neurofibromatosis cafe

A place to talk about NF, have fun and share.

WHO HAS NEUROFIBROMATOSIS ?

gb.jpeghr.jpegThis is interesting to me. I saw a PSA for neurofibromatosis, with Harold Ramis. Harold Ramis is a comedian who was in Ghostbusters. I would like to know, doese he have nf ? does a family member have nf ? Or did he feel the need to help with making people aware of neurofibromatosis. It’s great that someone as famous as he, has join in that battle against nf. If you have not seen the psa, click HERE.

March 31, 2007 - Posted by | neurofibromatosis, Uncategorized | , , , , , ,

8 Comments »

  1. Phil Hartman was one of the first celebrities I ever heard talking about NF, it was on the Arsenio Hall Show. Gillian Anderson also does a lot of work for NF, I think her brother has NF.

    I don’t know how Harold Ramis got into the cause, but I’m glad he does it.

    Comment by Jeremy | March 31, 2007 | Reply

  2. Yea, I remember that. Its been s long time. I think we will see more people talking about nf now.

    Comment by Reggie Bibbs | March 31, 2007 | Reply

  3. I think Harold Ramis knows somone at the foundation. They made PSA when the foundation changed its name from National Neurofibromatosis Foundation to Childerns Tumor Foundation.

    Comment by Terri | April 1, 2007 | Reply

  4. Wow! I didn’t know that is how the Childerns Tumor Foundation came about. The great thing is that, the mission is still about helping to find a cure, and help for children with neurofibromatosis.

    Comment by Reggie Bibbs | April 1, 2007 | Reply

  5. Harold Ramis has been on the Board of Directors for NNFF (now the CTF). I don’t know why or what connection he has to NF, but I agree, we’re lucky to have him. I think the PSA is great.

    Comment by florence | April 7, 2007 | Reply

  6. Yes its good we have Harold Ramis. Maybe we will have more from Hollywood that will help with nf awearness.

    Comment by Reggie Bibbs | April 12, 2007 | Reply

  7. Hi, I live in Australia and my 9 year old son has NF1 and deformation of bones in his right leg. So far he has had 21 operations to try and save his leg. As not much is known about Nf in Australia we have just launched a web site.
    http://www.theblakerosefoundation.com
    We are always looking for new information and medical treatment. I can be contacted through the above site.
    Thanks and all the best to all 🙂

    Comment by zoeticdraco | October 23, 2010 | Reply

  8. If you happen to really need to see your kids consuming well, then you definately
    actually do must take the lead on this one.

    Comment by pol-con.pl | August 8, 2016 | Reply


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