neurofibromatosis cafe

A place to talk about NF, have fun and share.

REGGIE VERSUS ADGIANT

HOLD STILL

I hope you are enjoying the blogs and the fun we are having here, as we learn about Neurofibromatosis. We are here for everyone who has NF or has a family member with the disorder. I support you as well as my friends on my blog. Let’s continue to share our stories and information with each other about NF. With all that being said, I would like to share a photo with you. My friend ADGIANT or better known as Mr. Smart Mouth. This was a dream come true shoot. The only bad thing about this, is the photographer didn’t let me finish.

August 29, 2007 - Posted by | Adgiant, Friends, Fun, Just Ask!, neurofibromatosis, nf, NF1 | , , , , , , ,

105 Comments »

  1. I did my best to squeeze as hard as I could.

    Comment by Reggie Bibbs | August 29, 2007 | Reply

  2. Poor Lou

    Comment by Shelley | August 29, 2007 | Reply

  3. It didn’t hurt.

    Comment by adgiant | August 29, 2007 | Reply

  4. My hand prints showed up on his neck better then his hand prints on mine. lol

    Comment by Reggie Bibbs | August 29, 2007 | Reply

  5. Oh he tried to scratch me and pull my hair. Good thing I just got a hair cut.

    Comment by Reggie Bibbs | August 29, 2007 | Reply

  6. I was willing to let him off easy until he touched my hat.

    Comment by adgiant | August 29, 2007 | Reply

  7. thats a great picture I like that but I am not taking anysides on that LOL

    Comment by Brian | August 30, 2007 | Reply

  8. lol

    Comment by Reggie | August 30, 2007 | Reply

  9. Alright now, there will be no fighting amongst the boys! BEHAVE!! I already have to keep my 2 year old and 4 year old in line and I can put up a mean fight myself! lol Great picture!
    PS – Reggie I think you can take him easy😉

    Comment by Emily | August 30, 2007 | Reply

  10. It is soo nice to see the two of you waltzing like that….1..2..3…..1…2..3…and twirl…

    Comment by Eleanor | August 30, 2007 | Reply

  11. (____)? (____)? (____)? fresh starbucks

    Comment by Shelley | August 30, 2007 | Reply

  12. I DON’T DO TWIRL!!!

    Comment by adgiant | August 30, 2007 | Reply

  13. AW why not Lou

    Comment by Shelley | August 30, 2007 | Reply

  14. whats up Shelley

    Comment by Brian | August 30, 2007 | Reply

  15. hey Lou how are you today I like the picture of you and Reggie its a master piece its great

    Comment by Brian | August 30, 2007 | Reply

  16. wondering what yall are doing Brian about make me a cup of starbucks you?

    Comment by Shelley | August 30, 2007 | Reply

  17. Brian im wondering if Lou is playing with Reggie voodoo doll

    Comment by Shelley | August 30, 2007 | Reply

  18. probably I would not doubt it

    Comment by Brian | August 30, 2007 | Reply

  19. I don’t drink starbucks I drink Foldgers its a lot cheaper starbucks is to expensive

    Comment by Brian | August 30, 2007 | Reply

  20. I agree with on that Brian My dad buys me the starbucks

    Comment by Shelley | August 30, 2007 | Reply

  21. man I have never tried it but people say its really good didd you see the picture of the Reggie voodoo doll on the blog page I think that is mean

    Comment by Brian | August 30, 2007 | Reply

  22. yes i did got a laugh out of it

    Comment by Shelley | August 30, 2007 | Reply

  23. Reggie called and said his electricity is off and he can’t access the website. Boo-hoo!!!

    Comment by adgiant | August 30, 2007 | Reply

  24. poor Reggie I wonder why its off is the weather bad over there

    Comment by Brian | August 30, 2007 | Reply

  25. No, just crappy service!

    Comment by adgiant | August 30, 2007 | Reply

  26. Shelley next time you drink some starbucks drink some for me

    Comment by Brian | August 30, 2007 | Reply

  27. Ok I’m back. Oh Its on now. lol.

    Comment by Reggie | August 30, 2007 | Reply

  28. WB Reggie

    Comment by Shelley | August 30, 2007 | Reply

  29. You know Iwill Brian

    Comment by Shelley | August 30, 2007 | Reply

  30. Let me explain the photo. I ask Lou if I could use the photo. We was just playing around taking photos for the company, He said do something and that was the only thing I could think of. Thankl goodness he didn’t hit me. It was all in fun. You see Lou thinks I’m just a teddy bear. The one Elvis sings about.lol

