neurofibromatosis cafe

A place to talk about NF, have fun and share.

TEXAS NF FOUNDATION SYMPOSIUM, MAY 5, 2007 IN HOUSTON!

nflogo.jpg

Texas Neurofibromatosis Foundation and
Texas Childrens Hospital/Baylor College of Medicine
2007 NF Symposium: Link to Education
Saturday, May 5, 2007
8:30 a.m.— 4:00 p.m.

Symposium Cost: Free

Phone: 972-868-7942 Email: patientoutreach@texasnf.org / Website: www.texasnf.org

MD Anderson NF Clinic

Baylor College of Medicine

Texas Children’s Hospital

2007symposium-1.pdf

Overview: We are very excited to be able to provide the 2007 Annual Symposium to patients, their families, educators and caregivers affected by NF.

The Symposium is a full day program designed to address one of our most significant and endless concerns-neurofibromatosis.

Kids Konference
For Ages 5-10

The Kids Konference will be held on the 2nd Floor Feigin Center, just around the corner from the Howland Auditorium. It will include children as arts and crafts, games, and a clown. There is limited space so sign up today for this exciting program where your kids interact with other kids with NF and their siblings.
We will provide breakfast and lunch for the children. Lunch will be cheese pizza. Please let us know of any allergies your child may have. You are welcome to bring them their own lunch or snacks for the day. Please let us know if you will be providing their own lunch. Please put your child all their belongings. Our volunteers will show you were to register your child and you will be responsible for picking them up at the end of the conference.
Other Information
Parking and directions will be mailed with your confirmation packet. If you will be traveling out of town a list of hotels in the Medical Center will also be included in your packet.
CE Credit
The NF Symposium is approved for CPE Credit for educators. Encourage your child
Other Details
Registration will begin at 8:30 a.m.
Registration Deadline: Friday, April 20
For more information call 972-868-7942
Symposium Cost: Free
Parking Cost: $10.00
If you do register and can not make it, please call and cancel by Monday, April 30 so, we do not include you in the food count.
Breakfast/Lunch : A continental breakfast and lunch will be served.

TOPICS

Update on Genetic Testing in NF1 and NF2
Dr. Sharon Plon
Clinic Chief, NF Clinic, TX Children’s Hospital
Associate Professor of Pediatrics and Molecular and Human Genetics, Baylor College of Medicine

Vision and Eye Issues Associated with NF
Dr. Richard Alan Lewis
Professor, Departments of Ophthalmology,
Medicine, Pediatrics, and Molecular and Human
Genetics and Faculty Associate, Huffington Center for Aging

Research Update
Dr. John M. Slopis
NF Clinic Medical Director, MD Anderson Cancer Center
Associate Professor of Pediatric Neurology
MD Anderson Cancer Center

Tumors of the Head, Neck, and Skull Base in patients with NF1 and NF2
Dr. John S. Oghalai
Assistant Professor, Otology, Neurotology, and Skull Base Surgery,
Baylor College of Medicine
NF Patient Panel

Tentative other topics:
Dermatological Issues and Education/Behavioral
Issues

2007 NF Symposium Registration
Name: _________________________________________________________________
Address:________________________________________________________________
City:___________________________________________________________________
State/Zip:______________________________________________________________
Home Phone:____________________________________________________________
Email:_________________________________________________________________
Please provide a list of attendees for symposium on
the back of this form or separate sheet of paper if more than one person is attending for
name tags and lunch count.
Any special needs?
________________________________________________________________________
________________________________________________________________________
KIDS KONFERENCE
Please list children attending Kids Konference and their age (5-10): attach separate sheet
if needed
_______________________________________Age:_______NF:_______
_______________________________________Age:_______NF:_______
_______________________________________Age:_______NF:_______
_______________________________________Age:_______NF:_______
Please list any special needs for the children attending Kids
Konference______________________________________________________________
_____________________________________________________________
May we publish your name, address and phone in a directory of attendees?_________
Check if receiving CE Credit: ______CPE
List of Attendees
Please list names and addresses of those attending symposium, Use separate piece of
paper if necessary.
Name:_____________________________________________________________
Address:____________________________________________________________
Phone:_____________________________________________________________
Email:_____________________________________________________________
Name:_____________________________________________________________
Address:___________________________________________________________
Phone:_____________________________________________________________
Email:_____________________________________________________________
Name:_____________________________________________________________
Address:___________________________________________________________
Phone:_____________________________________________________________
Email:_____________________________________________________________
Name:_____________________________________________________________
Address:___________________________________________________________
Phone:_____________________________________________________________
Email:_____________________________________________________________

Please mail registration form to:
TEXAS NF FOUNDATION
Attn: Symposium
6555 Sierra Drive
Irving, TX 75039-2479
Phone: 972-868-7942

Email: patientoutreach@texasnf.org / Website: www.texasnf.org

MD Anderson NF Clinic

Baylor College of Medicine

April 17, 2007 - Posted by | neurofibromatosis, News, Texas NF Foundation

3 Comments »

  1. I do plan to attend the Symposium. I hope to see you there.

    Comment by Reggie Bibbs | April 17, 2007 | Reply

  2. Reggie, I will be there. me and my two daughters. Can’t wait to meet you again. 1995 seems so long ago and my 12 y old was only a few months old and still on oxgen and monitors.. so looking forward to meeting you again. I’ll be in a red wheelchair.

    Bea

    Comment by mom2nfautism | April 19, 2007 | Reply

  3. I will be happy to see you again. We really need help. NF is really chainging us that are affect by it.

    Comment by Reggie Bibbs | April 19, 2007 | Reply


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