My friend Francis was nice enough to send me a t-shirt all the way from France. I’m proudly wearing the NF FRANCE t-shirt. Francis also is a bloger here and he has is own blog page as well. He wrote about me in two of his blogs. We recently spoke on the phone and he, like all of us here, is spreading the word about nf and hope there will be a cure some day. There is always hope. The link to the site on the shirt is anrfrance.org If you would you can visit Francis blog. droitaladifference.blogspot.com/
You can use google translate if you don’t know French. It works really well. Some day I will visit France wearing my nf France t-shirt.
See all the photos HERE!
The Texas Renaissance Festival this weekend sounds like a terrific idea. I plan to be there Saturday to join in the fun. This will make my second year to attend. Last year was a blast and I’m sure this weekend will be just as fun as last year. See the link for more on the Festival. If you enjoy things like games food music then you will enjoy the Renaissance Festival. I will be there hope to see you. See the link for more information.
I’m looking forward to another great time in Burton Texas. Camp For All. The first day of camp is September 5-7th. Everyone who is going should have all there information submitted by now. I hope so.
Again this year The Texas Neurofibromatomatosis Foundation is having their annunial NF Family camp. Again we are going to have a terrific time meeting our friends from last year, and I know we will make new friends this year as well. Horse back riding swimming games and more. The best part is meeting new friends and sharing stories. It’s going to be a great one and I hope to see you there. Who knows you may see someone playing his music with his newly formed band. I’m not saying you will have to come and see. Some you know might play the autoharp. Just maybe.
hey fellow nf’ers its louise here aka wee_lou_c i’m 20 i’m an aquarius as my date of birth is 4th february 1988, i come from the U.K a quaint little town in the bonnie land of scotland it is called glenrothes which i’m guessing is called a state to you guys but its a county here but that is in fife so i’m a fifer. at the age of six i had a biopsy which verified i had nf but i never found this out till i had vision problems at the age of 12 so i was then officially diagnosed with nf2. iv had a little trouble within the years but nothing i couldn’t fight my way through as i believe to get on you have to forget what you have lost and remember who and what you still have. i like to chat as its great speaking about all the different cultures and food and things happening around the world plus i’ve made many new cool friends. i am a complimentary therapist so i like the calm side of life but i’ll never say no to a party. i absolutely love watching lovey dovey films aka chick flicks, i also love scottish stovies they are really braw oh i am sorry i mean good.
take care all and have some fun.
Dr. Bart Moore say’s “JUST ASK!” with his new mug and state-of-the-art, homeopathic “JUST ASK!” forehead patch
Yep, my good friend and also doctor, Dr. Bart Moore of MD ANDERSON CANCER CENTER. He is proudly displaying the items that he purchased at the “Just Ask!” online store a short time ago. Not only is he a supporter of NF and “Race Across America for NF”, he’s also a very cool guy to have on your side.
Could you get your doctor to take a photo like this? I don’t think so! What a great sense of humor. Thanks for sharing your photo Dr. Moore! You’re the best!!!
Check out what people had to say about Bart at my Flickr account.
My friends, Michael & Harold Wiesenthal, of Harold’s men’s store in the Heights, are helping me spread awareness of neurofibromatosis and my website by giving a free “Just Ask!” t-shirt to their customers.
Hopefully, people who receive my shirt will go to my website, www.reggiebibbs.com, to find out more about neurofibromatosis and what they can do to help.
I’ve known Harold and Michael for many years now and I can’t think of two nicer people in the world! They help me by altering my pants for free so that I can fit my leg through the opening. One year, they even staged a fashion show with Carolyn Farb in their store with proceeds benefiting research to help find the cure for NF.
Thank you, Harold and Michael, for helping me get the word out about neurofibromatosis. You both are very, very good friends!
Dear friends, while I was up in Dallas last week helping with the Denise Terrill Golf Classic benefitting NF, I got to talking with a few members of the Texas NF Foundation and we think it’s time that Houston had their own NF support group again.
Back in the 90′s, the Texas NF Foundation actually had an office here in Houston to help those in the area afficted by NF to get the medical help they needed. And just as important. support in their daily lives. Read more »
Hey Reggie,You most definitely can share this with Lou. If you put it up as part of your blog I’ll be able to answer directly on that.
We do hear gunfire everyday and bombs explosions 3 – 4 times a week. The gunfire I think is from the practice range, but the major explosions I have yet to figure out if they are incoming or outgoing, probably both.
When I originally applied for this job a lot of people ask me why I would want to work in war zones…….I never really told them why but I will tell you why. Read more »
Some time ago I received a heart warming message from John in Alaska. He too is a great parent that has a child with neurofibromatosis. I enjoyed reading his message and I spoke with him about sharing his message here, like I have done with some of your messages. I think its a great place to show John that he is not alone and we support him. Read his message and lets show some love to John. He will be happy to see the support he gets here.
(FROM JOHN) Read more »
Stay tuned for photos to be posted at your favorite Flickr site, or Reggie’s!
I missed you guys…in a perverse sort of way!
One of the best sporting events in Houston, in my opinion, is the Houston Roller Derby at Verizon Theater. I have been at least three times, and all I have to say you must go if you haven’t been. If you think it’s all fake and everything is rehearsed, think again. These ladies are tough!!! And some of them are real mothers! (No joke intended.)
I have enjoyed every game. They really treat the fans like they are the stars. I’m building quite a collection of photos with a lot of the team members. I still haven’t taken photos of everyone yet. Luckily, all of the team members are very accessible before and after the matches to talk, sign autographs, take photos and hang with audience members.
Hope to see you at one of the bouts. I know I will be attending as many bouts as possible.
Their next match isn’t until the third Sunday in August at the Verizon Theater downtown but many Houston Roller Derby members will be at the 35th Annual Tomball Night
Celebration in Tomball!
This would be a great opportunity to come meet and talk with your favorite Houston Roller Derby stars! I’m hoping to get a complete list of all planning to attend so as soon as I get that, I’ll post it here!
Here’s all the important details:
Date: Friday, August 3rd
Time: 5pm – ??
Cost: FREE- so come hang out!
Where: Bob’s Wild West
Address: 400 W. Main, Tomball
Directions: Take 249 North, turn Right on Main
Fun, Food, Music, Prizes, and Fireworks!
See ya’ll there!
FOR IMMEDIATE RELEASE
Contact: Mark Murray
ph: (512) 587-6833
“Uncle John” Turner
August 20, 1944 – July 26, 2007
Legendary Texas Blues Drummer Dies at 62
B.B King once exclaimed, “Man, I can set my watch to your time!”
Legendary Texas blues drummer “Uncle John” Turner died Thursday, July 26th, in Austin, Texas from complications related to hepatitis C. He was 62 years old.
Born in Port Arthur, Texas, Uncle John was a childhood friend and bandmate of legendary southeast Texas blues and rock guitarist, Johnny Winter. While playing drums with Winter in 1968, Turner convinced him to try a full-blown blues band format and sent for his friend Tommy Shannon to play bass. Success quickly followed, and the trio went on to record what many consider to be three of Johnny Winter’s finest albums: “The Progressive Blues Experiment,” “Johnny Winter,” and “Second Winter.” With fourth member Edgar Winter, they played Woodstock in 1969, as well as numerous other festivals and shows around the world. Read more »
I received a wonderful letter from my friend from years back. At the time I met Mike Moncrief, he was Senator Mike Moncrief for the State of Texas. And now he is Mayor Mike Moncrief of Fort Worth. He and his wife Rosie have been very supportive in everything I have been involved in. You will see that in the photos in my picture section on Flickr. Mike and Rosie also wear one of my JUST ASK t-shirts. I’m honored to call them my friends!
Here is the email that he sent me today:
“Hey Reggie, I just visited your website and i was most impressed. The ongoing
challenge of raising awareness of NF and search for a cure is made easier by your efforts. By the way, I wear my Tshirt every chance I get and have had numerous folk come up to me and ask about it. Keep up the great work and you are more than welcome to post this email on your blog.
I’m so happy that I am meeting new friends, to share our stories with one another. I asked Katie’s mom Vanessa about the UK. She writes a lot of things I enjoyed reading. I wanted to share them with you. Read below. I’m looking forward to the video, which I hope to post here. Thank you Katie and Vanessa! Read more »
Byron, Lou and I went to IKEA today to do a little shopping for my bedroom. I had just finished painting my bedroom and Lou suggested it might be a good time to do a little “spring cleaning” and take a new look at my bedroom. So we went to IKEA for ideas and saw this great bed for like $200! So I bought it! Read more »
Minerva Terrill, a board member of the Texas NF Foundation, presented a check for $90,000 to the hospital for NF research. This is something all of us who are affected with NF can be very excited about.
Great researchers and clinicians are out there looking for a cure and there are great people like Minerva and Cindy Hahn who are doing what they can to raise the funds needed to fund that research. We have a lot to look forward to. Stay tuned! I know more good news is ahead.
People are beginning to JUST ASK! This is GREAT! Friday night my family and I went to one of our favorite restaurants. Taste Of Texas.
We had the best time I can remember. It was 15 of us. Sisters, nieces, nephews, brother sister in-law,and Mom. Of course ME ME ME! We all sported out JUST ASK t-shirts. We felt like stars. We got a lot of smiles and people commenting on our t-shirts. Lots of you ASKED. I thank all of you that wanted to know. It was a wonderful family night for us. Thanks to the Staff of The Taste Of Texas. You did a TREMENDOUS job as always!
Most of you who know me, know I love baking and preparing large meals for my family relatives and friends. Sunday’s are always fun. That is the day the largest meal is prepared. Yesterday was a nice meal, and I would like to share some photos with you. Now this wasn’t the best meal, but we all enjoyed it and are very thankful that God provides for all of us It you have some photos of what you enjoy cooking, grilling, or baking share your your photos and comments. And if you have tips that would be terrific. I know I can use all the tips I can get. Looking forward to your comments. My favorite cake to bake is German Chocolate Cake. And Cobbler. Peach and Berry cobbler. You will get to see photos of that soon. I would love to love to see your photots.
Raising awareness of the disease their daughter has been fighting since she was 4 years old has been a top priority for Minerva and Bob Terrill of Dallas. Denise Terrill, now 29, has neurofibromatosis, a disease that has caused tumors to grow along her central nervous system, severely damaging her brain stem.
Dr. Bob Terrill, Denise’s father and a dermatologist, diagnosed his daughter’s disease when she was a toddler. Since then, Denise has endured 18 major surgeries, the first of which occurred in 1990 and resulted in her hearing loss. Confined to her bed for almost 10 years, she has lost sight in one eye. She requires a ventilator to breathe and receives nourishment through a feeding tube. Read more »
- 2008 Houston Highlights
- A MESSAGE FROM REGGIE
- abc news
- About Me
- ADDY Awards
- Astros Game
- Denise Terrill Golf Classic
- Emily's Name-My-Baby Contest!
- Favorite Places
- Friends of NF
- Friends with NF
- Greg Gorman
- Houston Art Car Parade
- houston astros
- houston livestock show and rodeo
- Houston Roller Derby
- Houston Texans
- International Festival
- Laurie Selzer-MNI
- M.D. Anderson
- Martina McBride
- McKee Street Bridge
- Medical Resources
- national doodle day
- NF Bulletin Board
- NF in the News
- nf inc
- Porch Swing Pub
- Some People
- Texas NF Foundation
- TEXAS RENAISSANCE FESTIVAL
- Valentine's Day
- Web Technology