Chronicle is running an ad on me. I’ am so thankful that we are getting information to the public about nf. This week you can see the article, if you are the areas of, HOBBY AREA SUNNYSIDE / PARK PLACER/UH/TSU/ALMEDA/GULFGATE. Would like to hear from anyone who reads the article and tell me your thoughts.

Click to view Chronicle article 3/1/07

March 1, 2007 Posted by | ADDY Awards, neurofibromatosis, News | 5 Comments

RODEO OPENING NIGHT FEATURING GEORGE STRAIT!!!

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For all of our fans of Rodeo Houston, are excited about opening night for the 75 year of The Houston Live Stock Show and Rodeo in Houston. Well for all of the fans of George Strait fans, I think we are out of luck. I hear tickets are sold out. But of course it would be, it’s George Strait.

All of the George Strait fans, say yee haw . Let us know how great the show turned out. Anyone who loves country music will enjoy the show with out a doubt.

Did I mention I was a George Strait fan?!! Let’s rodeo!!! Continue reading

February 27, 2007 Posted by | Music, RODEO | , , , , | 6 Comments

FREE HUGS


freehugs1.jpgI had several topics that came to my mind that I wanted to post. I’ll stick to one for now. What’s on my mind today ? FREE HUGS. I just saw a video on YOUTUBE. My video is on the same site. I saw the video and it literally made me want to cry. I was impressed how many of us just would be happy with a hug.

I know were I can go to get a hug, when I need one two or three. You know who you are. I really thank you for that. How many of you believe a hug can make a difference of your day? Watch the video free hugs. Post how you feel after you dry your eyes. Here’s the link http://www.youtube.com/watch?v=vr3x_RRJdd4

February 26, 2007 Posted by | Video | , , , , | 10 Comments

Reggie Bibbs receives Gold Addy Award

Feb. 22, 2007, 10:15PM
Reggie Bibbs receives Gold Addy Award
Second Baptist Church member honored for advertising campaign

By KIM HUGHES
Chronicle Correspondent

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Reggie Bibbs, a member of Second Baptist Church on Woodway, was looking fine in a suit and tie recently when he went on stage to receive a Gold Addy Award for his advertising campaign to raise awareness of a disfiguring disorder called neurofibromatosis.

It was a dressy affair at the Hyatt Regency Hotel downtown, which is why Bibbs, 42, wasn’t wearing the T-shirt that won him the award.

On the front is an abstract outline of Bibbs’ face, and on the back are the words “Just Ask.”

“I can see how people look at me, and they will just stare,” said Bibbs, who was diagnosed with neurofibromatosis as an infant, and has several tumors on his left leg and face.

“Some of them look at me like I’m an apparition. You can see they want to ask — but they don’t — and it puts both of us in an awkward position.

“I want them to know it’s okay to ask me what’s wrong (with me).”

Originally from Houston, and still living in the same house he in which he grew up, Bibbs said his mother first noticed something was amiss when she would try to put his shoes on his little feet.

His left shoe just couldn’t go over his foot very easily, and he would cry whenever she tried.

Bibbs was diagnosed with neurofibromatosis when he was about 1-year-old.

According to the National Institute of Neurological Disorders and Stroke at www.ninds.nih.gov, neurofibromatosis affects an estimated 100,000 Americans and occurs in both sexes and all ethnic groups.

It’s a genetic disorder of the nervous system that causes tumors to grow, and can produce other skin abnormalities and bone deformities.

“They told her there was no cure for it, and the only thing they could do was follow me,” Bibbs said.

He was fitted with special shoes, and Bibbs has since undergone about 10 surgeries to remove tumors from the roof of his mouth, his leg, nose and eye.

Bibbs said surgery is not usually a recommended course of action, because doctors believe removal of existing tumors propagates growth of new tumors.

Growing up, Bibbs said his five brothers and sisters were protective of him, and he knew at a very early age there was something different about him.

“I knew my eyes did not look like my brothers’ eyes, I knew I couldn’t see very well out of the one eye,” Bibbs said.

“Different parts on me were bigger. And as I grew, the tumors grew.”

Bibbs recalls the day, when he was about 10, when his brothers were tromping through mud puddles, leaving bare footprints on the sidewalk.

“My footprints, one would be the regular size and the other one would be really big,” Bibbs said.

“I would wish I could make the same kinds of footprints everyone else was making.”

Bibbs learned to accept and love himself, with the help of his mother, siblings and neighbors.

“We did a lot of praying and trying to encourage Reggie to just not worry about it,” said Dorothy Bibbs, 70.

Reggie and Mom in “Just Ask!” t-shirt.

“He always had someone with him wherever he went, and the neighbors were very helpful. They didn’t see him as having a deformity.”

Bibbs also credits his faith for getting him through.

“I know that God has really blessed me in so many ways, that I cannot begin to really express it,” Bibbs said.

“He has given me strength just to go on, and I have met so many wonderful people.”

That includes Gary Moore, senior associate pastor.

“Reggie is so faithful and he’s always here,” Moore said. “You look out there, and Reggie’s just out there smiling.

“Faith points you to a different life, and he is an opportunity for people to show what they’re really made of.”

But Bibbs said not all people can see past the physical.

