neurofibromatosis cafe

A place to talk about NF, have fun and share.

Disfigured man with neurofibromatosis launches “Just Ask!” campaign!

Reggie Bibbs has lived with neurofibromatosis (NF) all his life. NF causes tumors to grow throughout the body sometimes causing pain, disfigurement and even death. Because of his disfigurement, Reggie has led a fairly sheltered life leaving the house only to go to places where people knew him. Well, until now!

read more | digg story

May 21, 2007 Posted by | neurofibromatosis | , , , | 22 Comments

Reggie Bibbs – “This is NF”

Reggie Bibbs, Houston, Texas, has neurofibromatosis. In this fun and informative 60-second television public service announcement, Reggie explains what it’s like living with neurofibromatosis but, more importantly, how he lives with it. He is funny, upbeat and very courageous. An inspiring video made by an inspiring man!

read more | digg story

May 21, 2007 Posted by | neurofibromatosis | , , , | Leave a comment

SHARE YOUR NF EVENT PHOTOS

charles-reggie-bob.jpgI set up an Flickr account for Texas NF photos and I would like people to go to Flickr and upload your favorite photos. Or if you don’t know how, you can send them to me. I will upload them for you. Here is the link. http://www.flickr.com/groups/344939@N24/

Maybe you have pictures from camp you want to share. Or maybe a support group. I hope to see your photos soon.

May 21, 2007 Posted by | A MESSAGE FROM REGGIE, Links, neurofibromatosis, News, nf, NF1, Photos | , , , , | 5 Comments