neurofibromatosis cafe

A place to talk about NF, have fun and share.

Request from the Texas Neurofibromatosis Foundation

We need your help! We just learned that members of the House and Senate Defense Appropriations Subcommittee will be meeting this weekend to work on the 2009 Defense Appropriations bill.  We need you to contact your members of Congress to inform them of the importance of NF research so we can save the Department of Defense NF Research Program.

Please take the time to call, fax or email your members of Congress.  Ask them to contact Congressmen John Murtha and Bill Young, in the House, and Senators Daniel Inouye and Thad Cochran, in the Senate.  Have your representatives ask Murtha, Young, Inouye, and Cochran to provide $20 million for Neurofibromatosis research through the Army’s NF Research Program in the Fiscal 2009 Department of Defense Appropriations bill.

This is urgent! To find your representatives go to

Thank You,

Texas NF Foundation

Texas NF Foundation is committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.


September 18, 2008 - Posted by | neurofibromatosis |

1 Comment »

  1. Seems like they get trickier and wait to the last minute to annouce this each year. Makes me wonder they do this so that many people will not respond….this is just my thoughts….thanks for the FYI on this notice.

    Comment by JohnP | September 18, 2008 | Reply

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