    Comment by Reggie | August 30, 2007 | Reply

  31. Just getting caught up. You will what?

    Comment by Reggie | August 30, 2007 | Reply

  32. I will drink some for you too.

    Comment by Reggie | August 30, 2007 | Reply

  33. Brian its fix now

    Comment by Reggie | August 30, 2007 | Reply

  34. Lou is playing.

    Comment by Reggie | August 30, 2007 | Reply

  35. Yall being good ?

    Comment by Shelley | August 30, 2007 | Reply

  36. welcome back Reggie you said you will drink some too it was me and Shelley talking about coffee she drinks starbucks and I told her to drink some for me next time because its to expensive for me

    Comment by Brian | August 30, 2007 | Reply

  37. I drank the whole pot Brian

    Comment by Shelley | August 30, 2007 | Reply

  38. What are the plans for the weekend yall No Lou I dont want to hear about voodoo dolls

    Comment by Shelley | August 30, 2007 | Reply

  39. I’m going to make Lou buy me lunch or something. Maybe some coffee. Yea that’s it. Starbucks double shot layta

    Comment by Reggie | August 30, 2007 | Reply

  40. Go for it Reggie drink one for me

    Comment by Shelley | August 30, 2007 | Reply

  41. Then that mean Lou will have to buy two. One for me and the one I will drink for you. I smell Coffee . I think mom is making coffee right now. For real.

    Comment by Reggie | August 30, 2007 | Reply

  42. Tell Mom hi for me

    Comment by Shelley | August 30, 2007 | Reply

  43. You got it.

    Comment by Reggie | August 30, 2007 | Reply

  44. Drink one for me Reggie

    Comment by Shelley | August 30, 2007 | Reply

  45. You guys remind me of my father and this guy he knew….dad had a voodoo doll that he made of the man and used to beat on it with a wrench whenever he would come into the shop (dad’s a mechanic and the guy was a service writer….can’t remember his name). It was classic.

    Comment by Tammy | August 30, 2007 | Reply

  46. Its just a joke. Lou of funny and he is 2 can short of a six pack. He will even tell you that. lol Tammy did you know about the nf camp? It’s suppose to be next weekend.

    Comment by Reggie | August 30, 2007 | Reply

  47. Let’s not loose focus. I have a question for everyone. Dose anyone know if diet has anything to do with how nf affects us. Has any studies been done,to see if certain vitamins might help in some way.

    Comment by Reggie | August 31, 2007 | Reply

  48. Ask your DR Reggie Im sure if everybody ate right took vitamins we all feel better

    Comment by Shelley | August 31, 2007 | Reply

  49. One thing I want to make sure that everyone knows, That I am NOT! a doctor. One I do not give medical advice. I was asking if any one knew if studies have been don on NF patients to see what or if any affects diets of vitamins has on NF. Just wondering. I haven’t heard anything.

    Comment by Reggie | August 31, 2007 | Reply

  50. My son’s neurologist has never mentioned anything to us about vitamins affecting his NF or anything. Its something worth researching though.

    Comment by Emily | August 31, 2007 | Reply

  51. Yea I was just wondering if that would play a role helping in some way. I have never heard anything about it.

    Comment by Reggie | August 31, 2007 | Reply

  52. Reggie my Opinion is I dont think vitamins well affect the NF I drink like sometimes 5 ensures a day they are good for you and healthy for you I also take one a day vitamins and it makes me fell better so my opinion is I dont think it would affect the NF although I dont know for sure though I would ask a doctor

    Comment by Brian | August 31, 2007 | Reply

  53. I know I do need to have a better diet. I was just wondering about the benefits of nutrition and vitamins toward NF.

    Comment by Reggie | August 31, 2007 | Reply

  54. Reggie I agree but like i said i dont no for sure if they affect the NF I would ask a doctor though

    Comment by Brian | August 31, 2007 | Reply

  55. I meant that i agree about them affecting the NF

    Comment by Brian | August 31, 2007 | Reply

  56. Yep I got you. I don’t know why I never thought about asking my doctor about that before now.

    Comment by Reggie | August 31, 2007 | Reply

  57. Vitamin D deficiency associated with number of neurofibromas in neurofibromatosis 1

    Published Online First: 29 March 2006. doi:10.1136/jmg.2006.041095
    Journal of Medical Genetics 2006;43:810-813
    Copyright © 2006 by the BMJ Publishing Group Ltd.

