neurofibromatosis cafe

A place to talk about NF, have fun and share.

Charles, June and John Lowe raise over one million dollars for Texas NF Foundation!

Texas Neurofibromatosis Foundation Newsletter

Charles, June and John Lowe raise over one million dollars for the foundation!

Charles, June and John Lowe raise over one million dollars for the foundation! The Lowes have been with the foundation since the very beginning and have been raising funds through a weekly bingo session since 1988. Their devotion and contributions are more than appreciated, they are our inspiration and the backbone of this foundation.

Senator Harkin speaks out for NF! For the past several years, Senator John Harkin has sponsored an “NF Dear Colleague letter.” This letter was drafted to ask that all US Senators support NF research through the Department of Defense Appropriations Committee. These effort are the very reason scientific advancements have been made towards a cure for NF! Please join us by personally thanking Senator Harkin for his continued support.


JULY Summer Family Picnics: Bring the family and meet others in the Houston, Dallas and San Antonio areas!.

June 26, 2008: Support Group Meeting, Dallas, TX
Sept. 5-7, 2008: NF Family Camp, Burton, TX
Sept. 23, 2008: Friends FORE Friends Golf Tournament, Richardson, TX
October 18, 2008: Spam OH! Rama, Irving, TX

2008 Symposium: Dallas, TX. More details to come.


Scholarship deadline is July 15th. APPLY NOW for the John D. Wagner and Elisabeth R. Wagner Fund.

Welcome Jennifer to our corporate office! Jennifer Kronvall joins from us from Washington state through the ExxonMobil summer internship program. She will be a great asset to our patient outreach program this summer!

Over $208,000 raised for NF! Dining Out In Dallas, Battle Of the Chefs, Houston Highlights, A Celebration Of the Chefs, AND San Antonio’s Red McComb’s Golf Tournament were all HUGE successes! Thanks to all who contributed and volunteered!

See more photos here.


Help over 8,000 NF Texas Families by contributing to our annual campaign. Become a member of our DFW area auxillary group:”Friends of Children with NF.”

Other ways you can help:
Give To NF Each Time You Shop At Tom Thumb!
Click Here To Request A Kroger Plus Card!

Search the web with GOODSEARCH and raise funds for NF.
(Just make sure to enter TNFF in the recognition box)


Be a Mentor and start connecting with others through our


We are committed to meeting the needs of people challenged with neurofibromatosis by providing care, comfort, support, information, education, funding and other resources for its treatment, prevention and cure.

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Texas Neurofibromatosis Foundation | 6555 Sierra Drive | Irving | TX | 75039


June 18, 2008 - Posted by | Awareness, neurofibromatosis, News, Texas NF Foundation | ,


  1. Congratulation to the Lowe’s for supporting The Texas Neurofibromatosis Foundation.I’m happy to have them as friends.

    Comment by Reggie Bibbs | June 18, 2008 | Reply

  2. Kudos to the Lowes! Charles, June and John are three of the nicest people you will ever meet! They have been raising incredible amounts of money for many, many years and we are all so appreciative of their dedication and belief in the Texas NF Foundation. There is no doubt in my mind that without the Lowes, there may not be a Texas NF Foundation.Money solves a lot of problems. Bless you Charles, June and John!

    Comment by - the blogger formerly known as Lou | June 18, 2008 | Reply

  3. Congrads and kundos to the Lowe’s. In 1987, the Lowes were the first NF Family I met with NF. This was at the Texas NF/NFL Alumni event in Dallas. I never been to one of their bingos game, they also play part in the Denise Terrill tennis and golf tournaments as well.

    Comment by John | June 19, 2008 | Reply

  4. thank you Lowes family we appreciate all you have done to help NF thank you very much we all appreciate it

    Comment by Brian | June 19, 2008 | Reply

  5. HI YALL

    Comment by Shelley | June 19, 2008 | Reply

  6. hey shelley whats up have not heard from you in a while I was hoping your still alive LOL

    Comment by Brian | June 20, 2008 | Reply

  7. Thank you for posting. Lots of great news and great events coming up.

    Comment by Cindy Hahn | June 20, 2008 | Reply

  8. No Problem Cindy. Happy to do it.

    Comment by Reggie Bibbs | June 20, 2008 | Reply

  9. Hey Brian Im still alive just been busy is all lol

    Comment by Shelley | June 21, 2008 | Reply

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