neurofibromatosis cafe

A place to talk about NF, have fun and share.

My favorite Mexican Restaurant – Tila’s Restaurante and Bar on South Shepherd in River Oaks!

Arthur Meyerson, Lou Congelio and I stopped at Tila’s on Friday for lunch.Arthur Meyerson, Lou Congelio and I stopped at Tila’s on Friday for lunch and had one of the most incredible meals know to man or woman. The service was great and we were made to feel very special. Thank you all!

More photos!

May 10, 2007 Posted by | A MESSAGE FROM REGGIE, Favorite Places, Friends, Fun, Links, neurofibromatosis, Photos | 10 Comments

Philanthropy World Profiles Texas NF Foundation by Bob Hopkins

Bob HopkinsThe Texas Neurofibromatosis Foundation was founded in 1978 by an Austin mother whose son had NF, a genetic disorder that causes disfiguring tumors. While the disease is not uncommon, most people do not know of the disease, partially because people who have it tend to shield themselves to avoid public ridicule.

During the ten years after it was founded, the families involved with the foundation raised money any way they could – from walkathons, skateathons, garageKathy Price and NF board members sales, and all the other means “families” use to help their own.Relief for the group came when the Dallas and Houston NFL alumni adopted their cause. Annual golf tournaments were established to support a small office in Austin and raise limited funds to support budding research projects. Continue reading

May 10, 2007 Posted by | neurofibromatosis, Texas NF Foundation | 9 Comments