    M Lammert1, J M Friedman2, H J Roth3, R E Friedrich1, L Kluwe1, D Atkins4, T Schooler5 and V-F Mautner1

    1 Department of Maxillofacial Surgery, University Hospital Eppendorf, Hamburg, Germany
    2 Department of Medical Genetics, University of British Columbia, Vancouver, Canada
    3 Limbach Laboratory, Department of Endocrinology/Oncology, Heidelberg, Germany
    4 Institute of Pathology, University of Witten/Herdecke, Wuppertal, Germany
    5 Department of Paediatrics, University of British Columbia, and Child and Family Research Institute, Vancouver, Canada

    Neurofibromatosis 1 (NF1) is a tumour suppressor gene syndrome characterized by multiple cutaneous and plexiform neurofibromas. Focal osseous abnormalities, short stature, and decreased bone mineral density are also frequent in people with NF1. We measured serum 25-hydroxyvitamin D concentrations in 55 patients with NF1 and 58 healthy controls, and correlated the findings in the patients with NF1 with their estimated number of dermal neurofibromas. Geometric mean (SD) serum 25-hydroxyvitamin D concentration was 14.0 (1.6) ng/mL among the patients with NF1 compared with 31.4 (1.7) ng/mL among healthy controls (p<<0.0001). The serum vitamin D concentration and number of dermal neurofibromas reported by patients with NF1 were inversely correlated (Spearman’s {rho} = –0.572, p<0.00001). The occurrence of low serum vitamin D concentrations in people with NF1, especially those with many dermal neurofibromas, may provide new pathogenic insights and have important therapeutic implications.

    Comment by adgiant | August 31, 2007 | Reply

  58. I dont know much about NF but I know this we all need a diet of lean protein veggies good fats and watch carbs we would all feel better

    Comment by Shelley | August 31, 2007 | Reply

  59. And don’t talk with your mouth open.

    Comment by adgiant | August 31, 2007 | Reply

  60. Sounds good to me.

    Comment by Reggie | August 31, 2007 | Reply

  61. Hey everybody guess what im drinking

    Comment by Shelley | August 31, 2007 | Reply

  62. martini ?🙂

    Comment by Reggie | August 31, 2007 | Reply

  63. nope Reggie starbucks

    Comment by Shelley | August 31, 2007 | Reply

  64. Say what Lou DO you eat with your mouth open ?

    Comment by Shelley | August 31, 2007 | Reply

  65. Shelley I am drinking a smoothie from smoothie king and a little later on I will be drinking me a ensure dont forget to drink some starbucks for me

    Comment by Brian | August 31, 2007 | Reply

  66. I’m drinking a vintage 1997 Ozarka natural spring water that I found in the back of a closet that I was cleaning out. It still has its zestful bouquet.

    Comment by adgiant | August 31, 2007 | Reply

  67. Yuck!

    Comment by Reggie | August 31, 2007 | Reply

  68. Lou that water is outdated that is kind of nasty

    Comment by Brian | August 31, 2007 | Reply

  69. Lou was the water yellow that water is considered antique

    Comment by Brian | August 31, 2007 | Reply

  70. Two good one in a row Brian. Thank you.

    Comment by Reggie | August 31, 2007 | Reply

  71. Reggie, who asked you?!! Go play in traffic or something.

    Comment by adgiant | August 31, 2007 | Reply

  72. Go drink your warter

    Comment by Reggie | August 31, 2007 | Reply

  73. OK I cant even go sit outside I have to babysit Lou and Reggie

    Comment by Shelley | August 31, 2007 | Reply

  74. Anybody gonna BBQ this weekend

    Comment by Shelley | August 31, 2007 | Reply

  75. BBQ sounds really good Shelley you are making me hungry

    Comment by Brian | August 31, 2007 | Reply

  76. Wow! You won’t believe this. We are having BBQ Link sandwiches tonight.

    Comment by Reggie | August 31, 2007 | Reply

  77. kool

    Comment by Shelley | August 31, 2007 | Reply

  78. Reggie Lou is gonna learn how to crochet

    Comment by Shelley | August 31, 2007 | Reply

  79. Yes, a tourniquet around Reggie’s neck.

    Comment by adgiant | September 3, 2007 | Reply

  80. shut up adgiant!

