neurofibromatosis cafe

A place to talk about NF, have fun and share.

TRIP TO WASHINGTON DC FOR NF

3269667417_eb0347c6dc_oThe Texas Neurofibromatosis Foundation is sending a few of us to Washington DC, to speak to our Senators about Neurofibromatosis, in hopes of getting more support and funding for NF research. We leave Houston This Sunday, Feb 8th, return Wednesday, the 11th. When Susan Johnson, president of the Texas NF Foundation asked me to go with them, I was more then happy to be a part of this great opportunity to meet the Senators and show them how important it is that we have their support in the fight against this disorder. I know this trip will make a difference. Wish us luck!

SEE PHOTOS HERE!!!!

February 3, 2009 Posted by | neurofibromatosis | 82 Comments