neurofibromatosis cafe

A place to talk about NF, have fun and share.

Reggie Bibbs Wikinews Interview

17115693_160x120.jpgReggie Bibbs was interviewed on Nov 23, 2007 for Wikinews describing what it is like living with neurofibromatosis and what he has done via his website, blog and other resources to increase awareness of NF.”

Click to watch Reggie Bibbs interview on Neurofibromatosis

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November 29, 2007 - Posted by | About Me, Awareness, Blogs, Celebrity, Friends with NF, M.D. Anderson, neurofibromatosis, Research, Texas NF Foundation, Video | , , , ,

24 Comments »

  1. You are truly amazing Reggie, You have so much courage I hope one one day I can be half the person you are. Thank you for all you have and are doing. God bless you

    Comment by Patricia | November 29, 2007 | Reply

  2. Thank you Patricia. I couldn’t do it with out the support of my friends.(you) and the others here.

    Comment by Reggie Bibbs | November 29, 2007 | Reply

  3. Well done, Reggie. You are a great spokesperson for everyone challenged with NF.

    Comment by adgiant | November 29, 2007 | Reply

  4. My heart is full of joy. The nice comments are heart warming.

    Comment by Reggie Bibbs | November 29, 2007 | Reply

  5. Great job Reggie! You have done so many interviews!!

    Comment by Emily | November 30, 2007 | Reply

  6. 🙂 thank you Emily

    Comment by Reggie Bibbs | November 30, 2007 | Reply

  7. Im happy too

    Comment by Shelley | November 30, 2007 | Reply

  8. Greetings from New York City. It’s snowing and cold!!! Went to Rockefeller Center to see the Christmas decorations and went shopping. Nice place to visit but wouldn’t want to live here. Takes too much energy and money!

    Comment by adgiant | December 2, 2007 | Reply

  9. Hope you have time for photos. Thanks for taking time to write.

    Comment by Reggie Bibbs | December 2, 2007 | Reply

  10. Lou, did you see the Statue of Liberty, and all the Mom and Pops stored, those are the two things I would like to see in NY NY, there is alot of other stuff too, those two just intrest me most.

    Comment by Patricia | December 2, 2007 | Reply

  11. Hey Reggie, I hope you don’t mind, but I posted this interview on daily strength, you have gotton a lot of rave reviews, they are greatful and thankful for all that you do. keep up the good work

    Comment by Patricia | December 3, 2007 | Reply

  12. Sure that is ok with me. Thank you for doing that.

    Comment by Reggie Bibbs | December 4, 2007 | Reply

  13. Great idea, patricia. The more we can do links like that, the faster we can raise awareness. Keep doing what you’re doing!

    And yes I saw the statue of liberty while in NY and ate in a lot of great places…some fancy, some dives but ALL good!

    Comment by adgiant | December 4, 2007 | Reply

  14. Reggie I hope you dont mind if I send m y family the web page

    Comment by Shelley | December 5, 2007 | Reply

  15. Hey Reggie
    Have you ever thought of conacting Oprah, she a lot of people watching her,

    Comment by Patricia | December 5, 2007 | Reply

  16. Patricia I though about her lots of time. I’m not sure if she will want to do that kind of show. What do you think? I wouldn’t want to try to contact her and say hey do a show on me. She will think that Reggie is so full of himself.lol Which I’am. lol.

    Comment by Reggie Bibbs | December 5, 2007 | Reply

  17. I don’t think you’re full of yourself! I think you’re full of something else…

    Comment by adgiant | December 6, 2007 | Reply

  18. Now that I think about it, the first part of it is true and the second part is all made up.

    Comment by Reggie Bibbs | December 6, 2007 | Reply

  19. I don’t think she would think you full of herself, it all depends on presentation, First explain ALL of the complications of NF, and then how very few people have even heard of it even those it affects more people then the other genetic disease combine, and that it can be deadly and very disabilty and all the pain that so many people are in a lot of pain because of NF, how many people go untreated because of ignorance of NF and your goal is to educate people on NF and hopefully find a cure for NF and the only way we can do anything to help ourselves is to first and formost is to get NF known to the public, how else will be able to raise monies and more attention to this horrible disease that we have if not to many people know of NF I found you very courages, to be strong enough and willing to go on national TV one of the biggest shows out there I think she would find you courages and strong and wonderful for having the strength to put yourself out there It takes a special person to go out in front of people like that, I don’t think she would think you are full of yourself
    What does anyone else think???

    Comment by Patricia | December 6, 2007 | Reply

  20. I feel better about it after reading your comment. I was thinking that she might think. I was boasting or trying to fish for kind comments. I will have to research on how I would contact the show. I think it will take a lot of leg work to make it happen. It will happen though.

    Comment by Reggie Bibbs | December 6, 2007 | Reply

  21. Reggie I think that would be a good idea to contact Oprah show I think it would help get the word out about NF I honestly think you should do it

    Comment by Brian | December 7, 2007 | Reply

  22. Hey there an FYI I didnt know anything about NF or The Elephant Man till I met Reggie

    Comment by Shelley | December 10, 2007 | Reply

  23. Delayed reply on comment 22. From what I have read John Merrit
    had a disorder other then NF. I will have to do a little more research. Because of His story I think NF was recognized.

    Comment by Reggie Bibbs | December 14, 2007 | Reply

  24. reggie, im not quite sure what your problem is, im not sure on your whole delima, maybe i should do some research on nf, idk. but sounds like ur a good guy, keep it up.

    Comment by jimbo | March 11, 2008 | Reply


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