    Comment by Reggie Bibbs | September 3, 2007 | Reply

  81. Brian I think its time to give him! I feel like bugging some body.

    Comment by Reggie Bibbs | September 4, 2007 | Reply

  82. someone said barb be que, the best bar b que sandwich i ever had was at McKenzies in Huntsville, “Poor Boy”, they chop up beef and links togather like chop beef, I am thinking that is were I just might have lunch tomorrow.

    Comment by Patricia Stokley | September 4, 2007 | Reply

  83. That was me Patricia. I love good Bar-b-que

    Comment by Reggie Bibbs | September 4, 2007 | Reply

  84. then if you ever make it to Huntsville go to McKenzies, his brother has a place in conroe, also called McKenzies, it is not a chain, one brother has one in Conroe, and other has one in Huntsville, I live in Montgomery and work in Huntsville. They both have a good bar b que

    Comment by Patricia Stokley | September 5, 2007 | Reply

  85. Links and ribs

    Comment by Reggie Bibbs | September 5, 2007 | Reply

  86. I had ribs Monday

    Comment by Shelley | September 5, 2007 | Reply

  87. Yumm sounds good.

    Comment by Reggie Bibbs | September 5, 2007 | Reply

  88. Hello friends,

    Most of you know that I will be attending the NF camp this weekend. I would like to give you a few things to think about while I’m gone. I know Lou would be more then happy to be a part of my idea. The reason I have post on this topic it works for this topic. My question is What picture would you like to see of Adgint. My hitting him a pie dunking booth. Dumped with lots of water. Lets get lots of comments and see what we can get Lou to agree to.

    Comment by Reggie Bibbs | September 7, 2007 | Reply

  89. Reggie I would love to see you get Lou good lol

    Comment by Shelley | September 10, 2007 | Reply

  90. I was hopping that I could hit him with a whip cream pie.

    Comment by Reggie Bibbs | September 10, 2007 | Reply

  91. Why do that You could have thown him in the pool

    Comment by Shelley | September 12, 2007 | Reply

  92. You should have brought a voodoo doll of Lou lol

    Comment by Shelley | September 12, 2007 | Reply

  93. answer to comment 91. We needed the water in the pool.

    Comment by Reggie Bibbs | September 13, 2007 | Reply

  94. !!!PIE!!! pie is good, there is a lot of mention of food on this blog, first ribs and now pie, lol

    Comment by Patricia Stokley | September 13, 2007 | Reply

  95. Put ALL of the pictures of ADGIANT

    Comment by Shelley | September 17, 2007 | Reply

  96. hey lou drink a martini for me, i would have some crown, but alcohol, dilantin and siezures dont make a good mix, I dont have cancer

    Comment by Patricia Stokley | September 17, 2007 | Reply

  97. Don’t worry Lou will be happy to have not one martini but a few. That is one problem Lou doesn’t have is drinking. He does that very well.

    Comment by Reggie Bibbs | September 17, 2007 | Reply

  98. Shelley lets get the crowd to back us up. Lou needs to get pit with a cream pie. We need pictures for the blog.

    Comment by Reggie Bibbs | September 17, 2007 | Reply

  99. hey lou what flavor do you like best

    Comment by Patricia Stokley | September 18, 2007 | Reply

  100. lol that’s funny. Can’t wait to see his reply.

    Comment by Reggie Bibbs | September 18, 2007 | Reply

  101. Me either Reggie

    Comment by Shelley | September 19, 2007 | Reply

  102. have we been to mean to lou, he won’t play with us anymore

    Comment by Patricia Stokley | September 25, 2007 | Reply

  103. Patricia watch this. Lou I’m sending you a big hug.🙂

    Comment by Reggie Bibbs | September 26, 2007 | Reply

  104. How rude he did not send you a hug back, lol I guess Lou is pounting, lol

    Comment by Patricia Stokley | September 26, 2007 | Reply

  105. LOL Yea Lou

    Comment by Reggie Bibbs | September 26, 2007 | Reply


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: