neurofibromatosis cafe

A place to talk about NF, have fun and share.

Minerva and Robert Terrill’s Story (Video)

the-terrills.jpg

Raising awareness of the disease their daughter has been fighting since she was 4 years old has been a top priority for Minerva and Bob Terrill of Dallas. Denise Terrill, now 29, has neurofibromatosis, a disease that has caused tumors to grow along her central nervous system, severely damaging her brain stem.

Dr. Bob Terrill, Denise’s father and a dermatologist, diagnosed his daughter’s disease when she was a toddler. Since then, Denise has endured 18 major surgeries, the first of which occurred in 1990 and resulted in her hearing loss. Confined to her bed for almost 10 years, she has lost sight in one eye. She requires a ventilator to breathe and receives nourishment through a feeding tube.

Currently there is no cure or treatment for neurofibromatosis, but researchers hope that soon will change. With an $89,000 gift from the Terrill family, raised through annual tennis and golf tournaments, Razelle Kurzrock, M.D., professor of experimental therapeutics, plans to conduct clinical research using the natural substance curcumin to block the signaling pathways in genes that enable neurofibromatosis to spread.

“There’s a wealth of data showing that curcumin inhibits the growth of tumors in pancreatic and colorectal cancer, and a lot of those pathways are the same for neurofibromatosis,” says Kurzrock. “So, the question is: Would curcumin inhibit those pathways in neurofibromatosis? The rationale sounds very strong to me.”

Last year the Denise Terrill Charity Tennis and Golf Classics set a new record by bringing in net proceeds of $113,000.

“We are so excited that we have enabled this research to go forward, giving hope to those affected by neurofibromatosis,” says Minerva. “And we are especially pleased to be funding a project at M. D. Anderson since it is in our home state of Texas, but also because if the research we are funding is successful, Dr. Kurzrock hopes to start clinical trials with curcumin within one year. That will bring much needed hope to those patients and families affected by neurofibromatosis.”

The Denise Terrill Charity Classics have raised more than $700,000 for neurofibromatosis research. For more information, please visit www.deniseterrillclassics.com.

Denise Terrill Charity Tennis and Golf Classic

Denise Terrill Video

May 22, 2007 - Posted by | Friend, neurofibromatosis, Texas NF Foundation | , , , , ,

5 Comments »

  1. Hey, nice blog. I’m an NFer too.

    I have a NF related blog… take a look see sometime🙂. I’ll add you to my link when I get around to editing my template.

    Comment by otre | May 22, 2007 | Reply

  2. Thank you. I will go to your blog. would you like me to add a like to your blog as well?

    Comment by Reggie Bibbs | May 22, 2007 | Reply

  3. This year, will be August 10 – 12, in Dallas. A fun time to come to watch tennis and to support a great cause.

    Comment by John P | May 22, 2007 | Reply

  4. sure, sounds good to me!

    Comment by ou·tré | May 23, 2007 | Reply

  5. I’m not sure if I can get to Dallas, but I sure will try. I know it will be a great event.

    Comment by Reggie Bibbs | May 23, 2007 | Reply


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