“Just recently I was driving along, dropping my nephew off at the bus stop, and I was at a light,” Bibbs said. “I happened to glance over to my left, and I see a car full of guys laughing.

“I was just shocked. I don’t understand why someone would laugh. I can understand if someone is afraid or curious or something like that. But laugh? I just don’t understand that.”

If you see him, he said, don’t laugh, he said. “Just ask.”

Reggie Bibbs

• Age: 42

• Community connection: Member of Second Baptist Church on Woodway

• Fast fact: Bibbs recently received a Gold Addy Award for his advertising campaign encouraging people to “Just Ask”

• Quick Quote: “I thought his T-shirt idea was brilliant. He’s trying to answer a question before the question is even asked” — Lou Congelio, owner of STANANDLOU Advertising, 1001 West Loop South.

Info: For more information: www.reggiebibbs.com , or e-mail reggiereggiebibbs.com

Link to article in chron.com

February 26, 2007 Posted by | ADDY Awards, neurofibromatosis, News | , , , , , | 7 Comments

SIGHT LIKE A BAT

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I thought this would be a fun post. I would like to know if any of you had similar problems. I didn’t think about until a friend brought it to my attention. I drove over to a friends house just after dark. I found it like I was driving to where I live with my mom. No problem at all. So, guess what happen when I went to my friends house around noon? You guessed it. I couldn’t find it. I passed his house three times. It would have been four times, if he had not chased the car down yelling my name. Now how crazy is that? My friend and I laughed about it most of the day. I just did not see the house.

February 25, 2007 Posted by | About Me | , , | 4 Comments

RODEO HOUSTON PARADE

The Rodeo Houston Parade is going on now. I’am not able to be there this time. Thank goodness its on Television. I can enjoy it just as well. It seems to be going very well, and I can see everyone there is having a enjoyable time. Lots of smiling faces. WOW! Really looks fun. I wonder how many of my friends are there having fun. I know as least one of my personal friends will tell me all about it. I would love to hear from all of you that attend the Parade today.

February 24, 2007 Posted by | RODEO | 2 Comments

TEXAS TRAIL RIDERS MOSEY INTO MEMORAL PARK IN HOUSTON

Hello Friends, I was one of the lucky Texans, who saw the trail riders come to town. It was a great sight. Everything western. The weather wasn’t the best, but it was good for the trail ride. All of the riders seem to be happy. Did any one else see the riders enter town. Post about it? I would love to hear from you.

On another note, Please let me know If you have not received a reply from me. All of the email has made a difference in mylife. I am learning so much from all of you.

February 23, 2007 Posted by | RODEO | , , , | 6 Comments

HOUSTON CHRONICLE ARTICLE!!!

Great news! Kim Hughes of the Houston Chronicle called on Tuesday wanting to interview me for an article in the paper. I said sure, you bet! So she asked me a lot of questions about growing up, the website, the “Just Ask” t-shirt and it was really fun. And she was just wonderful! If Kim is any indication of the type of people who work for the Chronicle, I’m going to be a lifelong subscriber.

But there’s more.

I just finished a photo session for the Houston Chronicle at my house. The photographer, Clayton R. McKee, was real nice and made me feel very comfortable. He took photos of me and my Mom in our “Just Ask!” t-shirts, me playing pool and stuff like that.

I am not sure when the article is coming out but you can be sure that when it does, I’ll post it here! Thank you all again so much for your support. I am truly blessed to have so many wonderful friends!

Write me and let me know how you are enjoying the site.

February 22, 2007 Posted by | neurofibromatosis, News | , , , , , , | 4 Comments

Addy Award Nomination

Guess what!

Lou Congelio just called me. He is president of STANANDLOU Advertising, the agency thatreggiebibbswhoami2.jpg helped me develop this Web site. This site has been nominated for an Addy award and the awards ceremony is on February 17. Lou and I are invited to a dinner and an awards presentation.

I am really excited about the nomination. Winning would be a great honor, not just for me, but for everyone else who has NF. People with NF and other disfiguring conditions find it difficult to do everyday tasks, and this site increases public understanding of the hurdles that we have to overcome.

Thumbs up If we win, I will accept the award on behalf of Ronnie, my brother who had NF and cancer. He died in September of 2006, and I miss him a lot. One of the benefits of this site is to tell everyone that people with NF may be susceptible to developing cancer. NF itself is not life-threatening, but if you have it, you need to be in the care of a physician and alert him or her if anything changes about your condition.

Do you have NF? Do you know of someone who does? If yes, tell me your story. I will be thinking about you at the awards ceremony.

February 7, 2007 Posted by | ADDY Awards, neurofibromatosis | 7 Comments

Some People

Yesterday, I took my nephew to the bus stop. We stopped at a traffic light. You know that feeling you get when someone is looking at you? I felt that. When I look to my left, I saw a car with four people looking at me laughing.

I was bewildered. Why is someone’s outward appearance funny? I can understand a person being afraid to look at me, but to think I am funny? I do not understand.

Has this ever happened to you? If it has, I am really sorry. Please write and tell me about it. Believe me; I will sympathize with how you feel.

This Web site will be good because we can encourage people not to look at our outward appearances, but at our hearts.

February 7, 2007 Posted by | Appearances, neurofibromatosis | 6 Comments