MY FRIENDS WITH “JUST ASK!” TSHIRTS HAVING FUN

I want to share the fun I had today with friends at STANANDLOU Advertising.

Today was picture day!

We are showing how much fun you can have with the right people and the right clothing!!! Yeah, the shirt had a lot to do with it.

Maybe if we get a lot of bloggers and you demand that everyone at the office must wear the JUST ASK shirt as a policy we can promote more fun in the office while raising awareness for NF. Lets start blogging. Say, “Hey Lou, Reggie is right. I like the idea!”

Lou, by the way, nice hat!

“I love life and each day is a gift.” – Matthew

Hello Reggie- My friend, Melanie told me about you and me must say I am very impressed with your resiliency and the battle we all have with NF. My name is Matthew 41 years young, live in New York. My mom, my 2 sisters and myself have NF 1.

I have had so many surgeries I lost count. 2 of them were extensive spinal surgeries. After my last spinal surgery, I needed just as before the surgery to use a cane and wear an AFO on my right leg and knee cage on the left. But know I must wear a KAFO on each leg and use a walker due to osteoporosis and degenerative disc disease. There are still innumerable tumors that of course cannot be removed.